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Husband with p53 deletion
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
Hello! First time post... Almost a year ago my husband was diagnosed with CLL at 45 after a routine blood test. Since then his lymphocyte count has more than doubled (started at 41, currently over 100). In November after seeing a new specialist, he had a bone marrow biopsy and was told that he has a
MichRae
in
CLL Support
9 years ago
Spouse Diagnoised with CLL
He starts FCR treatment Friday, will he be able to work the week after?
He starts FCR treatment Friday, will he be able to work the week after?
AngK
in
CLL Support
9 years ago
Offer of enrolling on CALiBRe trial
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
This is my 1st post. I was diagnosed with cll in May 2008 and been on w&w since. In march this year nodes mainly on left side of neck became more pronounced and spleen increased by 1cm. Had biopsy on left side under jaw. Went ok but then in Sept became enlarged again and spleen more enlarged too. I saw
kendo1
in
CLL Support
9 years ago
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colds and coughs
My husband and I both had head colds last week. His had settled in his chest with a fearsome cough, low grade fever and general misery. We have been to "urgent care" last Sunday and had a regularly scheduled visit with his oncologist today. Bloods are unremarkable and both doctors think it is viral
My husband and I both had head colds last week. His had settled in his chest with a fearsome cough, low grade fever and general misery. We have been to "urgent care" last Sunday and had a regularly scheduled visit with his oncologist today. Bloods are unremarkable and both doctors think it is viral
dwolden
in
CLL Support
9 years ago
Sharing the good news
This is my first post on this very interesting and helpful website of a marvellous community. I am attending a trial with the new medicin Venetoclax and I’d like to share the good news with you (and I hope you will forgive me my mistakes in using the English language ;-) ) I live in the Netherlands,
This is my first post on this very interesting and helpful website of a marvellous community. I am attending a trial with the new medicin Venetoclax and I’d like to share the good news with you (and I hope you will forgive me my mistakes in using the English language ;-) ) I live in the Netherlands,
Korstiaan
in
CLL Support
9 years ago
Integrating Emerging Evidence Into the Management of CLL Patients; what leading CLL experts recommend in 4 case studies
Treatment options covered include:
Bendamustine and Rituximab (BR) Chlorambucil + CD20 monoclonal Antibody (mAb) Chlorambucil ± Ofatumumab
Fludarabine
, Cyclophosphamide, and Rituximab (FCR) Ibrutinib (BTK inhibitor) Idelalisib (PI3K inhibitor) and Rituximab Lenalidomide Obinutuzumab and Chlorambucil
Treatment options covered include:
Bendamustine and Rituximab (BR) Chlorambucil + CD20 monoclonal Antibody (mAb) Chlorambucil ± Ofatumumab
Fludarabine
, Cyclophosphamide, and Rituximab (FCR) Ibrutinib (BTK inhibitor) Idelalisib (PI3K inhibitor) and Rituximab Lenalidomide Obinutuzumab and Chlorambucil
AussieNeil
Partner
in
CLL Support
9 years ago
FCR commences
Home from my first day of FCR. Not as bad as I anticipated and I had no reaction to the "R" aspect - (hoping this isn't a bad sign that it won't work for me!) Feeling woozy but otherwise grand. Glad to have commenced and looking forward to a good night;s sleep - fingers crossed! Buried in a fantastic
Home from my first day of FCR. Not as bad as I anticipated and I had no reaction to the "R" aspect - (hoping this isn't a bad sign that it won't work for me!) Feeling woozy but otherwise grand. Glad to have commenced and looking forward to a good night;s sleep - fingers crossed! Buried in a fantastic
KateEvaLen
in
CLL Support
9 years ago
obinutuzumab trial, do i or dont i?
Just been for my 18 month post FCR check up and was very pleased to hear that yet again i have a perfect blood count and no evidence of any mass or lumps. Then surprisingly just as i'm about to get up the consultant says I would be an ideal patient to go on a new wing of the Galactic trial that he is
Just been for my 18 month post FCR check up and was very pleased to hear that yet again i have a perfect blood count and no evidence of any mass or lumps. Then surprisingly just as i'm about to get up the consultant says I would be an ideal patient to go on a new wing of the Galactic trial that he is
grizzlebear
in
CLL Support
9 years ago
FCR Bound
Hi everyone. Just wanted to update you. Following getting my second opinion with a CLL specialist this week, its now certain that I'm heading for FCR. My specialist: - confirmed that I need treatment now and can no longer wait. - went through all options but felt that FCR was the right route
Hi everyone. Just wanted to update you. Following getting my second opinion with a CLL specialist this week, its now certain that I'm heading for FCR. My specialist: - confirmed that I need treatment now and can no longer wait. - went through all options but felt that FCR was the right route
KateEvaLen
in
CLL Support
9 years ago
How Personalised Medicine is used to target variations unique to each cancer tumour
[i]"Cancer is fundamentally a disease of altered genomics – genetic material making up the structure of cells. Because these alterations are different in each person, every tumour is programmed differently with genes made up of varying sequences of DNA. This is why not everyone will respond the same
[i]"Cancer is fundamentally a disease of altered genomics – genetic material making up the structure of cells. Because these alterations are different in each person, every tumour is programmed differently with genes made up of varying sequences of DNA. This is why not everyone will respond the same
AussieNeil
Partner
in
CLL Support
9 years ago
Recentlydiagnosed
Only four weeks ago I went for a routine blood test, and the next day was contacted by my GP ,to inform me my bloods were being sent to oxford for further testing...the probability being they thought it showed I had cll? On the Friday I was confirmed it was that, and I was at stage 4 needing treatment
Only four weeks ago I went for a routine blood test, and the next day was contacted by my GP ,to inform me my bloods were being sent to oxford for further testing...the probability being they thought it showed I had cll? On the Friday I was confirmed it was that, and I was at stage 4 needing treatment
Megellen
in
CLL Support
9 years ago
Statistical analysis of REACH trial patients identifies Progression Free Survival prognostic factor for FCR patients
REACH (NCT0090051) was an open-label randomized (1:1) phase III trial in relapsed CLL comparing FC with FCR, (that is comparing traditional chemotherapy using
Fludarabine
+Cyclophosphamide, compared to immunochemotherapy in which the monoclonal CD20 antibody Rituximab/Mabthera is added to the
Fludarabine
REACH (NCT0090051) was an open-label randomized (1:1) phase III trial in relapsed CLL comparing FC with FCR, (that is comparing traditional chemotherapy using
Fludarabine
+Cyclophosphamide, compared to immunochemotherapy in which the monoclonal CD20 antibody Rituximab/Mabthera is added to the
Fludarabine
AussieNeil
Partner
in
CLL Support
9 years ago
FCR may CURE some of us - Dr Sharman
[i]"In today's CLL climate, web informed patients are rebelling against FCR - and in many cases, I think it is for good reason. FCR is a tough regimen. Even in the German CLL8 study, about 4% of patients die in the first 12 months after starting therapy. In the MD Anderson data set, it appears that
[i]"In today's CLL climate, web informed patients are rebelling against FCR - and in many cases, I think it is for good reason. FCR is a tough regimen. Even in the German CLL8 study, about 4% of patients die in the first 12 months after starting therapy. In the MD Anderson data set, it appears that
AussieNeil
Partner
in
CLL Support
9 years ago
Ibrutinib+Rituximab
Hi All, I am due to entered onto the FLAIR trial (SLL) and if accepted will either have FCR or IR. May I kindly ask our knowledgeable community that once the initial 6 months of Rituximab is over, if I ended up on I+R would I be able to still maintain my gym protocols?. Currently and fortunately i work
Hi All, I am due to entered onto the FLAIR trial (SLL) and if accepted will either have FCR or IR. May I kindly ask our knowledgeable community that once the initial 6 months of Rituximab is over, if I ended up on I+R would I be able to still maintain my gym protocols?. Currently and fortunately i work
jackhammer
in
CLL Support
9 years ago
iFCR Phase II Study Looks Promising
My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated IGHV, 11q deletion) began a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With Chronic Lymphocytic Leukemia (iFCR) at Dana Farber in Boston. She just completed 1st month of treatment with
My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated IGHV, 11q deletion) began a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With Chronic Lymphocytic Leukemia (iFCR) at Dana Farber in Boston. She just completed 1st month of treatment with
ltcbbaker
in
CLL Support
9 years ago
Fish Test Results and Treatment Decisions
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
KateEvaLen
in
CLL Support
9 years ago
sourdough live yeast bread
I began making my beloved sourdough bread again after several years (thinking it a good way to relax) and then thought- oops- this is a live yeast. Possible fungus? So is it safe? Am about to start FLAIR on Ibrutinib/Rituximab arm so immunity not as compromised as FCR but nevertheless. Any advice or
I began making my beloved sourdough bread again after several years (thinking it a good way to relax) and then thought- oops- this is a live yeast. Possible fungus? So is it safe? Am about to start FLAIR on Ibrutinib/Rituximab arm so immunity not as compromised as FCR but nevertheless. Any advice or
romarin
in
CLL Support
9 years ago
FCR soon/confused
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
Dinasantos
in
CLL Support
9 years ago
Ibrutinib + FCR Phase II Study
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
ltcbbaker
in
CLL Support
9 years ago
Are you biologically young enough for FCR?
Wondering if you are biologically young and fit enough to tolerate say FCR (
Fludarabine
, Cyclophosphamide Rituximab), or whether a gentler treatment protocol such as BR (Bendamustine Rituximab) would suit you better?
Wondering if you are biologically young and fit enough to tolerate say FCR (
Fludarabine
, Cyclophosphamide Rituximab), or whether a gentler treatment protocol such as BR (Bendamustine Rituximab) would suit you better?
AussieNeil
Partner
in
CLL Support
9 years ago
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