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Full circle with metastatic prostate cancer
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
Islandboy2021
in
Advanced Prostate Cancer
9 months ago
Swollen ankles
Hi,not been on for a while had cardioversion which only lasted a week then back into AF felt so rough afterwards not been right since still on list for an ablation anyway recently my ankles and sometimes my calves have been swelling up mainly my right one can this be normal with AF never had it before
Hi,not been on for a while had cardioversion which only lasted a week then back into AF felt so rough afterwards not been right since still on list for an ablation anyway recently my ankles and sometimes my calves have been swelling up mainly my right one can this be normal with AF never had it before
bobify
in
AF Association
6 months ago
Apixaban
Hi, I've just been prescribed apixaban and bisoprolol due to AF, I'm a bit worried to take apixaban due to the change of lifestyle you need to take, am I getting overly concerned or is there precautions I need to take, also we like to have many continental holidays yearly and I've read some travel insurance
Hi, I've just been prescribed apixaban and bisoprolol due to AF, I'm a bit worried to take apixaban due to the change of lifestyle you need to take, am I getting overly concerned or is there precautions I need to take, also we like to have many continental holidays yearly and I've read some travel insurance
Fones
in
Anticoagulation Support
6 months ago
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Back in sinus rhythm
I posted last week about return of AF following a lung cancer operation. The GP (in UK) increased Bisoprolol from 5 mg to 7.5 mg and after a week I am back with a steady heart rate and rhythm.
I posted last week about return of AF following a lung cancer operation. The GP (in UK) increased Bisoprolol from 5 mg to 7.5 mg and after a week I am back with a steady heart rate and rhythm.
Gincalpe
in
AF Association
6 months ago
SBRT Added to Standard Tx Boosts Outcomes in Oligometastatic PCa - ARTO II~ Improved response & PFS compared to SOC, MedPage Today, 09/27/23
[i]
SBRT Added to Standard Tx Boosts Outcomes in Oligometastatic Prostate Cancer — Combination improved biochemical response and PFS compared with systemic treatment alone, MedPage Today, Oncology/Hematology > Prostate Cancer, by Mike Bassett, Staff Writer, September 27, 2023
[/i] [i]Combining
[i]
SBRT Added to Standard Tx Boosts Outcomes in Oligometastatic Prostate Cancer — Combination improved biochemical response and PFS compared with systemic treatment alone, MedPage Today, Oncology/Hematology > Prostate Cancer, by Mike Bassett, Staff Writer, September 27, 2023
[/i] [i]Combining
cujoe
in
Fight Prostate Cancer
9 months ago
IBS and kidney Stones
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Will1234
in
IBS Network
5 months ago
New To Group
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Ghost87
in
NRAS
7 months ago
How can I support my brother?
My brother has advanced prostate cancer and has had surgery. New tests show it has metastasised in his hip. I want to be able to support him but also don't want to say the wrong thing or add to the stress he is already feeling. I would appreciate ANY advice ~ thank you so much.
My brother has advanced prostate cancer and has had surgery. New tests show it has metastasised in his hip. I want to be able to support him but also don't want to say the wrong thing or add to the stress he is already feeling. I would appreciate ANY advice ~ thank you so much.
wavedancers
in
Advanced Prostate Cancer
9 months ago
New gene links to mHSPC
Article from cancertherapyadvisor.com Genes Linked to Aggressive Prostate Cancer Researchers say they have identified genes that should be considered for gene panel testing in prostate cancer. The researchers found evidence to suggest that variants in BRCA2, ATM, NBN, MSH2, XRCC2, and MRE11A are
Article from cancertherapyadvisor.com Genes Linked to Aggressive Prostate Cancer Researchers say they have identified genes that should be considered for gene panel testing in prostate cancer. The researchers found evidence to suggest that variants in BRCA2, ATM, NBN, MSH2, XRCC2, and MRE11A are
Derf4223
in
Advanced Prostate Cancer
9 months ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
9 months ago
Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Accordion
in
CLL Support
3 months ago
PSMA PET Scan result - false positive bone lesion?
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
Daddysgirl83
in
Advanced Prostate Cancer
9 months ago
Tingling
HiI have had three lots of brain surgery, the latest being a cranioplasty and clipping of an aneurysm. I am suffering with extreme tingling especialy down one side of my body. Has anybody else experienced this
HiI have had three lots of brain surgery, the latest being a cranioplasty and clipping of an aneurysm. I am suffering with extreme tingling especialy down one side of my body. Has anybody else experienced this
EHJF
in
Headway
9 months ago
Mike H
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
Georgeorwell1959
in
Atrial Fibrillation Support
3 months ago
Complementary Therapies - Your Experience?
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
32Percenter
in
Advanced Prostate Cancer
9 months ago
Outdoor working
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
ApusApus
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Musselburgh Coffee and Chat meeting - 2nd December!
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
michaellasmith
Administrator
in
LUPUS UK
7 months ago
Mitral Valve Regurgitation?
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
nikonBlue
in
Atrial Fibrillation Support
3 months ago
Gabapentin for lupus pain
Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if this has helped you, thank you.
Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if this has helped you, thank you.
BonnyB
in
LUPUS UK
7 months ago
BCR May Not Be a Strong Surrogate End Point for Prostate Cancer Survival
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
pca2004
in
Fight Prostate Cancer
9 months ago
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