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Casodex - stop or continue ?
Dad , 83 , got diagnosed last month with bone mets and psa 18. The urologist started him on Casodex 100 mg to take daily and then take a lupron shot after 2-3 weeks. Before starting the Casodex he had bone pain in a femur and was taking Ibuprofen sometimes but since starting the Casodex since the
Dad , 83 , got diagnosed last month with bone mets and psa 18. The urologist started him on Casodex 100 mg to take daily and then take a lupron shot after 2-3 weeks. Before starting the Casodex he had bone pain in a femur and was taking Ibuprofen sometimes but since starting the Casodex since the
Tinkudi
in
Advanced Prostate Cancer
25 days ago
Recent diagnosis questions & concerns, please respond to any that you can
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
G6AS
in
Prostate Cancer Network
26 days ago
Post radiation and low(er) testosterone
Hi, Just wondering if anyone has had similar experience. I had radiation for prostate cancer in December/January (getting out to about six months post treatment). My testosterone is sitting in the low 300's so on the low end of the reference range but still within it. I had been on testosterone replacement
Hi, Just wondering if anyone has had similar experience. I had radiation for prostate cancer in December/January (getting out to about six months post treatment). My testosterone is sitting in the low 300's so on the low end of the reference range but still within it. I had been on testosterone replacement
TonyTx
in
Prostate Cancer Network
27 days ago
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Hypogonadism, heat flushing, and testosterone replacement
Hi all, It is almost a year since I had my external beam radiation for Gleason 7 (3+4) PCa (see my profile). So far so good: 4 PSA tests were reassuringly low. I am now almost 82 and I am hoping to deal with my strange heat-flushing problem, which I have had for several years. It predates my cancer
Hi all, It is almost a year since I had my external beam radiation for Gleason 7 (3+4) PCa (see my profile). So far so good: 4 PSA tests were reassuringly low. I am now almost 82 and I am hoping to deal with my strange heat-flushing problem, which I have had for several years. It predates my cancer
Smarks42
in
Prostate Cancer Network
28 days ago
Binding globulins...
Anyone got a good handle on these, please? The reason I ask is that I have had 3 months of increasingly debilitating fatigue. I take T3 only and was on 100mcg, which took me 70% through the range, I have also tried 125mcg which takes me well over the top, but still tiredddddd. I have tested cortisol
Anyone got a good handle on these, please? The reason I ask is that I have had 3 months of increasingly debilitating fatigue. I take T3 only and was on 100mcg, which took me 70% through the range, I have also tried 125mcg which takes me well over the top, but still tiredddddd. I have tested cortisol
AKatieD
in
Thyroid UK
28 days ago
Newbie here.
Hi, I'm Ian. Sorry for this long post. Just found out today after a 7+ yr journey of trying to figure out what is wrong with me that I have markers for Myositis ok my blood work. I started with very low key fatigue almost 10 years ago, with brain fog calling around 7 years ago (trip to the memory service
Hi, I'm Ian. Sorry for this long post. Just found out today after a 7+ yr journey of trying to figure out what is wrong with me that I have markers for Myositis ok my blood work. I started with very low key fatigue almost 10 years ago, with brain fog calling around 7 years ago (trip to the memory service
Eogz
in
Myositis UK
1 month ago
Help with fatigue
Hi, my husband seen the family doctor yesterday and he prescribed Ritalin ( not sure yet of the dose as he faxed to pharmacy )My question is if anyone has tried this for energy? He is very nervous about adding more meds. He also is taking Effexor 75mg for the hot flushes which has decreased them . He
Hi, my husband seen the family doctor yesterday and he prescribed Ritalin ( not sure yet of the dose as he faxed to pharmacy )My question is if anyone has tried this for energy? He is very nervous about adding more meds. He also is taking Effexor 75mg for the hot flushes which has decreased them . He
positive-thinking
in
Advanced Prostate Cancer
1 month ago
Pluvicto results (good news), next steps
I completed six Pluvicto treatments at Mayo in Rochester in December 2023. Choline-11 Pet scan in January 2024 showed no evidence of PCa, and PSMA Pet scan on May 22, 2024 continued to show complete remission. Pretty incredible to compare scans from a year ago, riddled with PCa, to the most recent scans
I completed six Pluvicto treatments at Mayo in Rochester in December 2023. Choline-11 Pet scan in January 2024 showed no evidence of PCa, and PSMA Pet scan on May 22, 2024 continued to show complete remission. Pretty incredible to compare scans from a year ago, riddled with PCa, to the most recent scans
Skifanatic
in
Advanced Prostate Cancer
1 month ago
Testosterone is increasing? Should I be worried?
Hello everyone, Since my father’s surgery in 2022, his PSA levels have been undetectable. He receives a Zoladex injection every three months. Until this month, the reference range for total testosterone was 1.93 - 7.40 ug/L, and his result was 0.126 ug/L. This month, the lab's reference value format
Hello everyone, Since my father’s surgery in 2022, his PSA levels have been undetectable. He receives a Zoladex injection every three months. Until this month, the reference range for total testosterone was 1.93 - 7.40 ug/L, and his result was 0.126 ug/L. This month, the lab's reference value format
goodgoal
in
Advanced Prostate Cancer
1 month ago
Eligard (Lupron) vs. Zoladex
One month ago, Doctor changed the drug from Eligard to Xtandi + Zoladex, It seems to work. The PSA went down from 2.25 to 0.18, and Testosterone went down to 23 from 1080. Why Eilgard not works and Zoladex work??? The are same drug which removes testosteron????? I thought Zoladex is used for women and
One month ago, Doctor changed the drug from Eligard to Xtandi + Zoladex, It seems to work. The PSA went down from 2.25 to 0.18, and Testosterone went down to 23 from 1080. Why Eilgard not works and Zoladex work??? The are same drug which removes testosteron????? I thought Zoladex is used for women and
Domas
in
Advanced Prostate Cancer
1 month ago
Three Big Challenges in Metastatic PC
Common themes that often emerge from the posts and responses on this particular hub of HU are intermittent and alternative therapy, the use of testosterone replacement and the various associated issues. In the latest GU podcast, co-hosts Dr Declan Murphy and Renu Eapen from [i]Peter MacCallum Cancer
Common themes that often emerge from the posts and responses on this particular hub of HU are intermittent and alternative therapy, the use of testosterone replacement and the various associated issues. In the latest GU podcast, co-hosts Dr Declan Murphy and Renu Eapen from [i]Peter MacCallum Cancer
marnieg46
in
Fight Prostate Cancer
1 month ago
Are my remaining symptoms perimenopause?
I've just done bloods after 13 weeks on a stable dose (150mcg T4 & 30mcg T3) which are as follows: TSH: 0.007 T4: 18.7 (12-22) 67% T3: 6 (3.1 - 6.8) 78% My vits are low but also stable since I quit gluten, I will work on them. Folate: 12.2 (>7) Vit D: 67 (50-250) Ferritin: 77 (30-150) Recent female
I've just done bloods after 13 weeks on a stable dose (150mcg T4 & 30mcg T3) which are as follows: TSH: 0.007 T4: 18.7 (12-22) 67% T3: 6 (3.1 - 6.8) 78% My vits are low but also stable since I quit gluten, I will work on them. Folate: 12.2 (>7) Vit D: 67 (50-250) Ferritin: 77 (30-150) Recent female
WitchingHour2point0
in
Thyroid UK
5 months ago
Hormone resuts in 6 year old boy
Hi, can anyone help me interpert these results please? Possible signs of early puberty.
TSH 3.1O mIU/L
(ref 0.6-4.84)
Free T4 16.3 pmol/L
(ref 12.5-21.5)
Testosterone 0.10 nmol/L
(ref <0.10) Thank you.
Hi, can anyone help me interpert these results please? Possible signs of early puberty.
TSH 3.1O mIU/L
(ref 0.6-4.84)
Free T4 16.3 pmol/L
(ref 12.5-21.5)
Testosterone 0.10 nmol/L
(ref <0.10) Thank you.
Aloha79
in
Thyroid UK
1 month ago
Osteoporosis meds
I've been on coumadin for almost 11 years for a heart valve replacement and Orgovyx for about 2 years and three months for metastatic prostate cancer. I just had my first bone scan in August 2022 and a second Dec. 8, 20203, and bone less is progressing. I've been using estradiol patches for about 10
I've been on coumadin for almost 11 years for a heart valve replacement and Orgovyx for about 2 years and three months for metastatic prostate cancer. I just had my first bone scan in August 2022 and a second Dec. 8, 20203, and bone less is progressing. I've been using estradiol patches for about 10
NewPotatoCaboose
in
Advanced Prostate Cancer
6 months ago
Best Private Endo and/or Private Thyroid Practitioner
I've been having T4 treatment for Hypothyroidism on NHS for a while, and I'm still feeling terrible. I have private health insurance coverage though, and I haven't used it. Also have low testosterone which I've been successfully treated for. Could someone PM me the best Endo on the private list?
I've been having T4 treatment for Hypothyroidism on NHS for a while, and I'm still feeling terrible. I have private health insurance coverage though, and I haven't used it. Also have low testosterone which I've been successfully treated for. Could someone PM me the best Endo on the private list?
Cushie29
in
Thyroid UK
1 month ago
My prostate journey and testosterone side effects
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
PT49
in
Prostate Cancer Network
1 month ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
1 month ago
Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
1 month ago
"8mm sclerotic focus noted T12 vertebrae within left superior acetabulum"
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
jjpeabody
in
Advanced Prostate Cancer
1 month ago
DHEA supplements
hi everyone I have recently tested for my DHEA and testosterone levels and they have come back as normal. Has anyone taken DHEA with normal testosterone n DHEA-s levels. Pls let me know. Thank you.
hi everyone I have recently tested for my DHEA and testosterone levels and they have come back as normal. Has anyone taken DHEA with normal testosterone n DHEA-s levels. Pls let me know. Thank you.
Shwet_16
in
Fertility Network UK
1 month ago
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