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Fabry disease
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A tooth with a life of it's own!
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
orangemax
in
PMRGCAuk
9 months ago
This is perplexing - Coffee's effectiveness on Parkinson prevention
I drank a lot of coffee from my teens until diagnosis at age 48. Yet study after study appears to support the efficacy of coffee in Parkinsons prevention. https://neurosciencenews.com/caffeine-genetics-parkinsons-24920/
I drank a lot of coffee from my teens until diagnosis at age 48. Yet study after study appears to support the efficacy of coffee in Parkinsons prevention. https://neurosciencenews.com/caffeine-genetics-parkinsons-24920/
pdpatient
in
Cure Parkinson's
9 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
9 months ago
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No treatment offered for A F
I rang a friend last night who has had permanent AF for about 6 years. She's now 83 and lives in the Black Mountains in Wales. The only treatment she's ever had is warfarin , bisopralol and something else she couldn't remember the name of. She's never been offered cardioversion, ablation or anything
I rang a friend last night who has had permanent AF for about 6 years. She's now 83 and lives in the Black Mountains in Wales. The only treatment she's ever had is warfarin , bisopralol and something else she couldn't remember the name of. She's never been offered cardioversion, ablation or anything
Qualipop
in
AF Association
6 months ago
Incruse Elipta 55 advice ?
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Kiki54
in
Lung Conditions Community Forum
3 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Blip but back on track
As some of your are aware, I’ve been a bit unwell,unfortunately I contracted Pneumonia, instead of resting I decided I knew best and continued with my plans granted more slowly but continued none the less. By Saturday I was feeling much better, then wham irregular heart beat, got home about 3 hrs later
As some of your are aware, I’ve been a bit unwell,unfortunately I contracted Pneumonia, instead of resting I decided I knew best and continued with my plans granted more slowly but continued none the less. By Saturday I was feeling much better, then wham irregular heart beat, got home about 3 hrs later
4chickens
in
AF Association
6 months ago
Not good news on my heart........
Well it wasn't good news yesterday. I found out it i had arterial stenosis and my valve was blocked. So i am a lot worse than i thought, mind you i really didn't know how ill i really was. The consultant showed Bob and i my MRI scan that i had and he explained what had happened to me. He also explained
Well it wasn't good news yesterday. I found out it i had arterial stenosis and my valve was blocked. So i am a lot worse than i thought, mind you i really didn't know how ill i really was. The consultant showed Bob and i my MRI scan that i had and he explained what had happened to me. He also explained
sylvi
in
NRAS
6 months ago
update
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
Harriet-sarah
in
British Liver Trust
9 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
9 months ago
Does anyone have IBS and Rheumatoid arthritis
Bit of a struggle dealing with both and Gerd
Bit of a struggle dealing with both and Gerd
welsh12
in
IBS Network
7 months ago
Into the 2nd phase?
Hello Had PAF for over 11 years...11 days ago I flipped into AF and haven't really been out of it much. Was taking PIP bisoprolol which slowed it down to an ok level...it used to fix it so I'd return to NSR. Not this time. A few calls to the Arrythmia nurses and they call me into their clinic. Sent
Hello Had PAF for over 11 years...11 days ago I flipped into AF and haven't really been out of it much. Was taking PIP bisoprolol which slowed it down to an ok level...it used to fix it so I'd return to NSR. Not this time. A few calls to the Arrythmia nurses and they call me into their clinic. Sent
Harrison1
in
AF Association
6 months ago
Update on my first EP visit & recomendation
Hi guys. Just wanted to give you an update on my first visit to EP. In short, after she carefully looked at my complete documentation (afib diagnose 2 months ago) she advised me to proceed with ablation. Her main arguments are following -I'm relatively young (40) and ablation has the best outcome in
Hi guys. Just wanted to give you an update on my first visit to EP. In short, after she carefully looked at my complete documentation (afib diagnose 2 months ago) she advised me to proceed with ablation. Her main arguments are following -I'm relatively young (40) and ablation has the best outcome in
NewOne2023
in
Atrial Fibrillation Support
6 months ago
Woot💙PSA dropped after being the same for two consecutive months
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
dockam
in
Advanced Prostate Cancer
9 months ago
Parkinson's patient experiences improvements following stem cell infusions
research being done at Hope Biosciences in Sugarland, TX https://www.frontiersin.org/articles/10.3389/fneur.2023.1257080/full Conclusions Overall, HB-adMSC therapy was efficacious in improving the patient's experience with a progressively degenerative neurological disease such as PD. Administration
research being done at Hope Biosciences in Sugarland, TX https://www.frontiersin.org/articles/10.3389/fneur.2023.1257080/full Conclusions Overall, HB-adMSC therapy was efficacious in improving the patient's experience with a progressively degenerative neurological disease such as PD. Administration
Boscoejean
in
Cure Parkinson's
9 months ago
Scientists identify 11 new genes linked to aggressive prostate cancer
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
"It's the largest study published so far to compare the inherited genetic influences which separate aggressive and non-aggressive prostate cancers." https://www.icr.ac.uk/news-archive%2Fscientists-identify-11-new-genes-linked-to-aggressive-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign
V10fanatic
in
Advanced Prostate Cancer
9 months ago
Interesting Article (please read)
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
Padayn01
in
AF Association
6 months ago
Slow-SPEED ‘Slowing Parinson’s early through exercise dosage’
The Slow-SPEED project is the world's first large-scale research into potentially disease-retardant treatment in the prodromal phase of Parkinson's. But the results will undoubtedly also be important after diagnosis and PD at a more advanced stage. This 4-year study investigates in people at a higher
The Slow-SPEED project is the world's first large-scale research into potentially disease-retardant treatment in the prodromal phase of Parkinson's. But the results will undoubtedly also be important after diagnosis and PD at a more advanced stage. This 4-year study investigates in people at a higher
Esperanto
in
Cure Parkinson's
9 months ago
Auditory hallucinations
Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been experiencing distressing crashing sounds (usually when she wakes, but not always). I appreciate this is probably Parkinson’s related, and would like to hear from anyone else suffering a similar experience. She has been on
Hello, My mum was diagnosed in Feb 21 with Parkinson’s. She has recently been experiencing distressing crashing sounds (usually when she wakes, but not always). I appreciate this is probably Parkinson’s related, and would like to hear from anyone else suffering a similar experience. She has been on
NJCOL
in
Cure Parkinson's
9 months ago
Cardioversion
Have been on medication for AF for 30 yrs, with occasional paroxysmes. First on Amiodarone which kept me on NSR . As it was too toxic, my cardiologist insisted change on propanolol 2 yrs ago.But AF became permanent . Now my EP insists on cardioversion if not ablation before putting me on flecoidine
Have been on medication for AF for 30 yrs, with occasional paroxysmes. First on Amiodarone which kept me on NSR . As it was too toxic, my cardiologist insisted change on propanolol 2 yrs ago.But AF became permanent . Now my EP insists on cardioversion if not ablation before putting me on flecoidine
Davidtol
in
Atrial Fibrillation Support
6 months ago
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