INF and vision improvement: Some may have seen my... - MPN Voice

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INF and vision improvement

EPguy profile image
6 Replies

Some may have seen my issues with eyes since starting Bes. Super light sensitive at my 1st dose period, other vague weirdness, and more recently left eye injury. After a series of eye Dr visits all is good so far. Eye was poked by an eyelash, and light trouble is long gone. I do have light cataracts, they say normal for my age and nothing to fix yet.

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Improvement: Interesting part is today's visit showed a significant improvement in my distance vision. There is data there to show it and Dr confirmed. I have also noticed starting a couple months ago but waited for today's visit to be sure. It corresponds well to my Besremi therapy, in particular the recent dose increases (100 to 120)

I have a 45 year old Rx for nearsightedness, not strong, but it's now 1/2 that. Dr said I don't really need Rx, but tired night driving is still worth having it.

The only other relevant change is past few months of NAC supplements, but I feel the INF is doing it.

Eye dr has never heard of this with INF, only the eye risks with INF. I'll continue eye visits at least thru the 1st year on Bes.

Has anyone else noticed vision focus changes, worse or better, on INF?

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On a maybe related note, Dr said my good vision at my age is unusual ( I can read a newspaper without glasses and see far ok) I've been doing an n=1 experiment since 1980's, wearing magnifiers for close work when I didn't need any. It actually strained my eyes some back then, but my theory was to not use up all that close vision and forcibly train the eyes. Maybe it worked?

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EPguy
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6 Replies
Mostew profile image
Mostew

Good news . Long may it continue

joyfuljoyful123 profile image
joyfuljoyful123

Happy for you! I started Peg in Apr’22 and nope, no improvement to vision…. Eyes did get more tired at one stage, but that has passed.

KLCTJC profile image
KLCTJC

I am so glad it wasn’t the medication!!! Great news

jmctrek profile image
jmctrek

Can’t comment on INF since I haven’t crossed that bridge yet. Taking a therapeutic dose of NAC for the past 6 months hasn’t improved or worsened my nearsightedness. Hope yours continue to improve!

EPguy profile image
EPguy in reply tojmctrek

I'd take thick glasses if I could trade that for dumping all these symptoms. But since I can't I'm ok with anything that is nice.

jmctrek profile image
jmctrek in reply toEPguy

I second that opinion! Though I already have thick glasses 🤓

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