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Is this possibly GCA again?
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
pamela4215
in
PMRGCAuk
2 years ago
Pred sick day rules.
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
PastelsinArt
in
PMRGCAuk
2 years ago
Hysterectomy and ovary removal plus excision of endometriosis- recovery tips please!!!
Hello all ❤ I had my surgery on Thursday. Does anyone have any advice to help me recover fully and well? (I'm already using estrogen patches and gel so I don't get a hormone deficiency). Endo was in uterus, ovaries and pelvis, plus on bowel. It's been a huge 23 slog, taking 20 years to get an endo diagnosis
Hello all ❤ I had my surgery on Thursday. Does anyone have any advice to help me recover fully and well? (I'm already using estrogen patches and gel so I don't get a hormone deficiency). Endo was in uterus, ovaries and pelvis, plus on bowel. It's been a huge 23 slog, taking 20 years to get an endo diagnosis
Smiles-are-free
in
Endometriosis UK
3 years ago
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JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
Suzita76
in
PMRGCAuk
2 years ago
Hello from a new member, just starting Ibrance
To introduce myself. I’m 50 years old and only got diagnosed in May this year. Having my overdue mammogram, I went from zero to being told I have stage four metastatic breast cancer that has spread to my ribs, breast bone, shoulder blades, spine, skull and pelvis. The good news is that it’s just in my
To introduce myself. I’m 50 years old and only got diagnosed in May this year. Having my overdue mammogram, I went from zero to being told I have stage four metastatic breast cancer that has spread to my ribs, breast bone, shoulder blades, spine, skull and pelvis. The good news is that it’s just in my
Discocat
in
SHARE Metastatic Breast Cancer
3 years ago
PSA after RP and radiotherapy during ADT.
I wish everyone a Merry Christmas. pt3bN1M0, 3 positive lymph nodes. Gleason 4 + 3 and 3 + 4. RP i LYMPHADENECTOMY in December 2021. 5 weeks after PSA surgery 1.18. He was at PSMA PET SCAN. Positive 3 lymph nodes detected. At the end of January, he received hormone therapy Resiglo. In March PSA fell
I wish everyone a Merry Christmas. pt3bN1M0, 3 positive lymph nodes. Gleason 4 + 3 and 3 + 4. RP i LYMPHADENECTOMY in December 2021. 5 weeks after PSA surgery 1.18. He was at PSMA PET SCAN. Positive 3 lymph nodes detected. At the end of January, he received hormone therapy Resiglo. In March PSA fell
adam1967adam
in
Advanced Prostate Cancer
3 years ago
After hysterectomy and surgical menopause
Having had a full hysterectomy and coming of hrt and having injections every three months postrap I think endo is back nearly 20 years later(has been going on for at least ten years) So after seeing a colorectal surgeon and a cat scan she said she can see some diverticular,I am not medically
Having had a full hysterectomy and coming of hrt and having injections every three months postrap I think endo is back nearly 20 years later(has been going on for at least ten years) So after seeing a colorectal surgeon and a cat scan she said she can see some diverticular,I am not medically
Shazmo
in
Endometriosis UK
3 years ago
Here goes! Please read.
Im nervous and a bit scared. I had an ultrasound of right upper quadrant and an ultrasound with elastrography. I have NASH and PBC an autoimmune of the livers bile duct. The regular ultrasound says Study Result Impression 1. Cirrhotic liver. No suspicious masses identified 2. No significant change
Im nervous and a bit scared. I had an ultrasound of right upper quadrant and an ultrasound with elastrography. I have NASH and PBC an autoimmune of the livers bile duct. The regular ultrasound says Study Result Impression 1. Cirrhotic liver. No suspicious masses identified 2. No significant change
Ilovejoe
in
Living with Fatty Liver and NASH
3 years ago
Skin Tag / Polyp Removal - Eggs Collected Today
Hi I had my eggs collected today. Feeling a bit tender! I’m 40 with 7.7 AMH and they collected 7 eggs so I am happy with that. They wanted to check a skin tag and today referred me to have it removed. (My embryos will be frozen) Waiting on updates to know grade & how many with be frozen. Question
Hi I had my eggs collected today. Feeling a bit tender! I’m 40 with 7.7 AMH and they collected 7 eggs so I am happy with that. They wanted to check a skin tag and today referred me to have it removed. (My embryos will be frozen) Waiting on updates to know grade & how many with be frozen. Question
LolaMax
in
Fertility Network UK
3 years ago
Hernia Repair
Debulking & Hernia Repair: Has anyone had a debulking surgery followed by hernia repair all in the same surgery? Or just a large hernia repair? Can you share your experience? Any experience with hernia repair that requires a 3 mesh layered approach? Thank you for your help.
Debulking & Hernia Repair: Has anyone had a debulking surgery followed by hernia repair all in the same surgery? Or just a large hernia repair? Can you share your experience? Any experience with hernia repair that requires a 3 mesh layered approach? Thank you for your help.
Luci22
in
OvaCare
3 years ago
Cyberknife, rising PSA
Just completed a five day Cyberknife radiation 9/30 for a PSMA identified tumor outside previous numerous Prostate treatments ( surgery, lymph node removal, radiation) . PSA prior to treatment was 1.77, now three months after Cyberknife SBRT, PSA risen to 2.33. No pain, just noticed three larger red
Just completed a five day Cyberknife radiation 9/30 for a PSMA identified tumor outside previous numerous Prostate treatments ( surgery, lymph node removal, radiation) . PSA prior to treatment was 1.77, now three months after Cyberknife SBRT, PSA risen to 2.33. No pain, just noticed three larger red
Lousantoro
in
Advanced Prostate Cancer
3 years ago
18 months post lap cholecystectomy pain
Hi folks. I had a lap chole 18 months ago, after waiting 2 years. I had one large stones and several much smaller ones. All was well for a few months then this time last year I started to feel pain on right side in gallbladder region. I have had US which was NAD, CT, also NAD. Several lft's since show
Hi folks. I had a lap chole 18 months ago, after waiting 2 years. I had one large stones and several much smaller ones. All was well for a few months then this time last year I started to feel pain on right side in gallbladder region. I have had US which was NAD, CT, also NAD. Several lft's since show
Suffolkskies
in
British Liver Trust
3 years ago
What is next after chemotherapy treatment
Hi All I am 45 years old and in July this year I was diagnosed with Stage IIC high grade serous tubo-ovarian cancer. My cancer was found in my left Fallopian tube and I had a 16cm cyst on my right ovary which was cancerous. My operation consisted of a Laparotomy with bilateral salpingo-ophorectomy,
Hi All I am 45 years old and in July this year I was diagnosed with Stage IIC high grade serous tubo-ovarian cancer. My cancer was found in my left Fallopian tube and I had a 16cm cyst on my right ovary which was cancerous. My operation consisted of a Laparotomy with bilateral salpingo-ophorectomy,
Buddyk21
in
My Ovacome
3 years ago
WHAT is even bleeding?
I'm so, I don't even know, frustrated, scared, both? I'm stable on Lymparza. Status is one known tiny tumor in right lower quadrant and one also tiny questionable mediastinum. Each one <1cm in May 2021 CT. Primary occurrence 2019 with "optimal" debulking. I already had a complete hysterectomy in 2008
I'm so, I don't even know, frustrated, scared, both? I'm stable on Lymparza. Status is one known tiny tumor in right lower quadrant and one also tiny questionable mediastinum. Each one <1cm in May 2021 CT. Primary occurrence 2019 with "optimal" debulking. I already had a complete hysterectomy in 2008
TxEm
in
My Ovacome
3 years ago
Removal of greater number of lymph nodes during RP associated with better survival
Removal of greater numbers of lymph nodes during radical prostatectomy for intermediate- and high-risk prostate cancer is associated with improved survival, according to data presented at the 22nd annual meeting of the Society of Urologic Oncology. In a propensity score analysis, removal of 10 to 19
Removal of greater numbers of lymph nodes during radical prostatectomy for intermediate- and high-risk prostate cancer is associated with improved survival, according to data presented at the 22nd annual meeting of the Society of Urologic Oncology. In a propensity score analysis, removal of 10 to 19
Graham49
in
Advanced Prostate Cancer
3 years ago
Debulking & Hernia Repair experiences?
Debulking & Hernia Repair: Has anyone had a debulking surgery followed by hernia repair all in the same surgery? Can you share your experience if anyone has any? Furthermore, had anyone had the hernia repair that requires a 3 mesh layered approach? Thanking you all, 💕 Luci
Debulking & Hernia Repair: Has anyone had a debulking surgery followed by hernia repair all in the same surgery? Can you share your experience if anyone has any? Furthermore, had anyone had the hernia repair that requires a 3 mesh layered approach? Thanking you all, 💕 Luci
Luci22
in
My Ovacome
3 years ago
Back from surgery
Hi- I’ve had my lap today and removal of left ovary and cyst. Also a small cyst on right ovary which didn’t know was there but ovary has been left which is good as I wanted to avoid surgical menopause. There was no endo to excise which I’m grateful about. Consultant does think I have Adenomyosis
Hi- I’ve had my lap today and removal of left ovary and cyst. Also a small cyst on right ovary which didn’t know was there but ovary has been left which is good as I wanted to avoid surgical menopause. There was no endo to excise which I’m grateful about. Consultant does think I have Adenomyosis
Bigsize9foot
in
Endometriosis UK
3 years ago
Starting tocilizumab
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
Sharitone
in
PMRGCAuk
3 years ago
Join the Virus Watch project ( in the UK)
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Suzita76
in
PMRGCAuk
3 years ago
Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
Erikaknitssocks
in
PMRGCAuk
3 years ago
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