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Finally, some good news! Pegasys and Phlebotomies are working!
PV JAK2+ diagnosed in Jan 2020 after suffering a TIA. Doc put me on twice daily baby aspirin, and Pegasys at only 25% dose (25ml/45mcg). After 8 weeks, my platelets are back under 400 and alongside the monthly phlebotomies, my Hct is now below 45%. Not much to notice in side-effects either - just some
PV JAK2+ diagnosed in Jan 2020 after suffering a TIA. Doc put me on twice daily baby aspirin, and Pegasys at only 25% dose (25ml/45mcg). After 8 weeks, my platelets are back under 400 and alongside the monthly phlebotomies, my Hct is now below 45%. Not much to notice in side-effects either - just some
JT_Marlin
in
MPN Voice
4 years ago
A few questions about post concussion syndrome
Nearly 6 months from a car accident and 3 months on from being diagnosed with Post Concussion Syndrome my main symptoms are headaches / migraines, fatigue and photophobia. I am wondering about a few things that maybe you can help with: GP has referred me for MRI has anyone had one, is there any point
Nearly 6 months from a car accident and 3 months on from being diagnosed with Post Concussion Syndrome my main symptoms are headaches / migraines, fatigue and photophobia. I am wondering about a few things that maybe you can help with: GP has referred me for MRI has anyone had one, is there any point
Antique-white
in
Headway
4 years ago
A bad night, a morning run and how running brings a little magic in to our lives! ✨🙂
I posted this on the 'Bridge to 10k' forum after my run yesterday but thought it would be good to post it here as well - just to show that we can all struggle with getting out the door sometimes, even those of us who graduated several years ago...! I know many of us get these little blips - especially
I posted this on the 'Bridge to 10k' forum after my run yesterday but thought it would be good to post it here as well - just to show that we can all struggle with getting out the door sometimes, even those of us who graduated several years ago...! I know many of us get these little blips - especially
Sandraj39
Graduate
in
Couch to 5K
4 years ago
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New to the group and looking for advice
Hi My son was 5 in March and we have been dealing with issues since he was 6 months old. Hes always had issues with going to the toilet and would prefer to stand to go instead of sitting down. Hes been prescribed both Movicol and Laxido in the past and both resulted in him having accidents all day every
Hi My son was 5 in March and we have been dealing with issues since he was 6 months old. Hes always had issues with going to the toilet and would prefer to stand to go instead of sitting down. Hes been prescribed both Movicol and Laxido in the past and both resulted in him having accidents all day every
daniellejarrett2017
in
ERIC
4 years ago
New here: prolapsed rectum and straining to do soft poos??
Sorry for long post and lots of poo details! My son suddenly started wetting the bed nearly every night a few weeks ago (he's nearly 7). He's had a few wet nights in the past but we'd never worried about it before. No UTI, so we started with an alarm. Then we realised he had been/was having soiling
Sorry for long post and lots of poo details! My son suddenly started wetting the bed nearly every night a few weeks ago (he's nearly 7). He's had a few wet nights in the past but we'd never worried about it before. No UTI, so we started with an alarm. Then we realised he had been/was having soiling
aliums26
in
ERIC
4 years ago
Minoxidil 5% ED, Dizziness, Headache, Testicle pain
Hi, I am 24 yo, no medical conditions and had been using Minoxidil 5% for 1.5months(50 ml used in total), after this period I suddently started to have headaches, dizziness, zero libido and ED. I stopped using after the first symptoms and now is the second week without minox, but it is still pretty bad
Hi, I am 24 yo, no medical conditions and had been using Minoxidil 5% for 1.5months(50 ml used in total), after this period I suddently started to have headaches, dizziness, zero libido and ED. I stopped using after the first symptoms and now is the second week without minox, but it is still pretty bad
Megagp
in
Men's Health Forum
4 years ago
My Dad Tracheostomy failed again
What was a good day yesterday where we managed to get smile and a kiss for the kids. Today his was agitated and uncomfortable and he managed to pull his feeding tube and the trach was leaking, he back in the ventilator and in light sedation. Tomorrow they hope to review it and may redo the Tracheostomy
What was a good day yesterday where we managed to get smile and a kiss for the kids. Today his was agitated and uncomfortable and he managed to pull his feeding tube and the trach was leaking, he back in the ventilator and in light sedation. Tomorrow they hope to review it and may redo the Tracheostomy
avnipiro
in
ICUsteps
4 years ago
Don't be afraid to go to A &E
I know a lot of us are afraid or nervous to go to A &E at the moment if our asthma flares up badly. I was a bit apprehensive to go myself last Monday night. This is my story of what happen to me. Last Monday night my neighbour( know for his big bonfires on Bonfire night) set alight a big bonfire just
I know a lot of us are afraid or nervous to go to A &E at the moment if our asthma flares up badly. I was a bit apprehensive to go myself last Monday night. This is my story of what happen to me. Last Monday night my neighbour( know for his big bonfires on Bonfire night) set alight a big bonfire just
elanaoali
in
Asthma Community Forum
4 years ago
Thank you to everyone, time out has given me a chance to reflect
Hi All Firstly, thank you to everyone who kindly messaged me when I said I needed time out. I have had a chance to do some reflecting. In truth, I have not been in the best of places despite me trying to convince myself that I am okay. To summarise, I have a very complex gynaecological history involving
Hi All Firstly, thank you to everyone who kindly messaged me when I said I needed time out. I have had a chance to do some reflecting. In truth, I have not been in the best of places despite me trying to convince myself that I am okay. To summarise, I have a very complex gynaecological history involving
Positive2022
in
Pregnancy and Parenting Support
4 years ago
Food parcels
Good morning. I have registered with the Government website and they have given my name to the supermarkets and so ASDA have now given me a regular weekly home delivery slot. Great. However, the government site must link into these weekly food parcels that DEFRA are doing and so today I've had a box
Good morning. I have registered with the Government website and they have given my name to the supermarkets and so ASDA have now given me a regular weekly home delivery slot. Great. However, the government site must link into these weekly food parcels that DEFRA are doing and so today I've had a box
GinnyE
in
NRAS
4 years ago
Memory Lane Jar
I just wanted to share this wonderful idea! My daughter presented a "Memory Jar" to my Mom yesterday; I have to say it was an absolute home run! All of the grandchildren wrote 10 individual memories to share with Mom, and they were written on colored scrolls, wrapped with a ribbon and placed in the
I just wanted to share this wonderful idea! My daughter presented a "Memory Jar" to my Mom yesterday; I have to say it was an absolute home run! All of the grandchildren wrote 10 individual memories to share with Mom, and they were written on colored scrolls, wrapped with a ribbon and placed in the
bazooka111
in
PSP Association
4 years ago
I really need help from experts in brain injuries and language problems
So this is what happened to me, for some weird reason when I was 15 years old I lost the abilities to understand a lot of things like books, videos, movies etc., it's not that I don't understand what's happening, but that I don't understand the language, I have to say that I didn't lose the ability to
So this is what happened to me, for some weird reason when I was 15 years old I lost the abilities to understand a lot of things like books, videos, movies etc., it's not that I don't understand what's happening, but that I don't understand the language, I have to say that I didn't lose the ability to
sudokoolpro
in
Headway
4 years ago
Post-concussion syndrome and TBI
Hi all, I wondered if someone might be able to help me, I experienced a small bleed on the brain last July and have been struggling with fatigue ever since. Looking on this forum I've come across posts about post-concussion syndrome and have been left wondering whether this is something I am experiencing
Hi all, I wondered if someone might be able to help me, I experienced a small bleed on the brain last July and have been struggling with fatigue ever since. Looking on this forum I've come across posts about post-concussion syndrome and have been left wondering whether this is something I am experiencing
FWASHO
in
Headway
4 years ago
Pleurx catheter?
I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I am not sure if I am a candidate for a pleurx catheter as it seems the fluid buildup in my lungs is slow, at least for the time being. I noticed that the fluid build up rapidly increases every third treatment after I have
I had a pleurodesis just under 3 months ago. It hasn't worked as I had hoped. I am not sure if I am a candidate for a pleurx catheter as it seems the fluid buildup in my lungs is slow, at least for the time being. I noticed that the fluid build up rapidly increases every third treatment after I have
Natsmb
in
My Ovacome
4 years ago
Emotional caregiver
It really gets so so hard sometimes. Its the 4th day after mum’s 3rd chemo, she hasnt eaten anything, she isnt even talking much. I dont know how she is feeling but i know she is hurting & she cant tell me coz oh in her eyes i am still her little girl & it breaks her heart that she cant be the one to
It really gets so so hard sometimes. Its the 4th day after mum’s 3rd chemo, she hasnt eaten anything, she isnt even talking much. I dont know how she is feeling but i know she is hurting & she cant tell me coz oh in her eyes i am still her little girl & it breaks her heart that she cant be the one to
Irene2020
in
My Ovacome
4 years ago
Nearly 9, bedwetting
Hi, my son has struggled with bed wetting on and off since he was 6. At this stage, his grandad died and he moved schools. Since then he's regularly wet the bed. Since lockdown, he has been better and had a few weeks dry, but this week he's been wet 5 nights in a row. Any suggestions? He's never had
Hi, my son has struggled with bed wetting on and off since he was 6. At this stage, his grandad died and he moved schools. Since then he's regularly wet the bed. Since lockdown, he has been better and had a few weeks dry, but this week he's been wet 5 nights in a row. Any suggestions? He's never had
Samson2020
in
ERIC
4 years ago
Tinnitus and Anxiety
Is it common to have Tinnitus after stopping Anti Anxiety Meds? I quit cold turkey, Pristiq 50MG after taking it for a year. It’s been 16 months and I feel my neurochemical balance is not the same as before. Never had anxiety before but now I do and also constant ringing in the ears. Please share your
Is it common to have Tinnitus after stopping Anti Anxiety Meds? I quit cold turkey, Pristiq 50MG after taking it for a year. It’s been 16 months and I feel my neurochemical balance is not the same as before. Never had anxiety before but now I do and also constant ringing in the ears. Please share your
Siddjani87
in
Anxiety Support
4 years ago
Scan
I had some bleeding on the morning of my 6 week scan. At the scan the fetal heart rate was 96bpm which the doctor said should have been over 100bpm. Obviously all of this has made me really fearful. Have another scan on Monday when I will be 7 weeks 3 days. I am trying to stay positive but finding it
I had some bleeding on the morning of my 6 week scan. At the scan the fetal heart rate was 96bpm which the doctor said should have been over 100bpm. Obviously all of this has made me really fearful. Have another scan on Monday when I will be 7 weeks 3 days. I am trying to stay positive but finding it
Hidden
in
Fertility Network UK
4 years ago
Tracheostomy
My husband is still sedated and on the tracheostomy. His oxygen level is still 35% and he requires the ventilator. It has been 5 weeks now since he is in icu and no progress and I am worried.
My husband is still sedated and on the tracheostomy. His oxygen level is still 35% and he requires the ventilator. It has been 5 weeks now since he is in icu and no progress and I am worried.
Rgsable
in
ICUsteps
4 years ago
update on Dad
Dad still sedated, had Tracheostomy last week Wednesday, they have lowered his sedation managed to open his eyes a few times and they have started to wean him of but today he seemed to tired so they stop weaning him today. They also found his left arm weaker and keeping an eye on it.
Dad still sedated, had Tracheostomy last week Wednesday, they have lowered his sedation managed to open his eyes a few times and they have started to wean him of but today he seemed to tired so they stop weaning him today. They also found his left arm weaker and keeping an eye on it.
avnipiro
in
ICUsteps
4 years ago
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