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Fabry disease
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No Afib after all
Hi everyone, well i finally had my cardio phone appointment after a 7 month wait since the GP 24 holter showed suspected PAF. (Only symptom really was a prolonged drop in blood pressure) Apparently i do not have AF after all. I should add i also had a 72 hour holter monitor from cardiology. He did say
Hi everyone, well i finally had my cardio phone appointment after a 7 month wait since the GP 24 holter showed suspected PAF. (Only symptom really was a prolonged drop in blood pressure) Apparently i do not have AF after all. I should add i also had a 72 hour holter monitor from cardiology. He did say
Tropicaltaurus
in
AF Association
4 months ago
Various questions, sorry 🥹
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
JLAR01
in
LUPUS UK
5 months ago
WHY WHY WHY
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Suddenly my afib is visiting me a lot more frequently … it used to be every six months … now it’s every three weeks but it only lasts an hour or so and it converts to nsr. Today it happened when l returned from the gym and l was carrying very heavy bolders to put into a plant that keeps falling over
Janith
in
Atrial Fibrillation Support
4 months ago
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PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
7 months ago
Arthritis
Does everyone who has this condition end up getting arthritis or some form of it?
Does everyone who has this condition end up getting arthritis or some form of it?
Caulkhead63
in
PMRGCAuk
5 months ago
test results
I have just had my yearly thyroid test results: Serum TSH Level 3.12mu/L (0.35- 494) Serum free T4 Level 13.6pmol/L (9.0- 19ul) FT3 3.7 pmol/L (2.4-6.0) I also had a cholesterol test and it’s 8 gone up in 2 months from 7.8. Despite a healthy diet and drinking a cholesterol lowering drink every
I have just had my yearly thyroid test results: Serum TSH Level 3.12mu/L (0.35- 494) Serum free T4 Level 13.6pmol/L (9.0- 19ul) FT3 3.7 pmol/L (2.4-6.0) I also had a cholesterol test and it’s 8 gone up in 2 months from 7.8. Despite a healthy diet and drinking a cholesterol lowering drink every
Hidden
in
Thyroid UK
5 months ago
Behcets + Personal Independence Payment (UK)
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
jaquarius
in
Behçet's UK
7 months ago
GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
7 months ago
A 47 year old recent heart attack survivor
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
Drakeywilson
in
Cholesterol Support
4 months ago
Afib Medication
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Jedburgh
in
AF Association
4 months ago
What constitutes low heart rate?
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
DizzyD
in
Atrial Fibrillation Support
4 months ago
My uncertain heart
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
Sambaqui
in
AF Association
4 months ago
Ablation
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
Karendeena
in
AF Association
4 months ago
Vitamin D
I have it prescribed once a week D3 ( CLL & Multiple Sclerosis
I have it prescribed once a week D3 ( CLL & Multiple Sclerosis
Marco54
in
CLL Support
5 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
EP consult
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
Desertflowerchild
in
Atrial Fibrillation Support
4 months ago
heart arteries heavily calcified
hi I’ve had PV and ET since August 2015 I recently started with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160
hi I’ve had PV and ET since August 2015 I recently started with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160
Phil1955
in
MPN Voice
4 months ago
RA in jaw
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!đź‘Ť
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!đź‘Ť
Mybirthday1975
in
NRAS
5 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
Partner
in
AF Association
4 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
4 months ago
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