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B12 Problem - Oral Contraceptive Pill - Does this sound correct
Back in Oct 15 I suddenly started feeling really tired, could barely stay awake in the afternoon, always cold, ulcers in mouth and pins/needles in hands and feet. I was told by my Doctor that I am B12 deficient but I have now been told by a Consultant Gastroenterologist it is Chronic Fatigue syndrome
Back in Oct 15 I suddenly started feeling really tired, could barely stay awake in the afternoon, always cold, ulcers in mouth and pins/needles in hands and feet. I was told by my Doctor that I am B12 deficient but I have now been told by a Consultant Gastroenterologist it is Chronic Fatigue syndrome
marie83693
in
Pernicious Anaemia Society
8 years ago
Update. Drs today for injectins
Hi guys As some of you know I've been having a battle to get B12 injections. Went back and saw 4th dr today and she said "yes" as my intrinsic factor was negative she's agreed to monthly for 3 months and see how I'm feeling. My result was 162 for B12 with many symptoms , I've been advised to self inject
Hi guys As some of you know I've been having a battle to get B12 injections. Went back and saw 4th dr today and she said "yes" as my intrinsic factor was negative she's agreed to monthly for 3 months and see how I'm feeling. My result was 162 for B12 with many symptoms , I've been advised to self inject
Ndobins
in
Pernicious Anaemia Society
8 years ago
Will oral B12 complicate blood test results?
Hello, My apologies if this post is redundant--I thought I posted it yesterday, but it seems to have vanished. I was diagnosed with low Vitamin D in April and low B12 (148) in August. I am in the US. I received daily injections for 7 days, followed by 4 weekly injections, and now monthly "forever.
Hello, My apologies if this post is redundant--I thought I posted it yesterday, but it seems to have vanished. I was diagnosed with low Vitamin D in April and low B12 (148) in August. I am in the US. I received daily injections for 7 days, followed by 4 weekly injections, and now monthly "forever.
Holnee
in
Pernicious Anaemia Society
8 years ago
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Help with understanding test results, please?
Hi all, I am going to see my GP tomorrow and I am going through my blood results Does anyone know what is this new assay in use since May 2015? Why do they say 'intrinsic factor ab to follow?' Is this a different test to Intrinsic Factor antibody? Why didn't they do the parietal cell antibodies? End
Hi all, I am going to see my GP tomorrow and I am going through my blood results Does anyone know what is this new assay in use since May 2015? Why do they say 'intrinsic factor ab to follow?' Is this a different test to Intrinsic Factor antibody? Why didn't they do the parietal cell antibodies? End
VickyB12
in
Pernicious Anaemia Society
8 years ago
Being a Hashimoto patient, what are the optimum levels of B12/ folate/ ferritin?
Hi all... I apologise for my long post and Thank you in advance for your time andhelp! I was diagnosed with Hashimoto 10 years ago while I was living in Greece. A year before I moved
Hi all... I apologise for my long post and Thank you in advance for your time andhelp! I was diagnosed with Hashimoto 10 years ago while I was living in Greece. A year before I moved
VickyB12
in
Pernicious Anaemia Society
8 years ago
Optimal levels - TSH / B12 / folic Acid / ferritin ????
Hi all... I apologise for my long post and Thank you in advance for your time andhelp! I was diagnosed with Hashimoto 10 years ago while I was living in Greece. A year before I moved
Hi all... I apologise for my long post and Thank you in advance for your time andhelp! I was diagnosed with Hashimoto 10 years ago while I was living in Greece. A year before I moved
VickyB12
in
Thyroid UK
8 years ago
Data Protection Act and proof to my dads GP that he CAN have his blood test results!
Hi everyone, I wonder if anyone can help me. The NHS have let my dad down terribly this year, and now today his surgery in Crawley will not give him the latest blood results that I wrote to his GP to ask to be done! This is despite having given results to us 4 times this year with no problems! Today
Hi everyone, I wonder if anyone can help me. The NHS have let my dad down terribly this year, and now today his surgery in Crawley will not give him the latest blood results that I wrote to his GP to ask to be done! This is despite having given results to us 4 times this year with no problems! Today
jbthyro
in
Thyroid UK
8 years ago
Rheumatoid factor screening test complement test
This test came back as abnormal does that mean I have rheumatoid arthritis?? I'm confused with all these test results🤔😴🤕
This test came back as abnormal does that mean I have rheumatoid arthritis?? I'm confused with all these test results🤔😴🤕
Deejojo
in
NRAS
8 years ago
Still fighting for injections
Hi all My intrinsic factor result came back fine so told in range again no further action , so went to see dr today , she said no to injections and to try supplements , so I've ordered Jarrows. Should I change surgeries or self inject or I don't know!? I'm at a loss as my b12 is 168 I've asked 3 Drs
Hi all My intrinsic factor result came back fine so told in range again no further action , so went to see dr today , she said no to injections and to try supplements , so I've ordered Jarrows. Should I change surgeries or self inject or I don't know!? I'm at a loss as my b12 is 168 I've asked 3 Drs
Ndobins
in
Pernicious Anaemia Society
8 years ago
So much for my confidence !
Well a little while back I posted a rep!y to a query about people being forced onto tablets instead of injections......the nurse practitioner at my surgery had asked me to change but when I told her I have no Intrinsic Factor she agreed I would need to stay on injections. How wrong can you be..at a gp
Well a little while back I posted a rep!y to a query about people being forced onto tablets instead of injections......the nurse practitioner at my surgery had asked me to change but when I told her I have no Intrinsic Factor she agreed I would need to stay on injections. How wrong can you be..at a gp
ellj
in
Pernicious Anaemia Society
8 years ago
I'm new here, would say hello to everyone
Hello everyone, I am new here but I have been reading the posts here for weeks and found that people here are very kind. I'd like to write about my condition and seek for help. My feet have been in pain for two months now and are getting worse, I can rarely walk in the morning, struggling to get to work
Hello everyone, I am new here but I have been reading the posts here for weeks and found that people here are very kind. I'd like to write about my condition and seek for help. My feet have been in pain for two months now and are getting worse, I can rarely walk in the morning, struggling to get to work
dahongbudong
in
NRAS
8 years ago
Why is it so difficult to Interact with G.P.s ?
Hello. This is my first post, although I have been a lurker for some time. I am 65, female, with many symptoms which brought me to this forum. I thought I was B12 deficient about a year ago after finding information by accident which appeared to sum me up completely. So, I started taking B12, but nothing
Hello. This is my first post, although I have been a lurker for some time. I am 65, female, with many symptoms which brought me to this forum. I thought I was B12 deficient about a year ago after finding information by accident which appeared to sum me up completely. So, I started taking B12, but nothing
SweetorDry
in
Pernicious Anaemia Society
8 years ago
REST OF THE STORY
Continuing the result of my letter to the doc.Although I did have a win I am still battering the door down. His answer to the question of the 3 doses a week etc he said because I had not actually been diagnosed at this point with Pernicious aneamia Although the original result showed B12 of 132 and MCHC
Continuing the result of my letter to the doc.Although I did have a win I am still battering the door down. His answer to the question of the 3 doses a week etc he said because I had not actually been diagnosed at this point with Pernicious aneamia Although the original result showed B12 of 132 and MCHC
may61
in
Pernicious Anaemia Society
8 years ago
At last I have copies of my test results!!
I finally got copies of my test results! If anyone has got time over the next few days would you mind taking a look 👀 I would be extremely greatful. I have a doctors appointment next week for my last plea for injections failing that I have an order on the way from Germany 🇩🇪! Serum B12 108 ng/L (
I finally got copies of my test results! If anyone has got time over the next few days would you mind taking a look 👀 I would be extremely greatful. I have a doctors appointment next week for my last plea for injections failing that I have an order on the way from Germany 🇩🇪! Serum B12 108 ng/L (
Icymind
in
Pernicious Anaemia Society
8 years ago
What's the Source of My Problem? Frustrated With Doctor's Response.
Hi all, Back in August I found out my B12 level was 267 and I was fortunate to be started on loading doses shortly thereafter. I am finally starting to feel better and have two weekly loading doses left (I live in the U.S., so it works a little differently here). I've been pushing my doctor to discover
Hi all, Back in August I found out my B12 level was 267 and I was fortunate to be started on loading doses shortly thereafter. I am finally starting to feel better and have two weekly loading doses left (I live in the U.S., so it works a little differently here). I've been pushing my doctor to discover
srmika
in
Pernicious Anaemia Society
8 years ago
No positive test for APS
HI All I am still wondering if I do have APS or not. I am just so sick and in pain all the time, so want a diagnosis so I can get effective treatment. My doctor originally diagnosed me on my symptoms and blood test results. He did not test for APS but the results showed I did have an auto-immune condition
HI All I am still wondering if I do have APS or not. I am just so sick and in pain all the time, so want a diagnosis so I can get effective treatment. My doctor originally diagnosed me on my symptoms and blood test results. He did not test for APS but the results showed I did have an auto-immune condition
suntap
in
Hughes Syndrome APS Forum
8 years ago
Dead-end at haematologist appointment-what next?
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
Booksellercate
in
Pernicious Anaemia Society
8 years ago
Losing Hope
Been to see different doc this morn cos of hump at top of spine Apparently it a fat deposit and the stiff neck I have had for four weeks and back problems is just tension So tackled her about loading dose quoting BNF she says they usually give 5 over two weeks then every 3 months !!Asked why my intrinsic
Been to see different doc this morn cos of hump at top of spine Apparently it a fat deposit and the stiff neck I have had for four weeks and back problems is just tension So tackled her about loading dose quoting BNF she says they usually give 5 over two weeks then every 3 months !!Asked why my intrinsic
may61
in
Pernicious Anaemia Society
8 years ago
Advice please
Hi everyone I have come over from the Pas/b12 def forum I was diagnosed b12 and folate def with neuropathy in July, negative intrinsic factor for Pernicious anaemia, I had the loading jabs and then the gp stopped them due to high serum b12, its the usual problem with the gps, I have submitted a letter
Hi everyone I have come over from the Pas/b12 def forum I was diagnosed b12 and folate def with neuropathy in July, negative intrinsic factor for Pernicious anaemia, I had the loading jabs and then the gp stopped them due to high serum b12, its the usual problem with the gps, I have submitted a letter
Kenbowns
in
Thyroid UK
8 years ago
Disappointing rheumy appt
Hi all, finally seen in rheumatology clinic yesterday but no further forward.. The consultant there is well known for expertise in lupus so I was holding out hope for some answers or a greater understanding on my part, of what the future looks like. However was seen by registrar instead who ordered further
Hi all, finally seen in rheumatology clinic yesterday but no further forward.. The consultant there is well known for expertise in lupus so I was holding out hope for some answers or a greater understanding on my part, of what the future looks like. However was seen by registrar instead who ordered further
Westgirl
in
LUPUS UK
8 years ago
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