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Update before starting 2nd FCR treatment v
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Hi. My 1st treatment FCR has been challenging to say the least. The actual treatment was what I expected after reading all your messages. The normal tiredness and just feeling unwell. I noticed a rash starting and it seen my consultant who said it was an allergy to the antibiotics I was given. So not
Louiej
in
CLL Support
8 years ago
Month 6 on iFCR and Going Strong
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
I last posted four months ago when my wife "NoMoreCLL" began the Ibrutinib plus FCR Study. We're here at the Farber today, on Day 1 of 3, Month 6 of 6 for the final set of infusions. As of mid-Study (end of Cycle 3) she had MRD Positive for both blood and marrow...then on the cusp of MRD Negativity
ltcbbaker
in
CLL Support
8 years ago
Out of remission?
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise
Bama-Girl
in
CLL Support
8 years ago
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FCR follow up is CT necessary?
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
dwolden
in
CLL Support
8 years ago
Rituximab and bendamustine
I did have
fludarabine
and rituximab nearly 5 years ago with great results. Has anyone else had this regime and how did they find it and how long did it last? A feel well Christmas and healthy new year to all
I did have
fludarabine
and rituximab nearly 5 years ago with great results. Has anyone else had this regime and how did they find it and how long did it last? A feel well Christmas and healthy new year to all
Donegal
in
CLL Support
8 years ago
Treatment starting 4th February
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Hi. Thank you all for your lovely replies to my earlier post. I have seen my hematology consultant and will be starting on FCR treatment for 5/6 months starting on the 4th Febuary. My consultant has talked me through the treatment and explained why this is suitable for me. I have an appointment on the
Louiej
in
CLL Support
8 years ago
recently diagnosed with CLL
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
In Jan 2015 I went to the hospital with a platelet count of 1,000. The doctor told me I had ITP and treated me for 10 months with steroids, IVIG, and Nplate shots. After 3 more hospitalizations, I changed doctors in November. The new doc started me on Rituxan, continued the weekly Nplate, and scheduled
ohiojim
in
CLL Support
8 years ago
FCR remission period
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
Hi, I am 42 years . Gone through 6 cycle FCR in 2011. After 52 months, my lymphocytes now 4 with 14 cm spleen size. It looks my sll is coming back as I am feeling nodes in in neck. What is average remission period in FCR ? What is other treatment option ?
mag1309
in
CLL Support
8 years ago
Husband with p53 deletion
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
MichRae
in
CLL Support
8 years ago
Spouse Diagnoised with CLL
He starts FCR treatment Friday, will he be able to work the week after?
He starts FCR treatment Friday, will he be able to work the week after?
AngK
in
CLL Support
8 years ago
Offer of enrolling on CALiBRe trial
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
kendo1
in
CLL Support
8 years ago
colds and coughs
My husband and I both had head colds last week. His had settled in his chest with a fearsome cough, low grade fever and general misery. We have been to "urgent care" last Sunday and had a regularly scheduled visit with his oncologist today. Bloods are unremarkable and both doctors think it is viral
My husband and I both had head colds last week. His had settled in his chest with a fearsome cough, low grade fever and general misery. We have been to "urgent care" last Sunday and had a regularly scheduled visit with his oncologist today. Bloods are unremarkable and both doctors think it is viral
dwolden
in
CLL Support
8 years ago
Integrating Emerging Evidence Into the Management of CLL Patients; what leading CLL experts recommend in 4 case studies
Treatment options covered include:
Bendamustine and Rituximab (BR) Chlorambucil + CD20 monoclonal Antibody (mAb) Chlorambucil ± Ofatumumab
Fludarabine
, Cyclophosphamide, and Rituximab (FCR) Ibrutinib (BTK inhibitor) Idelalisib (PI3K inhibitor) and Rituximab Lenalidomide Obinutuzumab and Chlorambucil
Treatment options covered include:
Bendamustine and Rituximab (BR) Chlorambucil + CD20 monoclonal Antibody (mAb) Chlorambucil ± Ofatumumab
Fludarabine
, Cyclophosphamide, and Rituximab (FCR) Ibrutinib (BTK inhibitor) Idelalisib (PI3K inhibitor) and Rituximab Lenalidomide Obinutuzumab and Chlorambucil
AussieNeil
Administrator
in
CLL Support
8 years ago
Sharing the good news
This is my first post on this very interesting and helpful website of a marvellous community. I am attending a trial with the new medicin Venetoclax and I’d like to share the good news with you (and I hope you will forgive me my mistakes in using the English language ;-) ) I live in the Netherlands,
This is my first post on this very interesting and helpful website of a marvellous community. I am attending a trial with the new medicin Venetoclax and I’d like to share the good news with you (and I hope you will forgive me my mistakes in using the English language ;-) ) I live in the Netherlands,
Korstiaan
in
CLL Support
8 years ago
FCR commences
Home from my first day of FCR. Not as bad as I anticipated and I had no reaction to the "R" aspect - (hoping this isn't a bad sign that it won't work for me!) Feeling woozy but otherwise grand. Glad to have commenced and looking forward to a good night;s sleep - fingers crossed! Buried in a fantastic
Home from my first day of FCR. Not as bad as I anticipated and I had no reaction to the "R" aspect - (hoping this isn't a bad sign that it won't work for me!) Feeling woozy but otherwise grand. Glad to have commenced and looking forward to a good night;s sleep - fingers crossed! Buried in a fantastic
KateEvaLen
in
CLL Support
8 years ago
obinutuzumab trial, do i or dont i?
Just been for my 18 month post FCR check up and was very pleased to hear that yet again i have a perfect blood count and no evidence of any mass or lumps. Then surprisingly just as i'm about to get up the consultant says I would be an ideal patient to go on a new wing of the Galactic trial that he is
Just been for my 18 month post FCR check up and was very pleased to hear that yet again i have a perfect blood count and no evidence of any mass or lumps. Then surprisingly just as i'm about to get up the consultant says I would be an ideal patient to go on a new wing of the Galactic trial that he is
grizzlebear
in
CLL Support
8 years ago
FCR Bound
Hi everyone. Just wanted to update you. Following getting my second opinion with a CLL specialist this week, its now certain that I'm heading for FCR. My specialist: - confirmed that I need treatment now and can no longer wait. - went through all options but felt that FCR was the right route
Hi everyone. Just wanted to update you. Following getting my second opinion with a CLL specialist this week, its now certain that I'm heading for FCR. My specialist: - confirmed that I need treatment now and can no longer wait. - went through all options but felt that FCR was the right route
KateEvaLen
in
CLL Support
8 years ago
How Personalised Medicine is used to target variations unique to each cancer tumour
[i]"Cancer is fundamentally a disease of altered genomics – genetic material making up the structure of cells. Because these alterations are different in each person, every tumour is programmed differently with genes made up of varying sequences of DNA. This is why not everyone will respond the same
[i]"Cancer is fundamentally a disease of altered genomics – genetic material making up the structure of cells. Because these alterations are different in each person, every tumour is programmed differently with genes made up of varying sequences of DNA. This is why not everyone will respond the same
AussieNeil
Administrator
in
CLL Support
8 years ago
Recentlydiagnosed
Only four weeks ago I went for a routine blood test, and the next day was contacted by my GP ,to inform me my bloods were being sent to oxford for further testing...the probability being they thought it showed I had cll? On the Friday I was confirmed it was that, and I was at stage 4 needing treatment
Only four weeks ago I went for a routine blood test, and the next day was contacted by my GP ,to inform me my bloods were being sent to oxford for further testing...the probability being they thought it showed I had cll? On the Friday I was confirmed it was that, and I was at stage 4 needing treatment
Megellen
in
CLL Support
8 years ago
Statistical analysis of REACH trial patients identifies Progression Free Survival prognostic factor for FCR patients
REACH (NCT0090051) was an open-label randomized (1:1) phase III trial in relapsed CLL comparing FC with FCR, (that is comparing traditional chemotherapy using
Fludarabine
+Cyclophosphamide, compared to immunochemotherapy in which the monoclonal CD20 antibody Rituximab/Mabthera is added to the
Fludarabine
REACH (NCT0090051) was an open-label randomized (1:1) phase III trial in relapsed CLL comparing FC with FCR, (that is comparing traditional chemotherapy using
Fludarabine
+Cyclophosphamide, compared to immunochemotherapy in which the monoclonal CD20 antibody Rituximab/Mabthera is added to the
Fludarabine
AussieNeil
Administrator
in
CLL Support
9 years ago
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