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Why is this? Sleep related.
Since starting my three loading doses in September my biggest problem has been insomnia and it has been a real struggle. I'm now waiting for the three monthly maintenance dose at the end of January and in sheer desperation I started taking oral B 12 supplements ten days ago. To my astonishment my
Since starting my three loading doses in September my biggest problem has been insomnia and it has been a real struggle. I'm now waiting for the three monthly maintenance dose at the end of January and in sheer desperation I started taking oral B 12 supplements ten days ago. To my astonishment my
firee
in
Pernicious Anaemia Society
4 years ago
B12 deficiency light
Hi all. I have had pernicious anaemia for many years and like many people here, I have struggled with the frequency of injections. To begin with 12 weeks seemed OK, but over the years this was failing to last. My GP put it down to 10 weeks which helped but I was still struggling towards the end so I
Hi all. I have had pernicious anaemia for many years and like many people here, I have struggled with the frequency of injections. To begin with 12 weeks seemed OK, but over the years this was failing to last. My GP put it down to 10 weeks which helped but I was still struggling towards the end so I
Beanydog
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor test
Hey guys, I am getting the intrinsic factor test tomorrow which my doctor highlighted as an unreliable test but managed to convince him to let me have it regardless ! Anyway, I have taken a single b12 supplement yesterday evening. This is probably a dumb question, but will this impact the test? Thank
Hey guys, I am getting the intrinsic factor test tomorrow which my doctor highlighted as an unreliable test but managed to convince him to let me have it regardless ! Anyway, I have taken a single b12 supplement yesterday evening. This is probably a dumb question, but will this impact the test? Thank
Job387
in
Pernicious Anaemia Society
4 years ago
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Help convincing doctor to trial b12 injections
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Muddywinter1
in
Pernicious Anaemia Society
4 years ago
Advice please
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body can’t make the b12 I need then I usually get asked why’s that or how does that work and I really struggle to answer,I’m not completely thick I just don’t feel
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body can’t make the b12 I need then I usually get asked why’s that or how does that work and I really struggle to answer,I’m not completely thick I just don’t feel
Hidden
in
Pernicious Anaemia Society
4 years ago
B12 levels pa
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If I’m not absorbing from foods which isn’t to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If I’m not absorbing from foods which isn’t to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
Milley2
in
Pernicious Anaemia Society
4 years ago
Just wondering if this process sounds familiar?
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
BJC1980
in
NRAS
4 years ago
How long before symptoms return
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
wendyhoney
in
Pernicious Anaemia Society
4 years ago
B12 supplements with intrinsic factor
Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gp’s to find
Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gp’s to find
Samsungtracy
in
Pernicious Anaemia Society
4 years ago
IF test
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
BluebellPettle
in
Pernicious Anaemia Society
4 years ago
Hello long time no post!
Hello I first posted a few years back and with your help came to the conclusion that I was low in b12. Things Have moved on! But for context I continued to query my b12 with doctors, to no avail. I feel pregnant Oct 2018, again asked for my b12 to checked early in my pregnancy. It was ‘normal’
Hello I first posted a few years back and with your help came to the conclusion that I was low in b12. Things Have moved on! But for context I continued to query my b12 with doctors, to no avail. I feel pregnant Oct 2018, again asked for my b12 to checked early in my pregnancy. It was ‘normal’
BluebellPettle
in
Pernicious Anaemia Society
4 years ago
Oral b12 or injections
Diagnosed with low b12(130) had loading injections, not heard from gp since. I started self injecting hydroxycobalamin but continued feeling rubbish and have been waiting for neuro results due to weakness strange sensations etc . I don’t think anything has come up in those investigations so am left with
Diagnosed with low b12(130) had loading injections, not heard from gp since. I started self injecting hydroxycobalamin but continued feeling rubbish and have been waiting for neuro results due to weakness strange sensations etc . I don’t think anything has come up in those investigations so am left with
Mag999
in
Pernicious Anaemia Society
4 years ago
BAT, dutasteride, and my search for truth, Part 2 of 2
I believe it was Patrick who said “When 5alpha-reductase acts on T to produce DHT, this kicks off production of an enzyme to clear DHT from the cell. DHT has a very narrow window in which to promote growth. One of the metabolites of DHT is an estrogen - 3beta-adiol - which happens to be the natural
I believe it was Patrick who said “When 5alpha-reductase acts on T to produce DHT, this kicks off production of an enzyme to clear DHT from the cell. DHT has a very narrow window in which to promote growth. One of the metabolites of DHT is an estrogen - 3beta-adiol - which happens to be the natural
cigafred
in
Advanced Prostate Cancer
4 years ago
I’m not getting better :( advice??
Hi, New here.. Hoping to get some info on how long after loading doses before I should start to feel better I’m 23 years old and have always been very active (running, at the gym all the time). For the last few years I would say I’ve had a generalised level of fatigue (often having naps), but nothing
Hi, New here.. Hoping to get some info on how long after loading doses before I should start to feel better I’m 23 years old and have always been very active (running, at the gym all the time). For the last few years I would say I’ve had a generalised level of fatigue (often having naps), but nothing
Runnerblue7
in
Pernicious Anaemia Society
4 years ago
Feels like I’m on life’s roundabout again.
I’ve been plodding away in the background trying my best to get answers without going down too many invasive routes as it terrorises me.Everything bad for me started with a severe head jury after one of my many falls and sheer neglect with my injuries and no Investgations as to why it had happened in
I’ve been plodding away in the background trying my best to get answers without going down too many invasive routes as it terrorises me.Everything bad for me started with a severe head jury after one of my many falls and sheer neglect with my injuries and no Investgations as to why it had happened in
Hidden
in
Pernicious Anaemia Society
4 years ago
Haptocorrin and B12 Absorption
I've pasted below an excerpt from a paper which described how low vitamin D levels can cause insomnia. It also discussed why low vitamin D can lead to B12 deficiency. During my many, many hours of online research I've never read anything about this, has anyone else? Why vitamin D deficiency can lead
I've pasted below an excerpt from a paper which described how low vitamin D levels can cause insomnia. It also discussed why low vitamin D can lead to B12 deficiency. During my many, many hours of online research I've never read anything about this, has anyone else? Why vitamin D deficiency can lead
MoKayD
in
Pernicious Anaemia Society
4 years ago
B12 serum level of 52
Hi I’m new here and just looking for advice. 12 years ago I was diagnosed with b12 deficiency with a level of 52 ng/l. At the time my symptoms were brain fog, fatigue, poor memory. My doctor said the b12 wasn’t causing my symptoms because I wasn’t anemic. He said I didn’t need injections and gave me
Hi I’m new here and just looking for advice. 12 years ago I was diagnosed with b12 deficiency with a level of 52 ng/l. At the time my symptoms were brain fog, fatigue, poor memory. My doctor said the b12 wasn’t causing my symptoms because I wasn’t anemic. He said I didn’t need injections and gave me
Inkworks
in
Pernicious Anaemia Society
4 years ago
Waiting to get blood tests
Hi I am new here, this is my first post. Just wanting some advice on the symptoms I have and whether they are related to RA. Been suffering sometime now with severe lower back ache, my thighs are numb most of the time, my both legs feel like lead,and my calves feel like an elastic band around them, (
Hi I am new here, this is my first post. Just wanting some advice on the symptoms I have and whether they are related to RA. Been suffering sometime now with severe lower back ache, my thighs are numb most of the time, my both legs feel like lead,and my calves feel like an elastic band around them, (
shally12
in
NRAS
4 years ago
PA effecting work and need advice on how to approach my employer. Don’t know what I’m entitled to..please help!
Hi, I have PA due to lack of intrinsic factor. I’m really struggling at the minute with basic tasks, like writing a sentence. I tend to miss a odd word out and I completely forget how to spell, even simple words. The brain fog is unreal! I had a embarrassing moment at work the other day and it’s really
Hi, I have PA due to lack of intrinsic factor. I’m really struggling at the minute with basic tasks, like writing a sentence. I tend to miss a odd word out and I completely forget how to spell, even simple words. The brain fog is unreal! I had a embarrassing moment at work the other day and it’s really
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
Positive for PA
Hello all, I had a positive result for the intrinsic factor test and my GP wants me to go back and get B12 and Iron Folate levels checked. I will refuse a b12 test as they know from before that it was low and I'm self treating with injections at the moment. Ive read in the PAS notes that taking suppliments
Hello all, I had a positive result for the intrinsic factor test and my GP wants me to go back and get B12 and Iron Folate levels checked. I will refuse a b12 test as they know from before that it was low and I'm self treating with injections at the moment. Ive read in the PAS notes that taking suppliments
Luac
in
Pernicious Anaemia Society
4 years ago
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