Search
Search
About
Log in
Join
Experiences with
Factor Xa inhibitor
Posts
Communities
1,719 public posts
Filter results
Really need advice on self injecting
Hi, I really need advice as I self inject due to the fact that my GP thinks that one injection every 3 months is enough, and that I don't need it anymore as I didn't test positive for intrinsic factor antibody and my levels are okay. What I do know is that my symptoms recur (badly) when I have not had
Hi, I really need advice as I self inject due to the fact that my GP thinks that one injection every 3 months is enough, and that I don't need it anymore as I didn't test positive for intrinsic factor antibody and my levels are okay. What I do know is that my symptoms recur (badly) when I have not had
Hayley31
in
Pernicious Anaemia Society
7 years ago
I'm new here - and glad I'm probably not crazy afterall
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Tyler3
in
Hughes Syndrome APS Forum
7 years ago
Really don't know what to do about B12
Hi I was diagnosed in 2011 after years of symptoms getting progressively worse with no explanation. My B12 level was 154 and I felt horrible. I didn't test positive for intrinsic factor antibody, they found no cause for my B12 deficiency. I had loading doses (6 injections over 2 weeks) and felt SO much
Hi I was diagnosed in 2011 after years of symptoms getting progressively worse with no explanation. My B12 level was 154 and I felt horrible. I didn't test positive for intrinsic factor antibody, they found no cause for my B12 deficiency. I had loading doses (6 injections over 2 weeks) and felt SO much
Hayley31
in
Pernicious Anaemia Society
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
GP appointment
Hi so I saw the GP tonight as an emergency appointment. He was appalled to see how low my vitamins and minerals are and that my endo could reduce my levo from 150mcg and 2 quarters of T3 to just 25mcg levo. I have got a blood test booked for Friday morning for thyroid at 8:30am since I have passed the
Hi so I saw the GP tonight as an emergency appointment. He was appalled to see how low my vitamins and minerals are and that my endo could reduce my levo from 150mcg and 2 quarters of T3 to just 25mcg levo. I have got a blood test booked for Friday morning for thyroid at 8:30am since I have passed the
Ally29
in
Thyroid UK
7 years ago
Doctor withdrawing treatment
I have been receiving injections for the last year after finding out i was deficient in b12. I have them every 8 weeks at the advice of a private haematologist because I struggled to function on every 12 weeks. I tested negative for crohns and caeliac disease and tested negative for the intrinsic factor
I have been receiving injections for the last year after finding out i was deficient in b12. I have them every 8 weeks at the advice of a private haematologist because I struggled to function on every 12 weeks. I tested negative for crohns and caeliac disease and tested negative for the intrinsic factor
Katiea100
in
Pernicious Anaemia Society
7 years ago
Ace inhibitors and Hydroxy
Does anyone have experience of using ACE inhibitors alongside hydroxycarbamide and low dose aspirin? I have been taking Amlodipine to control blood pressure but it is losing its effectiveness and even doubling the dose doesn't stop the increase. I have been told that ACE inhibitors may be a better solution
Does anyone have experience of using ACE inhibitors alongside hydroxycarbamide and low dose aspirin? I have been taking Amlodipine to control blood pressure but it is losing its effectiveness and even doubling the dose doesn't stop the increase. I have been told that ACE inhibitors may be a better solution
Ovingite
in
MPN Voice
7 years ago
GP reluctant to give injections
Hi, I have been on regular b12 injections previously but when I moved to a different area of the country these were not continued. In the summer, feeling very tired and listless, I had a blood test in France and the b12 score was 112 so I supplemented with sub lingual b12. When I got back to the UK
Hi, I have been on regular b12 injections previously but when I moved to a different area of the country these were not continued. In the summer, feeling very tired and listless, I had a blood test in France and the b12 score was 112 so I supplemented with sub lingual b12. When I got back to the UK
carolen
in
Pernicious Anaemia Society
7 years ago
Hi everyone I'm new here, from NZ with ET JAK2+ plus low Von Willebrand Factor VIII
I live near Wellington, New Zealand (originally from the UK) and I was diagnosed with ET JAK2+ on 24 Nov 2017 after 3 months of waiting to find out, my GP only referred me in August when my platelets hit 780 and 620 (still 650 2 months ago and don't have latest result yet). Looking back through my blood
I live near Wellington, New Zealand (originally from the UK) and I was diagnosed with ET JAK2+ on 24 Nov 2017 after 3 months of waiting to find out, my GP only referred me in August when my platelets hit 780 and 620 (still 650 2 months ago and don't have latest result yet). Looking back through my blood
Wentry
in
MPN Voice
7 years ago
Lining issues.....again 😩
Hi Ladies, last month my fet was cancelled due to lining only getting to 5.3mm, this month progynova was added along with 2 patches a day. My clinic do around 14 days on oestrogen before starting cyclogest and transfer 5 days later. This month I've paid for accupuncture twice a week, been drinking 1/
Hi Ladies, last month my fet was cancelled due to lining only getting to 5.3mm, this month progynova was added along with 2 patches a day. My clinic do around 14 days on oestrogen before starting cyclogest and transfer 5 days later. This month I've paid for accupuncture twice a week, been drinking 1/
baby2016
in
Fertility Network UK
7 years ago
AIH & LFT's
Hi I'm new to here, so firstly hello to everyone. I recently was tested for Coeliac/B12 & intrinsic factor as I had been feeling very tired all the time and we have a family history of B12 deficiency, coeliac and migraines. All the results were clear however as part of the testing another result came
Hi I'm new to here, so firstly hello to everyone. I recently was tested for Coeliac/B12 & intrinsic factor as I had been feeling very tired all the time and we have a family history of B12 deficiency, coeliac and migraines. All the results were clear however as part of the testing another result came
RogC
in
British Liver Trust
7 years ago
New to RA starting methotrexate, so overwhelmed
Hi, I am 36 years old and was just diagnosed with RA this past Friday. My Rheumatoid Factor test came back high (204) and CRP was quite elevated. The anti-ccp test came back normal, and I have had no erosion. I started with some foot pain about a year ago, my son was about 8 weeks old, I thought nothing
Hi, I am 36 years old and was just diagnosed with RA this past Friday. My Rheumatoid Factor test came back high (204) and CRP was quite elevated. The anti-ccp test came back normal, and I have had no erosion. I started with some foot pain about a year ago, my son was about 8 weeks old, I thought nothing
Jesscap
in
NRAS
7 years ago
Help with understanding blood tests
Hi All Ive been given some blood tests to do by my gp, can someone explain what the following tests are for please: INT, THYM Intrinsic Factor Abs., Thyroid Microsomal Thank you
Hi All Ive been given some blood tests to do by my gp, can someone explain what the following tests are for please: INT, THYM Intrinsic Factor Abs., Thyroid Microsomal Thank you
savery8753
in
Thyroid UK
7 years ago
MCH MCV relation to PA or B12.
Hi all, Just a quick one.. 3 blood tests in the last 2 weeks all results as follows... MCV - 103 (80-96) MCH - 36.1 (28-33) Serum Folate - 2.1 (3-17) Serum B12 - 313 (190-900) Lots of others too yet they all seem to be in range. Only posted the relevant ones. Been for the Intrinsic Factor test
Hi all, Just a quick one.. 3 blood tests in the last 2 weeks all results as follows... MCV - 103 (80-96) MCH - 36.1 (28-33) Serum Folate - 2.1 (3-17) Serum B12 - 313 (190-900) Lots of others too yet they all seem to be in range. Only posted the relevant ones. Been for the Intrinsic Factor test
Gempep
in
Pernicious Anaemia Society
7 years ago
PMR since Sept 2017
After my original post, I think it was PMRpro that asked for a more indepth description of my journey. I have an appointment in December 2017 with my Rheumy and am wondering what questions I should ask. So here is my journey: February 22, 2017 – Saw Dr Gio for pain behind my clavicle bone he ordered
After my original post, I think it was PMRpro that asked for a more indepth description of my journey. I have an appointment in December 2017 with my Rheumy and am wondering what questions I should ask. So here is my journey: February 22, 2017 – Saw Dr Gio for pain behind my clavicle bone he ordered
Sunnyd7
in
PMRGCAuk
7 years ago
4 dpo very thick white discharge??
Ladies, I know this might me too early to ask but I get thick white discharge TMI sorry, its quite un usual for me.. I use to get clear white discharge before my period but this looks different as it was thick white and kind of stain on my underwear. sorry tmi.. I did castor oil pack from end of my
Ladies, I know this might me too early to ask but I get thick white discharge TMI sorry, its quite un usual for me.. I use to get clear white discharge before my period but this looks different as it was thick white and kind of stain on my underwear. sorry tmi.. I did castor oil pack from end of my
luv2017
in
Fertility Network UK
7 years ago
Just wondering has anyone had a positive outcome from seeing a neurologist with pins and needles and numbness in hands and feet?
So my intrinsic factor antibodies test came back 'negative' and so GP said we therefore don't need to worry about PA, we can rule that out. Knowing what I know now, I think he is incorrect going by what is on the guidelines from the British Haematology and NICE. Also I noticed my Folate level was greater
So my intrinsic factor antibodies test came back 'negative' and so GP said we therefore don't need to worry about PA, we can rule that out. Knowing what I know now, I think he is incorrect going by what is on the guidelines from the British Haematology and NICE. Also I noticed my Folate level was greater
lc24
in
Pernicious Anaemia Society
7 years ago
Intrinsic factor test
Hi everyone, I've had my results back Serum b12 - 313 (190-900) Folate 2.1 (3-17) Doctors prescribed me 5mg folic acid for life. I asked for the intrinsic factor test (as I'm sure it's my b12d) which I am booked in fit on 28th Nov. Question... will me taking the folic acid before I have the test
Hi everyone, I've had my results back Serum b12 - 313 (190-900) Folate 2.1 (3-17) Doctors prescribed me 5mg folic acid for life. I asked for the intrinsic factor test (as I'm sure it's my b12d) which I am booked in fit on 28th Nov. Question... will me taking the folic acid before I have the test
Gempep
in
Pernicious Anaemia Society
7 years ago
Is it possible to have pernicious anaemia with a B12 of 550?
Hi, I’ve popped over from the thyroid forum for a bit of advice. I apologise for the novel I’m about to write! A bit of background first. I was diagnosed with Hashimoto’s in Feb this year with a tsh of 147 and along with that Vitamin D deficiency, low folate and iron deficiency anaemia although at
Hi, I’ve popped over from the thyroid forum for a bit of advice. I apologise for the novel I’m about to write! A bit of background first. I was diagnosed with Hashimoto’s in Feb this year with a tsh of 147 and along with that Vitamin D deficiency, low folate and iron deficiency anaemia although at
Emyloulou
in
Pernicious Anaemia Society
7 years ago
DIAGNOSIS
Are there any definitive tests....labs or otherwise that can diagnose PMR for certain? Or, is it more symptomatic? I was diagnose 4 years ago after 2-3 years of symptoms. My rheumatoid factor was elevated and I was told the was not necessarily anything to worry about. I'm so miserable and know prednisone
Are there any definitive tests....labs or otherwise that can diagnose PMR for certain? Or, is it more symptomatic? I was diagnose 4 years ago after 2-3 years of symptoms. My rheumatoid factor was elevated and I was told the was not necessarily anything to worry about. I'm so miserable and know prednisone
chiwawaa
in
PMRGCAuk
7 years ago
What is wrong with me! Fibro ? Lupus? Rheumatoid? Or something else? !!!!!!!!
Ok so I definitely have degenerative cervical spinal stenosis that's being dealt with and a separate issue.......or is it? My poor health started just over two years ago in conjunction with my mum passing away I don't know if that has some relevance ( the stress of caring for her and her passing away
Ok so I definitely have degenerative cervical spinal stenosis that's being dealt with and a separate issue.......or is it? My poor health started just over two years ago in conjunction with my mum passing away I don't know if that has some relevance ( the stress of caring for her and her passing away
Jobates
in
Fibromyalgia Action UK
7 years ago
1
...
51
52
53
...
86
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
860 results
Thyroid UK
261 results
NRAS
153 results
View top 10 communities
Sort by
Most Relevant
Newest