Could we get some idea of how many people are using Red Light Therapy for Parkinson's or other ailments .
What are you treating
What benefits you have received
Any negative aspects
How long you have been using it
What type of devise , hat, belt, stand up or wall mount panel
How powerful device, wattage or lumens
What was approx cost of device
How long each treatment is and how often
What parts of your body do you treat
comments and advice from users or ex users
Thanks much appreciated
I have been using the Wellred Coronet Duo for a few years. Like virtually everything I do, I can't be certain that it confers any particular benefit, but I find Dr. Catherine Hamilton of Wellred to be caring and persuasive. For me, the cost/potential benefit analysis was pretty straightforward. Click this link for more information:wellred.com.au/
Like Jim I'm a regular user, without being clear why, but whenever I resume after missing out (no room in travel luggage) I "feel better".You get used to looking odd...
The Wellred coronet did help my husband. It stopped his jerking in bed, which in turn improved my sleep. The CoroNase attachment, which works from the nose upwards gave him back his sense of taste and smell after many years.
Gwendoline
Gwendoline,
This is in line with the idea that RLT increases melatonin production and melatonin is considered as a frontline treatment for RBD and RBD is well known to cause high physical activity while sleeping in the form of swinging of the arms and legs and other sudden movements. RBD is quite common in PD, dementia and MSA.
sciencedirect.com/science/a....
Here is a relevant quote :
' RBD has emerged in recent years as one of the most promising markers of prodromal Parkinson's (References 2, 3). RBD is present in 25–58% of patients with Parkinson's disease and up to 90% of those with Dementia with Lewy Bodies (DLB) or Multiple System Atrophy (MSA). In a substantial proportion of these patients RBD onset occurs before motor symptoms. '
Melatonin derived in this manner comes without potential side effects that some people get from supplementing melatonin.
Art
Well, I guess not
3 replies , mediocre results
I thought it was more important ,especially with PD and expected positive results for the treatment of sore muscles , apparently not , good to know. saved some money. Sorry I took up your time.
Thanks to those that replied
Sorry Gym. You got half a story.Sue always makes an effort to find room to pack the coronet when we travel. That's because although I completely take it for granted when I have it, I am a miserable grumpy git who can't sleep when I don't have it.
I also have Well Reds "therapad" which Sue used extensively on her knee following surgery for a partial knee replacement, which she skiied on 4 months after surgery (see pic)
And I bought the coronet because for more than 20 years I have used an infrared cold sore gadget I find very effective
Hello WinnieThePoo ~ I was wondering when you don’t use the coronet how long before you start feeling miserable and have problems sleeping?
We just went on a 4-day holiday and didn’t take the coronet. Now this past week my HwP has had trouble with sleep ~ one night trouble getting to sleep and two mornings waking up around 4 and 3:15. Now I’m wondering if it could be the holiday from the coronet?
Have a fabulous day ~
Lizzy
I'm never miserable. Mrs WTP is delusional. I'm always lovely. Usually we are away for a week and it's probably half way through. And things are back to normal pretty quickly after we're back
Thank you for responding and had you can get back to normal.
Have a fabulous day!!
Let me tell you about a revolutionary device that has been around for thousands of years and has shown unparalleled results. It is by far the most powerful device on the market, is provided for free, works without power, has a lifetime warranty so no disposal fee, completely wireless and updates are always free! I have very good experiences with this ultimate source of light and energy, with a broad spectrum of radiation, including both visible light and infrared radiation. The sun!
So Gymsack if you are looking for the best photobiomodulation for PD, I recommend you go outside, enjoy the sun's rays and let Mother Nature do her work. 🌞
You can't beat natural 😉 healing. Good advice!
Good advise , but we have not had sun here all summer just clouds and rain and most people continued to take their winter doses of Vitamin D all summer this year. Some have gone south or will soon to spend the winter in Arizona or Florida but the health insurance costs are prohibiting that for many as well. I have an old sunlamp so I guess I will just keep using it.
Winter is too cold to venture far outside , although the coldest days is when we get the most sun and clear sky and the reflection off the snow is blinding. Those days you can tan nicely in an hour or two ice fishing or walking if the snow is not too deep .
🥵🌞
I have been using a helmet made in Tasmania once or twice a week for a few years …it’s difficult to no it’s effect but 7 years after diagnosis my neuro thinks I’m doing pretty good
My husband uses Symbyx PDcare wand and the helmet three times a week for 20 minutes. (He was able to participate in a study to give it a try first). Helps with energy, and fine motor skills (writing) including right hand tremor which is now almost always gone (except with high stress situations) and all symptoms seem to be getting a little better with time. (He is on Sinemet three times a day, too.) Again hard to sort for sure what is causing what since so many lifestyle changes were made (diet (healthy low-oil plant-based, dropped alcoholic and chips), exercise (boxing, daily walks), decreasing work/family stress, prioritizing sleep, B vitamins etc). But when off light therapy for a month this summer, he noticed energy waning, and it came back when he resumed. (He also meditates and listens to calming classical music during those 20 minutes of light therapy - all these changes probably help.) And it may be that setting an intention to heal, which is reinforced several times a day by all these lifestyle changes, makes the biggest difference.
I am just finishing up reading the Ultimate guide to Red Light therapy book. Trying to decide whether to splurge on a helmet, or maybe get a panel, or both. I'm also looking forward to the interview on Monday with the Symbyx person on No Silver Bullet. This post really helped me. I have had an increase in my right hand tremor since the last month or so. So it's encouraging to see it helps folks. Would love to hear more testimonials for this therapy.
Finally answers to use and understanding of Red Light Therapy?
Red Light Therapy - Only Useful for a year?
intranasal red light therapy (iN-PBMT) 
