Search
Search
About
Log in
Join
Experiences with
Flector
Posts
Communities
1,477 public posts
Filter results
Do I need B12 injections or are sublingual lozenges enough?
Hi, I'm new here. I saw a news report recently about PA patients supplementing their NHS injections with stuff bought off the internet. When the interviewee listed her symptoms, it was like someone listing everything I had been to see my doctor about in the last few years. Looking at the PAS website
Hi, I'm new here. I saw a news report recently about PA patients supplementing their NHS injections with stuff bought off the internet. When the interviewee listed her symptoms, it was like someone listing everything I had been to see my doctor about in the last few years. Looking at the PAS website
SNEWEY
in
Pernicious Anaemia Society
8 years ago
Help with blood results
Hello So I went for my full blood count including folate b12 and intrinsic factor ( I can't see that on there)?? Same as before " no further action " The folate range was different in the private test I did , is 9.1 good?? Obviously the b12 is low and my thyroid values have changed for the worse too,
Hello So I went for my full blood count including folate b12 and intrinsic factor ( I can't see that on there)?? Same as before " no further action " The folate range was different in the private test I did , is 9.1 good?? Obviously the b12 is low and my thyroid values have changed for the worse too,
Ndobins
in
Pernicious Anaemia Society
8 years ago
Which container for a blood test?
Hey guys, so I'm trying to order a private blood test from blue horizon for the intrinsic factor and I'm a little confused. It may sound like the silliest question but seeing as I'm about to fork out £129 I think i will take the risk and look stupid 🙄 There are 4 options and I'm not sure which 1 to
Hey guys, so I'm trying to order a private blood test from blue horizon for the intrinsic factor and I'm a little confused. It may sound like the silliest question but seeing as I'm about to fork out £129 I think i will take the risk and look stupid 🙄 There are 4 options and I'm not sure which 1 to
Raven321
in
Pernicious Anaemia Society
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Some help needed please.
I have been posting on the thyroid thread but it has been suggested that I post here. I paid for a private blood test from Blue Horizon and it showed the following:- This is a hyperthyroid result (overactive thyroid gland). The high free thyroxine level suggests that there is some issue with your thyroid
I have been posting on the thyroid thread but it has been suggested that I post here. I paid for a private blood test from Blue Horizon and it showed the following:- This is a hyperthyroid result (overactive thyroid gland). The high free thyroxine level suggests that there is some issue with your thyroid
Redrow
in
Pernicious Anaemia Society
8 years ago
The pains back ☹️
Hi all, So I took the b12 injection last sat and have felt so much better all week. I was waiting for it to clear from my blood so I can book the private blood test this week for the intrinsic factor. Trouble is the pains back today :( Exactly 7.5 days later and my neck and shoulders are in agony. I'm
Hi all, So I took the b12 injection last sat and have felt so much better all week. I was waiting for it to clear from my blood so I can book the private blood test this week for the intrinsic factor. Trouble is the pains back today :( Exactly 7.5 days later and my neck and shoulders are in agony. I'm
Raven321
in
Pernicious Anaemia Society
8 years ago
B12 low for a year doctors dithering about treatment - please help before I go mad
Hi I'm new here and don't normally join or post to websites but so fed up of being strung along by doctors who constantly tell me everything's normal when I feel the opposite so any advice welcomed. I went to Dr last December after trying to cope on my own for about a year feeling far more tired and
Hi I'm new here and don't normally join or post to websites but so fed up of being strung along by doctors who constantly tell me everything's normal when I feel the opposite so any advice welcomed. I went to Dr last December after trying to cope on my own for about a year feeling far more tired and
Clare184
in
Pernicious Anaemia Society
8 years ago
Sorry to bother you...
Hello I wonder if anyone could give me some advice. Since March my CRP has been raised. It was 20 (the range goes up to 5) and last week it has come down to 16. My ESR was raised and now its back to normal. I have been feeling progressively worse, I feel like Ive been run over when I wake up - body
Hello I wonder if anyone could give me some advice. Since March my CRP has been raised. It was 20 (the range goes up to 5) and last week it has come down to 16. My ESR was raised and now its back to normal. I have been feeling progressively worse, I feel like Ive been run over when I wake up - body
Hidden
in
LUPUS UK
8 years ago
An update.. Kinda scared.
Well I saw my GI doctor today and I'm pretty nervous. I got my lab results back today and some things seem worse. About 2 weeks ago I posted about my high serum gastrin results, which were pretty high at 1847. I did research after the fact and found out it was supposed to be a fasting test (thank god
Well I saw my GI doctor today and I'm pretty nervous. I got my lab results back today and some things seem worse. About 2 weeks ago I posted about my high serum gastrin results, which were pretty high at 1847. I did research after the fact and found out it was supposed to be a fasting test (thank god
yogamom1
in
Pernicious Anaemia Society
8 years ago
B12
Just finished Loading dose of 6 injections over two weeks and told by GP that can have 1 injection every 3 months although i provided the BNF info which has clearly not been read which i posted for the GP to read in advance to my appointment as i have a few B12 symptoms GP talked about overdosing on
Just finished Loading dose of 6 injections over two weeks and told by GP that can have 1 injection every 3 months although i provided the BNF info which has clearly not been read which i posted for the GP to read in advance to my appointment as i have a few B12 symptoms GP talked about overdosing on
Advice1
in
Pernicious Anaemia Society
8 years ago
Celiac screening
Looking at celiac.org, they say NICE has advised that those with autoimmune thyroiditis should be offered celiac test on diagnosis ... is this happening? Didn't happen to me. Very sensible though, and I think we should even more be screened for autoimmune gastritis, with the gp asking if we Are taking
Looking at celiac.org, they say NICE has advised that those with autoimmune thyroiditis should be offered celiac test on diagnosis ... is this happening? Didn't happen to me. Very sensible though, and I think we should even more be screened for autoimmune gastritis, with the gp asking if we Are taking
Hidden
in
Thyroid UK
8 years ago
Do parietal antibodies come and go?
I know the intrinsic factor test only comes back positive half the time in AIG, is it the experience of members that the parietal antibody test result can come and go too? I tested myself some years ago and was negative, I didn't test intrinsic factor ... does that result rule AIG out for me?
I know the intrinsic factor test only comes back positive half the time in AIG, is it the experience of members that the parietal antibody test result can come and go too? I tested myself some years ago and was negative, I didn't test intrinsic factor ... does that result rule AIG out for me?
Hidden
in
Pernicious Anaemia Society
8 years ago
How do I get to see an expert?
I am so frustrated by NHS doctors that I may never go back. I have just been told that if I had pernicious amaemia the intrinsic factor anti body test would be positive. I pointed out that 50% of people with it dont have a positive test and I was told that the test is 100% effective and negative means
I am so frustrated by NHS doctors that I may never go back. I have just been told that if I had pernicious amaemia the intrinsic factor anti body test would be positive. I pointed out that 50% of people with it dont have a positive test and I was told that the test is 100% effective and negative means
Alison-Thomas
in
Pernicious Anaemia Society
8 years ago
Results for daughter, advice needed
My daughter is 21, exhausted, cold, thin, clearly sick, exercises, healthy lifestyle, no drink or drugs. I have Hashis, so I Blue Horizoned her. A few years ago her TSH was 2, now it is 3.02, so it is now failing, though there are not yet enough antibodies for Hashis they are rising. No inflammation
My daughter is 21, exhausted, cold, thin, clearly sick, exercises, healthy lifestyle, no drink or drugs. I have Hashis, so I Blue Horizoned her. A few years ago her TSH was 2, now it is 3.02, so it is now failing, though there are not yet enough antibodies for Hashis they are rising. No inflammation
Hidden
in
Pernicious Anaemia Society
8 years ago
New to RA
Hi, I'm absolutely new to this RA , it all started with swollen DIp joint in my finger, a few weeks later spread to a few more DIP joints on my other hand, orthopedic I went to see , sad it looks like RA, I took a test and Rheumatoid Factor came positive, I have An appointment with rheumatologist on
Hi, I'm absolutely new to this RA , it all started with swollen DIp joint in my finger, a few weeks later spread to a few more DIP joints on my other hand, orthopedic I went to see , sad it looks like RA, I took a test and Rheumatoid Factor came positive, I have An appointment with rheumatologist on
Iryna72
in
NRAS
8 years ago
Advice please :(
Just spoken to my dr regarding my intrinsic factor antibody test result to be told "it has come back as negative so that means I definitely don't have PA" I asked about the test being flawed she dismissed this and said "you definitely don't have PA because the test was negative and your not even aneamic
Just spoken to my dr regarding my intrinsic factor antibody test result to be told "it has come back as negative so that means I definitely don't have PA" I asked about the test being flawed she dismissed this and said "you definitely don't have PA because the test was negative and your not even aneamic
Icymind
in
Pernicious Anaemia Society
8 years ago
MTHFR
I'm fairly new here and this is my first post. Has anyone had genetic testing for MTHFR polymorphism? I am awaiting genetic test results but based on my family history, my not-yet-managed B vitamin deficiency seems to be due to polymorphism. The defect is very common but affects people differently.
I'm fairly new here and this is my first post. Has anyone had genetic testing for MTHFR polymorphism? I am awaiting genetic test results but based on my family history, my not-yet-managed B vitamin deficiency seems to be due to polymorphism. The defect is very common but affects people differently.
Statesideheather
in
Pernicious Anaemia Society
8 years ago
Help with Results Please?
Hi everyone, I've just got results back from the doctors and I'll give previous results as well. But I have literally all the symptoms and a family history for Graves and Hashimoto's and other autoimmune conditions. I also have (through all this testing) been diagnosed with celiacs. They want to look
Hi everyone, I've just got results back from the doctors and I'll give previous results as well. But I have literally all the symptoms and a family history for Graves and Hashimoto's and other autoimmune conditions. I also have (through all this testing) been diagnosed with celiacs. They want to look
thecanadianjen
in
Thyroid UK
8 years ago
This is not a good week, old diagnoses new to me! and new to forum
Hello Writing for some advice and support please. I live with hashi, sle lupus and raynaunds, I see endo and rhmy and Gp just for blood test results, there is no care from them. I take liothyroxine t3 only with much success, a battle in itself, I manage my life and work well (spoon theory) and just
Hello Writing for some advice and support please. I live with hashi, sle lupus and raynaunds, I see endo and rhmy and Gp just for blood test results, there is no care from them. I take liothyroxine t3 only with much success, a battle in itself, I manage my life and work well (spoon theory) and just
weg1
in
Pernicious Anaemia Society
8 years ago
Curious
I recent had what I thought was going to be an Intrinsic Factor Antibody blood test, it actually transpires that my bloods were sent on for further tests (IF not done I don't believe) but I have now had a Serum Methylmalonic Acid Level test done which gives a result of 0.33 (range 0 - .29 umol/L). The
I recent had what I thought was going to be an Intrinsic Factor Antibody blood test, it actually transpires that my bloods were sent on for further tests (IF not done I don't believe) but I have now had a Serum Methylmalonic Acid Level test done which gives a result of 0.33 (range 0 - .29 umol/L). The
Geordi
in
Pernicious Anaemia Society
8 years ago
New here and full of questions. Confused and worried.
Hi I'm new here and looking for some advice as a bit confused and worried. After a long time wondering what was wrong with me I was told I was b12 deficient in April this year, my level was 68. However I was told that the intrinsic factor test was negative so I don't have pernicious anaemia. I received
Hi I'm new here and looking for some advice as a bit confused and worried. After a long time wondering what was wrong with me I was told I was b12 deficient in April this year, my level was 68. However I was told that the intrinsic factor test was negative so I don't have pernicious anaemia. I received
Bodley
in
Pernicious Anaemia Society
8 years ago
1
...
56
57
58
...
74
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
860 results
Thyroid UK
244 results
NRAS
151 results
View top 10 communities
Sort by
Most Relevant
Newest