Post-concussion syndrome and TBI

[FWASHO]

Hi all, I wondered if someone might be able to help me, I experienced a small bleed on the brain last July and have been struggling with fatigue ever since. Looking on this forum I've come across posts about post-concussion syndrome and have been left wondering whether this is something I am experiencing, on top of my TBI.

I often wake feeling nauseous, which is alleviated once I get up and out of bed. I get headaches routinely throughout the day. I am very sensitive to loud noises and avoid places like this as I quickly feel overwhelmed. I can also hear my heart beat in my ears when I rest my head at night (some form of tinnitus I assume).

It might be difficult to say as I assume the TBI and post-concussion have very overlapping symptoms but I was just curious if anyone had any ideas. I will talk to my neurology team, it's just difficult at the moment with everything going on.

Thanks!!

[cat3]

It IS frustrating right now for those of us struggling with health issues when most NHS staff are preoccupied with the challenge of their lives.

I was surprised last night hearing a senior health spokesman echoing my thoughts about countless casualties (unrelated to Covid) resulting from lack of access to vital treatments. He foresees deaths from cardiac issues, cancer and other neglected critical conditions outnumbering the Covid...

I've had several long-awaited appointments cancelled, the main one for pain relief procedures but, seeing how NHS staff have neither the numbers nor the equipment to keep up, I know it's unavoidable that I'll be waiting for another several months, at least.

But I still believe you're in the early stages of recovery at 9 months, and all your symptoms are classic, whether from the concussion, the bleed or a combination. Some after-effects will reduce whilst others will need many more months of acceptance and management. Hang in there m'dear ; these are strange, unprecedented times and things can surely only get better for us all !

Cat x

[sospan]

Hi,

What you have are all common side effects of a head injury. One of the most frustrating things is that symptoms seem to appear many months after the injury. However, what is happening is that as some symptoms subside the other symptoms which were there all the time become more noticeable.

The same with activity, in the early stages, people were quite limited with what they could do - get up, go to the toilet, eat, sleep etc. Once you start doing things, then you realise the things you can't do or can't remember how to do. All perfectly normal.

Annoyingly / frustrating/ any other word you choose, there isn't much they do apart from managing any potential future bleed.

Time is the best healer, my tinnitus took about 5 years to subside, some things sooner, some things persist today. It is just how it is.

The best thing is to try and cope with the symptoms as best you can and wait for nature to resolve as best it can.