Continuing the result of my letter to the doc.Although I did have a win I am still battering the door down. His answer to the question of the 3 doses a week etc he said because I had not actually been diagnosed at this point with Pernicious aneamia Although the original result showed B12 of 132 and MCHC was also low I am not showing any problems with intrinsic factor although this is notoriously inaccurate that is as far as he has gone . I questioned the treatment of 3 injections a week 3rd occasion but he said BNF guidelines are for pernicious aneamia Is this how they are getting round under prescribing, I didn't take anything with me that said anything to the contrary ,but that when I went over the neurothapy symptoms and he agreed that something else was going on and he would refer me to neurology ,In effect passing the buck So although didn't get as far as I would like ,and there are obviously constraints here from someone, so I said that cos he hasn't ruled out PA ,I could still have it or something else? The letter I would recommend anyone to do ,because it means the doc is ready to have the consultation with you ,giving his reasons and I was able to put the full story Cos let's face it you forget half of what you want to say Hoping cos bin referred they will get to the bottom of it I believe that was the right thing for me . He told me to only see him ,you know the saying softly,softly catchee monkey He on board, and no point putting his back up ,because I could have walked out with nothing, this way I made some progress and he is treating my symptoms seriously.ready for the next chapter. What a disgraceful position for our nhs to be in but knew it would be a fight cause of past with hubby being bipolar Ah well 💉🌡💉🌡💉🌡
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