Hello and thank you for allowing me to join. I was diagnosed with MF on the 21st of May this year so I am still in the early stages of it sinking in!
I am 53 (tomorrow) and came across diagnosis by accident. I went to my doctors in February experiencing stomach pains and vomiting along with chest wind pains. I was given blood tests and sent off for an ultrasound. The ultrasound confirmed gallstones but my bloods along with showing infection had a high platelet count of 872. I thought nothing of the platelets and was referred to a surgeon for gallbladder removal. Whilst waiting for the surgeons appointment I received a letter to attend a haematologist appointment at Worcester hospital. At this point I became a little concerned and started googling high platelets causes and read then about MPN. Some of the symptoms I have had over the last few years became apparent that something was amiss! I saw the haemo understudy and suggested that the platelets were probably caused by my gallbladder issues. The results of my bloods tests for mutation had not returned and she made an appointment for me for 6 weeks later.
I guess at that point I was a little concerned.
A few days later an appointment came for a bone marrow biopsy and then I was very concerned!
I joined Facebook MPN groups and decided pretty much that if anything I had ET and thought that an aspirin a day would keep me going for years to come.
I saw the main haemo at the next appointment and could have fallen off the chair when he told me I had MF. I had not considered this as an option. It has taken a while to sink in and I have a follow up appointment this morning to discuss treatment plan. I will of course let you know how this goes.