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Fabry disease
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Final Path Report After RALP (Dad - 74, G7- 4+3) , what’s next ?
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
EzioAudi7
in
Advanced Prostate Cancer
9 months ago
I am so confused about bisoprolol...please help.
Hi i was prescibed 1.25 dose of bisoprolol after being admitted to a+e on 7 Feb. I have known Afib, not permanent afib. Over past year i have been told by EP, top thorasic surgeon, and several cardiologists that anti arrthymia meds and rate control meds are not an option open for me to be presribed this
Hi i was prescibed 1.25 dose of bisoprolol after being admitted to a+e on 7 Feb. I have known Afib, not permanent afib. Over past year i have been told by EP, top thorasic surgeon, and several cardiologists that anti arrthymia meds and rate control meds are not an option open for me to be presribed this
DizzyD
in
Atrial Fibrillation Support
6 months ago
Post Ablation advice please??
I underwent an RFA for Afib and Aflutter in late last year (coming up on end of blanking period) for paroxysmal afib/flutter first diagnosed 5 years ago. I have been on Flecainide and Diltiazem for several years. Prior to the ablation, I would experience episodes about 2x a week for about 12-24 hours
I underwent an RFA for Afib and Aflutter in late last year (coming up on end of blanking period) for paroxysmal afib/flutter first diagnosed 5 years ago. I have been on Flecainide and Diltiazem for several years. Prior to the ablation, I would experience episodes about 2x a week for about 12-24 hours
Jonboggs
in
AF Association
6 months ago
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Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Can IBS lead to other conditions?
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
penelope2
in
IBS Network
7 months ago
NZ made nutrient rescue.
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
LAJ12345
in
Cure Parkinson's
9 months ago
Post 2nd Ablation Recovery
Hi All, I am 11-days in to my recovery from my second ablation procedure and wanted to check if anyone else has/had the symptoms I am suffering from; as I didn't have them after the first ablation procedure. I have two key ones as follows; 1. After walking for a few minutes and then standing still
Hi All, I am 11-days in to my recovery from my second ablation procedure and wanted to check if anyone else has/had the symptoms I am suffering from; as I didn't have them after the first ablation procedure. I have two key ones as follows; 1. After walking for a few minutes and then standing still
trevs7
in
AF Association
6 months ago
Good news
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Spiff
in
British Liver Trust
9 months ago
No Afib after all
Hi everyone, well i finally had my cardio phone appointment after a 7 month wait since the GP 24 holter showed suspected PAF. (Only symptom really was a prolonged drop in blood pressure) Apparently i do not have AF after all. I should add i also had a 72 hour holter monitor from cardiology. He did say
Hi everyone, well i finally had my cardio phone appointment after a 7 month wait since the GP 24 holter showed suspected PAF. (Only symptom really was a prolonged drop in blood pressure) Apparently i do not have AF after all. I should add i also had a 72 hour holter monitor from cardiology. He did say
Tropicaltaurus
in
AF Association
6 months ago
vitamin d advice please
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
Stills
in
Thyroid UK
7 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
3 months ago
WHY WHY WHY
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Janith
in
Atrial Fibrillation Support
6 months ago
Low Volume Low PSA Metastatic PC.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
NDJIM
in
Advanced Prostate Cancer
9 months ago
is this a lupus rash?
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Just wanted to add: I’m not taking anything anyone says as a diagnosis or medical advice I promise. I was just curious what people thought it looked like, and just gave info for context. I promise I’m not thinking if someone says it does look like the lupus rash that I’m not taking it as a diagnosis
Lostnthought00
in
LUPUS UK
7 months ago
1st patient doesd in Phase 2 trial testing vaccine for Parkinson's
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
PDWarrior1900
in
Cure Parkinson's
9 months ago
20 years of drinking and want to stop but don’t dare’nt get a liver test.!!
iv been drinking beer for 20 year's, 4 to 5 pints most evenings at home after work. I know I must have damaged my liver in some way, I’m not stupid.! But my problem is that I dare’nt go for a liver function test as I also suffer with heath anxiety which doesn’t help ? Not that anyone one has asked me
iv been drinking beer for 20 year's, 4 to 5 pints most evenings at home after work. I know I must have damaged my liver in some way, I’m not stupid.! But my problem is that I dare’nt go for a liver function test as I also suffer with heath anxiety which doesn’t help ? Not that anyone one has asked me
Jetcat
in
British Liver Trust
9 months ago
Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
9 months ago
A 47 year old recent heart attack survivor
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
Drakeywilson
in
Cholesterol Support
6 months ago
Afib Medication
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Jedburgh
in
AF Association
6 months ago
Arx517 updates about the trial for metastatic castration resistant prostate cancer
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
Maxone73
in
Advanced Prostate Cancer
9 months ago
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