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Disassociated feeling
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
I'm currently on Tocilizumab for GCA under the direction of a specialist physician. I was on 20mg Pred when I started the Tocilizumab which I have injected every 2 weeks. I'm on my third week right now. I was instructed to reduce Pred 5mg every 2 weeks and reduce again 5mg 3 weeks , which is
redhouts
in
PMRGCAuk
2 years ago
Lower Abdominal pain and Tocilizumab
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
Tocilizumab side effects: The main thing I have noticed is a proneness to infection, like UTIs, sinus, nasal and Blepharitis. This will be because my immunity is so firmly suppressed what with Prednisalone and Tocilizumab. I was able to quickly get down from 40 mgs of Pred to 10 mgs without the usual
SheffieldJane
in
PMRGCAuk
2 years ago
New Member
Hi to all my fellow Warriors. I’m 71 and I’ve been treated for Stage 4 Metastatic BC for 11 months. 3 years before that I had stage 2B BC. I took Femara for 3 years with lots of side effects. Then I suffered horrible back pain. I walked with a cane. Couldn’t sleep. Since being diagnosed with Mets
Hi to all my fellow Warriors. I’m 71 and I’ve been treated for Stage 4 Metastatic BC for 11 months. 3 years before that I had stage 2B BC. I took Femara for 3 years with lots of side effects. Then I suffered horrible back pain. I walked with a cane. Couldn’t sleep. Since being diagnosed with Mets
Shafight
in
SHARE Metastatic Breast Cancer
2 years ago
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HRT Following hysterectomy
Hi, I’ve recently had total hysterectomy and oophorectomy with extensive excision of endo. I’ve started HRT (oestrogen gel & progesterone tablets) but I’m experiencing pain in my lower back and legs like I used to get with endo, has anybody else experienced this, and if so how did you manage it? The
Hi, I’ve recently had total hysterectomy and oophorectomy with extensive excision of endo. I’ve started HRT (oestrogen gel & progesterone tablets) but I’m experiencing pain in my lower back and legs like I used to get with endo, has anybody else experienced this, and if so how did you manage it? The
Minnie153
in
Endometriosis UK
2 years ago
Mirena coil moved
Hi all I have recently asked about experiences of the Mirena coil following ovary removal, bleeding etc. Consultant unable to find threads it has moved higher in my uterus. Radiographer said that I won’t be able to find threads. Awaiting doctors opinion for it to stay or go. Is there anyone that has
Hi all I have recently asked about experiences of the Mirena coil following ovary removal, bleeding etc. Consultant unable to find threads it has moved higher in my uterus. Radiographer said that I won’t be able to find threads. Awaiting doctors opinion for it to stay or go. Is there anyone that has
Chicken2012
in
Endometriosis UK
2 years ago
HRT and Ovarian Cancer
Hi everyone. I was diagnosed end of 2020. Stage 1c endometriod adenocarcinoma at the age of 41. I was told I wasn't allowed HRT and assumed they meant forever.. so I figured out ways to help my body get through the menopause. Now just over a year later I'm doing great. I'm waiting for my yearly ct
Hi everyone. I was diagnosed end of 2020. Stage 1c endometriod adenocarcinoma at the age of 41. I was told I wasn't allowed HRT and assumed they meant forever.. so I figured out ways to help my body get through the menopause. Now just over a year later I'm doing great. I'm waiting for my yearly ct
Nara42
in
My Ovacome
2 years ago
Lymph node removal
Recently had hernia repair and surgeon removed lymph node. Does removal cause lymphedema
Recently had hernia repair and surgeon removed lymph node. Does removal cause lymphedema
Mackiec1108
in
CLL Support
2 years ago
Hello,I am going to have gallbladder removal surgery and am wondering what would be safe options to have for the clear liquid diet post op?
Diet surgery
Diet surgery
Tuckers
in
Living with Fatty Liver and NASH
2 years ago
Scared
I've posted in here a couple of times, but here's my story. I got admitted to the hospital in March of 2021 for gallbladder removal. My liver enzymes were very high. I was sent for an URQ ultrasound before surgery. This showed "The liver is hyperechoic and coarsened and echogenic texture". My surgeon
I've posted in here a couple of times, but here's my story. I got admitted to the hospital in March of 2021 for gallbladder removal. My liver enzymes were very high. I was sent for an URQ ultrasound before surgery. This showed "The liver is hyperechoic and coarsened and echogenic texture". My surgeon
emarie96
in
Living with Fatty Liver and NASH
2 years ago
Liver function tests with Tocilizumab.
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
SheffieldJane
in
PMRGCAuk
2 years ago
Newly diagnosed hubby feeling lost
Hi Everyone I am new to your group so please be kind it is not me who as a liver problems it is new Hubby married 7th August 2021 and I fear that I may lose my soulmate, he’s as had lots of health problems including a very scary time in the ICU blood clots on both his lungs and pneumonia but that was
Hi Everyone I am new to your group so please be kind it is not me who as a liver problems it is new Hubby married 7th August 2021 and I fear that I may lose my soulmate, he’s as had lots of health problems including a very scary time in the ICU blood clots on both his lungs and pneumonia but that was
Dobielove
in
British Liver Trust
2 years ago
Hiatus Hernia
Hi all I am trying to 'join the dots' regarding my failing health and would appreciate any useful input. it's a bit of a saga - please bear with me. The last 15 months have been challenging, scary and at times plain ugly for this formerly active 61 yr old. Subsequent to heart ablation last July (see
Hi all I am trying to 'join the dots' regarding my failing health and would appreciate any useful input. it's a bit of a saga - please bear with me. The last 15 months have been challenging, scary and at times plain ugly for this formerly active 61 yr old. Subsequent to heart ablation last July (see
southofthedowns
in
Oesophageal & Gastric Cancer
3 years ago
Can I quote you?
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
LemonZest11
in
PMRGCAuk
2 years ago
DE Embryo FET - 2nd failed :(
Just looking for a bit of solidarity and advice. Our 1st DE embryo transfer ended in a MMC in October discovered at our viability scan. It was a 5AA embryo which stopped growing around 5.5 weeks. It was utterly devastating. We have just had a BFN from our 2nd DE embryo transfer. It was a 4AB embryo
Just looking for a bit of solidarity and advice. Our 1st DE embryo transfer ended in a MMC in October discovered at our viability scan. It was a 5AA embryo which stopped growing around 5.5 weeks. It was utterly devastating. We have just had a BFN from our 2nd DE embryo transfer. It was a 4AB embryo
JenRoy
in
Fertility Network UK
3 years ago
Is this possibly GCA again?
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
pamela4215
in
PMRGCAuk
2 years ago
Pred sick day rules.
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
PastelsinArt
in
PMRGCAuk
2 years ago
Hysterectomy and ovary removal plus excision of endometriosis- recovery tips please!!!
Hello all ❤ I had my surgery on Thursday. Does anyone have any advice to help me recover fully and well? (I'm already using estrogen patches and gel so I don't get a hormone deficiency). Endo was in uterus, ovaries and pelvis, plus on bowel. It's been a huge 23 slog, taking 20 years to get an endo diagnosis
Hello all ❤ I had my surgery on Thursday. Does anyone have any advice to help me recover fully and well? (I'm already using estrogen patches and gel so I don't get a hormone deficiency). Endo was in uterus, ovaries and pelvis, plus on bowel. It's been a huge 23 slog, taking 20 years to get an endo diagnosis
Smiles-are-free
in
Endometriosis UK
3 years ago
Hello from a new member, just starting Ibrance
To introduce myself. I’m 50 years old and only got diagnosed in May this year. Having my overdue mammogram, I went from zero to being told I have stage four metastatic breast cancer that has spread to my ribs, breast bone, shoulder blades, spine, skull and pelvis. The good news is that it’s just in my
To introduce myself. I’m 50 years old and only got diagnosed in May this year. Having my overdue mammogram, I went from zero to being told I have stage four metastatic breast cancer that has spread to my ribs, breast bone, shoulder blades, spine, skull and pelvis. The good news is that it’s just in my
Discocat
in
SHARE Metastatic Breast Cancer
3 years ago
JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
Suzita76
in
PMRGCAuk
2 years ago
PSA after RP and radiotherapy during ADT.
I wish everyone a Merry Christmas. pt3bN1M0, 3 positive lymph nodes. Gleason 4 + 3 and 3 + 4. RP i LYMPHADENECTOMY in December 2021. 5 weeks after PSA surgery 1.18. He was at PSMA PET SCAN. Positive 3 lymph nodes detected. At the end of January, he received hormone therapy Resiglo. In March PSA fell
I wish everyone a Merry Christmas. pt3bN1M0, 3 positive lymph nodes. Gleason 4 + 3 and 3 + 4. RP i LYMPHADENECTOMY in December 2021. 5 weeks after PSA surgery 1.18. He was at PSMA PET SCAN. Positive 3 lymph nodes detected. At the end of January, he received hormone therapy Resiglo. In March PSA fell
adam1967adam
in
Advanced Prostate Cancer
3 years ago
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