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5 vs 6 rounds of FCR
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Mnance
in
CLL Support
8 years ago
CLL Patient Survey
Lymphoma Canada is preparing submissions to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with previously untreated CLL for whom
fludarabine
-based treatment is considered inappropriate Venetoclax (ABT-199) for patients with relapsed/refractory CLL You can help
Lymphoma Canada is preparing submissions to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with previously untreated CLL for whom
fludarabine
-based treatment is considered inappropriate Venetoclax (ABT-199) for patients with relapsed/refractory CLL You can help
LCAdmin
in
CLL Support
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
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CLL Patient Survey
Lymphoma Canada is preparing submissions for the panCanadian Oncology Drug Review (pCODR) for: 1.Ibrutinib (Imbruvica) for patients with previously untreated CLL for whom
fludarabine
-based treatment is considered inappropriate 2.Venetoclax (ABT-199) for patients with relapsed/refractory CLL.
Lymphoma Canada is preparing submissions for the panCanadian Oncology Drug Review (pCODR) for: 1.Ibrutinib (Imbruvica) for patients with previously untreated CLL for whom
fludarabine
-based treatment is considered inappropriate 2.Venetoclax (ABT-199) for patients with relapsed/refractory CLL.
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
I'm short of a wee bit of sympathy, just a little.
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Bribin
in
CLL Support
8 years ago
Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
Thought, since I was once told I had 3-5 years, 37 years ago, I would share some of my background with you. First treated by local hematology/oncologist in Denver with Leukeran and prednisone. Likely before it was needed. Later seen by Dr Freireich at MDA. His people round tabled my case and chose
aking90
in
CLL America Support
8 years ago
Is ibrutinib enough?
Hi all, new to posting, so hope to be concise as possible. Currently on ibrutinib now for 14 months with a wonderful response other than the multitude of irritating side effects. My question is do I continue to be satisfied with where I am in treatment or should I be more aggressive in seeking a complete
Hi all, new to posting, so hope to be concise as possible. Currently on ibrutinib now for 14 months with a wonderful response other than the multitude of irritating side effects. My question is do I continue to be satisfied with where I am in treatment or should I be more aggressive in seeking a complete
kelcorn92
in
CLL Support
8 years ago
Transferring treatment to another country
I've been told today that I need to start FCR treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April. My haematologist says that they would provide the necessary papers
I've been told today that I need to start FCR treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April. My haematologist says that they would provide the necessary papers
bendintheroad1
in
CLL Support
8 years ago
Any way to shrink lymph nodes without full treatment?
Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 months until my last checkup in October 2015 where they 'signed me off' for 6 months after a FISH prognostic showed no 'bad' markers. So far so good, apart from the lymph nodes in my neck and jaw. They have been swollen pretty
Hi, I was diagnosed in late November of 2014. On w&w with appointments every 3 months until my last checkup in October 2015 where they 'signed me off' for 6 months after a FISH prognostic showed no 'bad' markers. So far so good, apart from the lymph nodes in my neck and jaw. They have been swollen pretty
jasonfox
in
CLL Support
8 years ago
Update before starting 2nd FCR treatment v
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Louiej
in
CLL Support
8 years ago
Month 6 on iFCR and Going Strong
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
ltcbbaker
in
CLL Support
8 years ago
Out of remission?
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
Bama-Girl
in
CLL Support
8 years ago
FCR follow up is CT necessary?
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
dwolden
in
CLL Support
8 years ago
Rituximab and bendamustine
I did have
fludarabine
and rituximab nearly 5 years ago with great results. Has anyone else had this regime and how did they find it and how long did it last? A feel well Christmas and healthy new year to all
I did have
fludarabine
and rituximab nearly 5 years ago with great results. Has anyone else had this regime and how did they find it and how long did it last? A feel well Christmas and healthy new year to all
Donegal
in
CLL Support
9 years ago
Treatment starting 4th February
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Louiej
in
CLL Support
9 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
9 years ago
FCR remission period
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
mag1309
in
CLL Support
9 years ago
Husband with p53 deletion
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
MichRae
in
CLL Support
9 years ago
Spouse Diagnoised with CLL
He starts FCR treatment Friday, will he be able to work the week after?
He starts FCR treatment Friday, will he be able to work the week after?
AngK
in
CLL Support
9 years ago
Offer of enrolling on CALiBRe trial
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
kendo1
in
CLL Support
9 years ago
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