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Inflammatory arthritis & pulmonary embolisms - an update & a question on possible meds.
Hi all , In my 1st ever post on here 6 days ago regarding a link between inflammatory arthritis & pulmonary embolisms - I received many replies - all of them excellent. Thank you so much you lovely people! Today I saw my Rheumatologist & worded my question to him very, very carefully: "So Doctor
Hi all , In my 1st ever post on here 6 days ago regarding a link between inflammatory arthritis & pulmonary embolisms - I received many replies - all of them excellent. Thank you so much you lovely people! Today I saw my Rheumatologist & worded my question to him very, very carefully: "So Doctor
YorkieBard
in
NRAS
25 days ago
GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
8 months ago
trauma after icu stay
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
hi in2020 I was rushed to kings hospital London with septic shock due to ulcers on my liver. I was in an induced coma for a week and in hospital for 5 weeks. During the last 3 months I have been having really bad nightmares about being in a coma, specifically that my doctor is trying to kill me (i really
ZoeH1974
in
ICUsteps
5 months ago
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Hi, new to this page/forum, looking for information and advice.
Have been on PAS page and Thyroid UK page for a few years but just thought I'd be greedy and join yourselves too. Have been having increasing levels of pain and discomfort for years but just told lose weight, take brufen. Last few years have been awful , eventually got a referral to Rheumatology. Bloods
Have been on PAS page and Thyroid UK page for a few years but just thought I'd be greedy and join yourselves too. Have been having increasing levels of pain and discomfort for years but just told lose weight, take brufen. Last few years have been awful , eventually got a referral to Rheumatology. Bloods
Polo22
in
NRAS
1 month ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
8 months ago
Steroid injection into Kiloid Scars
I have a dermatology appointment on Saturday (yes an NHS appointment on a Saturday) to review treatment of kiloid scars. I think one of the options suggested may be direct steroid injections into the scars themselves. I have had PMR for 9 years and have at last got stable on 7 mg prednisolone daily
I have a dermatology appointment on Saturday (yes an NHS appointment on a Saturday) to review treatment of kiloid scars. I think one of the options suggested may be direct steroid injections into the scars themselves. I have had PMR for 9 years and have at last got stable on 7 mg prednisolone daily
scrambledegg
in
PMRGCAuk
1 month ago
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV?
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Has anyone had good success with Low Dose Naltrexone (LDN) for chronically reactivated EBV? Answered by Sebastian Denison, RPh https://youtu.be/ifWvF7Yz52Y
Shewulf
Administrator
in
LDN Research Trust
5 months ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
8 months ago
pneumonia vaccination
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
Collie4
in
Lung Conditions Community Forum
5 months ago
Flirt covid
Haa anyone else been suffering badly withethe latest covid virus. Constant nausea and fatigue. I've lost more weight. My heart beating irregular when I'm vomiting. Had to call an ambulance sunday. When they came they said I was better off at home as they are full of covid patients. This is miserable
Haa anyone else been suffering badly withethe latest covid virus. Constant nausea and fatigue. I've lost more weight. My heart beating irregular when I'm vomiting. Had to call an ambulance sunday. When they came they said I was better off at home as they are full of covid patients. This is miserable
Toby14
in
Lung Conditions Community Forum
9 hours ago
When We Have CLL, Why We Need Particularly need an Immunome. (Why neutrophil and immunoglobulin counts don't measure immunity all that well)
Given CLL compromises our immune system in many ways, https://healthunlocked.com/cllsupport/posts/685147/cll-a-cancer-of-the-immune-system this Ground Truths article by Dr Eric Topol, is extremely relevant regarding the current inadequacies of standard blood testing for measuring our risk of infection
Given CLL compromises our immune system in many ways, https://healthunlocked.com/cllsupport/posts/685147/cll-a-cancer-of-the-immune-system this Ground Truths article by Dr Eric Topol, is extremely relevant regarding the current inadequacies of standard blood testing for measuring our risk of infection
AussieNeil
Partner
in
CLL Support
13 hours ago
Covid and Sick Day rules
I've come down with Covid today. The test went positive in about 30 seconds! I had just started a slow taper to 8mg from 8.5. Please can you clarify whether, under sick day rules, I need to increase to 5mg twice a day or 10mg twice a day. The 10 option seems a big jump. Also if I am offered antivirals
I've come down with Covid today. The test went positive in about 30 seconds! I had just started a slow taper to 8mg from 8.5. Please can you clarify whether, under sick day rules, I need to increase to 5mg twice a day or 10mg twice a day. The 10 option seems a big jump. Also if I am offered antivirals
FleetRose
in
PMRGCAuk
21 hours ago
Crazy week for me and the hubby...
This week started off fairly well, only for it to start going downhill from Wednesday. I woke up not being able to bend or mice my right leg, so there I was, worried that I wouldn't be able to get to an appointment at 9am at a small hospital in the town next door. I called up 111, and they suggested
This week started off fairly well, only for it to start going downhill from Wednesday. I woke up not being able to bend or mice my right leg, so there I was, worried that I wouldn't be able to get to an appointment at 9am at a small hospital in the town next door. I called up 111, and they suggested
Cwright170994
in
My MSAA Community
22 hours ago
At the bottom of Mount Covid…
When you work in and around education, it’s bound to happen. MrU came home from school saying “I think I’ve got a bug” on Wednesday. He’s never ill. There was so much sneezing and general grottiness that the Covid tests came out. Glowing positive T line before the control even came up. I’d been
When you work in and around education, it’s bound to happen. MrU came home from school saying “I think I’ve got a bug” on Wednesday. He’s never ill. There was so much sneezing and general grottiness that the Covid tests came out. Glowing positive T line before the control even came up. I’d been
MissUnderstanding
Graduate10
in
Bridge to 10K
1 day ago
Week 6 run 3 then covid
I did it. I was so pleased with myself as after 5 mins I had the choice to go up the slight slope or down. I went up ( normally I would opt for easier route) and managed the whole 20 mins running. I felt SO GOOD. Talk about pride before a fall. I then got covid!!! So 10 days of feeling bunged and
I did it. I was so pleased with myself as after 5 mins I had the choice to go up the slight slope or down. I went up ( normally I would opt for easier route) and managed the whole 20 mins running. I felt SO GOOD. Talk about pride before a fall. I then got covid!!! So 10 days of feeling bunged and
oldperson47
Graduate
in
Couch to 5K
1 day ago
Running, gym-ing, and breathing
I negotiated with my GP a few weeks back and I've got myself a subsidised gym membership! Considering I'm living with Long Covid, I'm being no trouble to my local surgery and haven't seen a GP for ages. The recent bout of Covid plundered my energy, but I know that I'm better than I was a year/18 months
I negotiated with my GP a few weeks back and I've got myself a subsidised gym membership! Considering I'm living with Long Covid, I'm being no trouble to my local surgery and haven't seen a GP for ages. The recent bout of Covid plundered my energy, but I know that I'm better than I was a year/18 months
Gthants
60minGraduate
in
Bridge to 10K
2 days ago
help… no longer tolerating meds
Hi all, I am having persistent issues after having Covid in May. Covid symptoms persisted for 2 weeks after which I felt ok until I didn’t at the beginning of June… very dehydrated, peeing a lot, adrenaline type feelings, indigestion and was getting neuropathic sensations in my skin. This so far
Hi all, I am having persistent issues after having Covid in May. Covid symptoms persisted for 2 weeks after which I felt ok until I didn’t at the beginning of June… very dehydrated, peeing a lot, adrenaline type feelings, indigestion and was getting neuropathic sensations in my skin. This so far
Littledancingtiger
in
Thyroid UK
2 days ago
Bayer announces positive topline results for NUBEQA® (darolutamide) from Phase III trial in men with mHSPC - July 17, 2024
Bayer announces positive topline results for NUBEQA® (darolutamide) from Phase III trial in men with metastatic hormone-sensitive prostate cancer (mHSPC) July 17, 2024 Phase III ARANOTE trial met primary endpoint, significantly increasing radiological progression-free survival (rPFS) with NUBEQA
Bayer announces positive topline results for NUBEQA® (darolutamide) from Phase III trial in men with metastatic hormone-sensitive prostate cancer (mHSPC) July 17, 2024 Phase III ARANOTE trial met primary endpoint, significantly increasing radiological progression-free survival (rPFS) with NUBEQA
cujoe
in
Fight Prostate Cancer
3 days ago
covid
Hi all hope you are enjoying the summer sun. Been got by Covid any advice on getting anti virals hasn’t helped IT being down and unable to get the doctors. Thanks
Hi all hope you are enjoying the summer sun. Been got by Covid any advice on getting anti virals hasn’t helped IT being down and unable to get the doctors. Thanks
Daffodil1958
in
NRAS
3 days ago
Covid
I have Covid, and wondered if I should still take my Venetoclax
I have Covid, and wondered if I should still take my Venetoclax
flippingnora1
in
CLL Support
3 days ago
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