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Anyone permanently on prednefrin forte or something alike after trabeculectomy surgery ?
Really need to know if anyone else is in the same boat at me ? been trying to get off Pred Fotre for 4 years since trab surgery 4 years ago eye still gets inflamed by the afternoon each day. Doctors cant figure out why the eye gets inflamed everyday. thankyou.
Really need to know if anyone else is in the same boat at me ? been trying to get off Pred Fotre for 4 years since trab surgery 4 years ago eye still gets inflamed by the afternoon each day. Doctors cant figure out why the eye gets inflamed everyday. thankyou.
Colin-F
in
Glaucoma UK
2 years ago
Atemara
Hello, My mother was diagnosed with Scleroderma over a year ago, however, no one explained what it was or gave her good information to slow the disease down. Recently she was having issues with double vision and walking to the left along with head aches and we went to the hospital to be checked. When
Hello, My mother was diagnosed with Scleroderma over a year ago, however, no one explained what it was or gave her good information to slow the disease down. Recently she was having issues with double vision and walking to the left along with head aches and we went to the hospital to be checked. When
Nunyabus
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Over cautious Rheumatologist?
I was recently diagnosed with PMR in June 2022. After ER visit and one dose of pred at 60 then 2 days at 40 I have been on 20 mg since. Had first appt with Rheumatologist July 28. We decided to try to taper so I went to 15mg. Pain came back within days. Also have very mild headaches that come and
I was recently diagnosed with PMR in June 2022. After ER visit and one dose of pred at 60 then 2 days at 40 I have been on 20 mg since. Had first appt with Rheumatologist July 28. We decided to try to taper so I went to 15mg. Pain came back within days. Also have very mild headaches that come and
flygirl65
in
PMRGCAuk
2 years ago
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Awoke with right sided blurry vision
Hi all, been a while since I posted here. Sitting in the ER. I went to sleep at 10:45 last evening. Experienced a very strong hypnagogic hallucination, shortly after 11:15) which I hadn’t experienced in a while. Caused me to jump out of bed. After turning on the lights I realized I had pronounced right
Hi all, been a while since I posted here. Sitting in the ER. I went to sleep at 10:45 last evening. Experienced a very strong hypnagogic hallucination, shortly after 11:15) which I hadn’t experienced in a while. Caused me to jump out of bed. After turning on the lights I realized I had pronounced right
seamuspg
in
Functional Neurological Disorder - FND Hope
2 years ago
INF and vision improvement
Some may have seen my issues with eyes since starting Bes. Super light sensitive at my 1st dose period, other vague weirdness, and more recently left eye injury. After a series of eye Dr visits all is good so far. Eye was poked by an eyelash, and light trouble is long gone. I do have light cataracts
Some may have seen my issues with eyes since starting Bes. Super light sensitive at my 1st dose period, other vague weirdness, and more recently left eye injury. After a series of eye Dr visits all is good so far. Eye was poked by an eyelash, and light trouble is long gone. I do have light cataracts
EPguy
in
MPN Voice
2 years ago
POEM - NEVER GIVE UP.
POEM – NEVER GIVE UP. I need to write a poem as this all must be said, I find that I need to say this, just before I go to bed. Its about you having a goal, something that affects you And never give up on it, no matter what you do. You may not realise, there are others, others, just like me,
POEM – NEVER GIVE UP. I need to write a poem as this all must be said, I find that I need to say this, just before I go to bed. Its about you having a goal, something that affects you And never give up on it, no matter what you do. You may not realise, there are others, others, just like me,
onebigvoice
in
Fibromyalgia Action UK
2 years ago
Looking for support- Degenerative Myopia with CNV
Hello all! I am writing in hopes of finding support in this community as well as some hope. Given the fact that degenerative, severe myopia is so rare and individualized, I know none of us have all the answers. To share my story: I am 28 years old and have had moderately low vision (severe myopia)
Hello all! I am writing in hopes of finding support in this community as well as some hope. Given the fact that degenerative, severe myopia is so rare and individualized, I know none of us have all the answers. To share my story: I am 28 years old and have had moderately low vision (severe myopia)
Lilsarah
in
Macular Society
2 years ago
High cholesterol and glucoma
i have mild glucoma.. now been told my cholesterol is high.. I've looked this up and it raises pressure? Any one with same..any advice ? i think I'm going to try get a Moorfields private appointment..im really worried
i have mild glucoma.. now been told my cholesterol is high.. I've looked this up and it raises pressure? Any one with same..any advice ? i think I'm going to try get a Moorfields private appointment..im really worried
GardeningDorset123
in
Glaucoma UK
2 years ago
practical suggestions for pwp and the 2am club......drooling
Drooling sucks especially when you wake up with a wet pillow...which usually occurs mid to late stage pd. You can drink/eat pineapple which contains bromelain.. that acts to "dry" out the salivary gland which is controlled by the the parasympathetic/autonomic nervous system which ultimately becomes
Drooling sucks especially when you wake up with a wet pillow...which usually occurs mid to late stage pd. You can drink/eat pineapple which contains bromelain.. that acts to "dry" out the salivary gland which is controlled by the the parasympathetic/autonomic nervous system which ultimately becomes
beehive23
in
Cure Parkinson's
2 years ago
Anyone stuck on prednefrin Forte years after Trabeculectomy surgery ??
Hello guys, Names Colin, from Sydney Australia aged 30 I have Uveitis glaucoma . I had undertaken Trabeculectomy surgery 4 years ago now. My vision was extremely blurry post opp, the doctors informed me my eye vision would return back to normal after a few months, unfortunately the clear vision never
Hello guys, Names Colin, from Sydney Australia aged 30 I have Uveitis glaucoma . I had undertaken Trabeculectomy surgery 4 years ago now. My vision was extremely blurry post opp, the doctors informed me my eye vision would return back to normal after a few months, unfortunately the clear vision never
Colin-F
in
Glaucoma UK
2 years ago
probiotics with Hashimotos
hi everyone hope you’re doing ok. I remember being recommended to take probiotics to improve gut health for t3 conversion. I’m gluten free, almost dairy free. I’m on T4/T3 combined therapy. My question is are probiotics good for you? I’ve been taking them for a month and need atleast 3 toilet trips every
hi everyone hope you’re doing ok. I remember being recommended to take probiotics to improve gut health for t3 conversion. I’m gluten free, almost dairy free. I’m on T4/T3 combined therapy. My question is are probiotics good for you? I’ve been taking them for a month and need atleast 3 toilet trips every
Bollieforme
in
Thyroid UK
2 years ago
Eye sight loss left eye could this be lupus or Connective tissue disease?
hi can anyone advise if eyesight loss due to bright zig zag and fog then total loss with temple pain could be due to lupus or CTD ? I have been to A&E have urgent eye clinic appointment this week. would love to hear from anyone one 😃
hi can anyone advise if eyesight loss due to bright zig zag and fog then total loss with temple pain could be due to lupus or CTD ? I have been to A&E have urgent eye clinic appointment this week. would love to hear from anyone one 😃
Geeforce99
in
LUPUS UK
2 years ago
Glaucoma and breast cancer
Hello I wondered if anyone on here is or has been taking the hormone drug tamoxifen? I currently take two lots of eye drops for glaucoma, have had three trabs in the past and in May 2021 a Baerveldt shunt implant. After I recently started the tamoxifen drug I feel that I’m experiencing sore eyes (more
Hello I wondered if anyone on here is or has been taking the hormone drug tamoxifen? I currently take two lots of eye drops for glaucoma, have had three trabs in the past and in May 2021 a Baerveldt shunt implant. After I recently started the tamoxifen drug I feel that I’m experiencing sore eyes (more
Euphor
in
Glaucoma UK
2 years ago
2 months after op still blurred vision, too early to give up?
It has been two months since I had a trab op. My vision was gradually improving but it stopped the last one month ie, no improvement of vision from day 30 to day 60 after op. Doctor seems to suspect this might be as good as it gets. He mentioned my glaucoma was advanced so in some cases, it never goes
It has been two months since I had a trab op. My vision was gradually improving but it stopped the last one month ie, no improvement of vision from day 30 to day 60 after op. Doctor seems to suspect this might be as good as it gets. He mentioned my glaucoma was advanced so in some cases, it never goes
charles555
in
Glaucoma UK
2 years ago
Simbrinza eye drops
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
TomS_GlaucomaUK
Administrator
in
Glaucoma UK
2 years ago
Thyroid and Supplements to help Perimenopause
Hi, I have Hypothyroidism and take Thyroxine and NDT. I have been having symptoms over the last 6-8 months similar to Thyroid which I now believe to be Perimenopause. I started on Collagen which has helped with joint pain and saw a GP last week who suggested Black Cohosh and Red Clover to see how
Hi, I have Hypothyroidism and take Thyroxine and NDT. I have been having symptoms over the last 6-8 months similar to Thyroid which I now believe to be Perimenopause. I started on Collagen which has helped with joint pain and saw a GP last week who suggested Black Cohosh and Red Clover to see how
ju01749
in
Thyroid UK
2 years ago
Go to IBS comforts
Currently in a pretty strong flare up for first time in a while and I wondered what everyones go too and when in a flare up. Mine so far: Buscopan Cold wet flannel Imodium instants (hate the taste of these!) Various layers of pillows and weighted blanket on my stomach My favourite music playlist
Currently in a pretty strong flare up for first time in a while and I wondered what everyones go too and when in a flare up. Mine so far: Buscopan Cold wet flannel Imodium instants (hate the taste of these!) Various layers of pillows and weighted blanket on my stomach My favourite music playlist
Loulabelle1709
in
IBS Network
2 years ago
combo Jakafi and Pegasys
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
william-Indo
in
MPN Voice
2 years ago
My eyesight problems
Hi everybody, I have normal pressure glaucoma. I use Monoprost drops in my right eye. I have had a trab in my left eye since January 2019. My pressures are fairly stable though the damage to my left eye is getting worse. I've always been shortsighted and obviously wear prescription specs. The last
Hi everybody, I have normal pressure glaucoma. I use Monoprost drops in my right eye. I have had a trab in my left eye since January 2019. My pressures are fairly stable though the damage to my left eye is getting worse. I've always been shortsighted and obviously wear prescription specs. The last
Quiet_Lin
in
Glaucoma UK
2 years ago
CHEC community health eye clinics, poor service?
My NHS hospital appointment was cancelled and without explanation I was referred to the above service recently commissioned by the NHS to reduce the NHS load of eye patients. Communication with them is almost impossible and my urgent diagnosis for glaucoma (imperative to enable treatment to begin) was
My NHS hospital appointment was cancelled and without explanation I was referred to the above service recently commissioned by the NHS to reduce the NHS load of eye patients. Communication with them is almost impossible and my urgent diagnosis for glaucoma (imperative to enable treatment to begin) was
tincress
in
Glaucoma UK
2 years ago
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