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B12 injections stopped by GP
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
ValentinoBlue
in
Pernicious Anaemia Society
1 year ago
Could my B12d be due to medication
After another wasted trip to the doctors last month. She showed some concern over my long list of symptoms but thought it best to wait another 5 weeks before we discussed B12 injections again (She is convinced it is due to diet), and in the meantime sent me for more of the same repeated blood tests but
After another wasted trip to the doctors last month. She showed some concern over my long list of symptoms but thought it best to wait another 5 weeks before we discussed B12 injections again (She is convinced it is due to diet), and in the meantime sent me for more of the same repeated blood tests but
woo79
in
Pernicious Anaemia Society
1 year ago
Intrinsic Factor Antibodies
Hi I was diagnosed with PA in October 22 .I had a private blood test after feeling unwell for a while. I used Superdrug and IFA came back as 36.4 U/ml Range 0-6 Recently I had another test done at Medichecks and IFA came back as 57.82 Au/ml Range Less than 1.2. I can see these are different references
Hi I was diagnosed with PA in October 22 .I had a private blood test after feeling unwell for a while. I used Superdrug and IFA came back as 36.4 U/ml Range 0-6 Recently I had another test done at Medichecks and IFA came back as 57.82 Au/ml Range Less than 1.2. I can see these are different references
smg1950
in
Pernicious Anaemia Society
1 year ago
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Possible R.A ?
Hi all sorry if your fed up reading people's symptoms etc.... I'm feeling a little lost and looking I suppose to find out more of other peoples journeys and thoughts. I have psoriasis but for a while have niggles in my fingers and thumbs. Not bothered me really and a lump on my finger(knuckle). But around
Hi all sorry if your fed up reading people's symptoms etc.... I'm feeling a little lost and looking I suppose to find out more of other peoples journeys and thoughts. I have psoriasis but for a while have niggles in my fingers and thumbs. Not bothered me really and a lump on my finger(knuckle). But around
Valla81
in
NRAS
1 year ago
Tests booked. Do I need to come off medication?
Hello, My tests are booked in, I wanted to know if there is any medication I am on that I should come off before I have these tests done and how long before the tests are done. The tests I am having are the following= HbA1c, Bone Profile, Serum Vitamin B12, ESR, Full Blood Count, Serum Ferritin,
Hello, My tests are booked in, I wanted to know if there is any medication I am on that I should come off before I have these tests done and how long before the tests are done. The tests I am having are the following= HbA1c, Bone Profile, Serum Vitamin B12, ESR, Full Blood Count, Serum Ferritin,
sunflower022
in
Thyroid UK
1 year ago
Recently diagnosed - help request to understand test results
I was diagnosed with hypothyroidism in February and prescribed Levothyroxine 50mg per day. My February blood tests resulted in a diagnosis of Hashimoto's Disease and an increase to 100mg per day. My GP told me that my latest test results (18.04.23) show that my thyroid is normal and I'm negative for
I was diagnosed with hypothyroidism in February and prescribed Levothyroxine 50mg per day. My February blood tests resulted in a diagnosis of Hashimoto's Disease and an increase to 100mg per day. My GP told me that my latest test results (18.04.23) show that my thyroid is normal and I'm negative for
Slowrunner1208
in
Thyroid UK
1 year ago
I believe you.
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you suffered less when you 'topped' off'. Even though that is contrary to the concept of loading then maintenance. I heard you when you wrote it feels
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Tracking your B12 changes after injections? (Please share if so)
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections (of 1000 mcg/mL cyanocobalomine) over 1 month, then monthly injections since then. A friend had a similar situation. After she started injections
Pante
in
Pernicious Anaemia Society
1 year ago
any advice please
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and that’s why I felt tired all the time I thought I’d have it all checked and also Dr K at the infusion centre in Cambridge advised me to do them
Thrones12
in
Pernicious Anaemia Society
1 year ago
Another ignorant GP - "is PA forever?" he asked
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
HKAnne
in
Pernicious Anaemia Society
1 year ago
I’m new to this forum
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
hi folks, new to this forum. basically was referred to consultant some 6 years ago and started on NSAID naproxen which I had been taking for a while prior and which seemed to be holding pain control quite well. Declined to start DMARDs at that point as a bit scared of side effects and have managed with
Isla-baby
in
NRAS
1 year ago
Can I eat better to aid stomach acid?
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Mocha23
in
Pernicious Anaemia Society
1 year ago
RF, RA, Rayos & Pain
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
Jojosteeler
in
NRAS
1 year ago
Epigenetics
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
pjoshea13
in
Fight Prostate Cancer
1 year ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Joint pain
Hi Gp tested for Anca, rheumatoid factor, ESR, which is the best place to interpret these results?
Hi Gp tested for Anca, rheumatoid factor, ESR, which is the best place to interpret these results?
Mividauk2
in
Thyroid UK
1 year ago
Getting a diagnosis
Hi I've had symptoms potentially related to a b12 problem just about all my life (I'm 50 now). I became very ill about 3 years ago with a typical list of symptoms along with extreme weight loss and loss of muscle mass. I was anaemic then and also had very low serum ferritin. I saw a neurologist who told
Hi I've had symptoms potentially related to a b12 problem just about all my life (I'm 50 now). I became very ill about 3 years ago with a typical list of symptoms along with extreme weight loss and loss of muscle mass. I was anaemic then and also had very low serum ferritin. I saw a neurologist who told
Uluru72
in
Pernicious Anaemia Society
1 year ago
Blood test results, vitamins and minerals
Hello everyone, I had my next blood test on 7th March, 9:45am, last levo dose was about 8:30am the day before. At the time of the test I was taking 50mcg Accord/Almus, increased from 25mcg on 12th January 2023 (this involved a brand change, in fact I've had 3 different brands so far). [u]Results/
Hello everyone, I had my next blood test on 7th March, 9:45am, last levo dose was about 8:30am the day before. At the time of the test I was taking 50mcg Accord/Almus, increased from 25mcg on 12th January 2023 (this involved a brand change, in fact I've had 3 different brands so far). [u]Results/
Myalikki
in
Thyroid UK
1 year ago
Atropic gastritis? Symptoms of B12 deficiency?
Hi all. I've been having some concerning symptoms for about 3 months. It all started with random abdominal pains and low back pain. It is now radiating down my groin and into the backs and sides of the thighs. I saw my GP last month as the stomach pains are now very bad, horrible burning pain,
Hi all. I've been having some concerning symptoms for about 3 months. It all started with random abdominal pains and low back pain. It is now radiating down my groin and into the backs and sides of the thighs. I saw my GP last month as the stomach pains are now very bad, horrible burning pain,
vetnurse76
in
Pernicious Anaemia Society
1 year ago
What to expect?
Finger pain and swelling ongoing several months. No functional deficit. Rheumatoid factor mildly elevated and anti-CCP off the scale at >340. No rheumatology appointment yet - only just referred. Am I likely to be prescribed Methotrexate?
Finger pain and swelling ongoing several months. No functional deficit. Rheumatoid factor mildly elevated and anti-CCP off the scale at >340. No rheumatology appointment yet - only just referred. Am I likely to be prescribed Methotrexate?
Blahhhnlahh
in
PMRGCAuk
1 year ago
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