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Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
TRIP .. Go or Stay
After 10 days in hospital with Pneumonia and 8 days at home I need to make a decision to go and see close family 4 hour car journeys away next Monday. I am nearly off prednisolone so sleep is finally improving. Being able to walk small distances. Defined getting my mojo back. On new mart regime with
After 10 days in hospital with Pneumonia and 8 days at home I need to make a decision to go and see close family 4 hour car journeys away next Monday. I am nearly off prednisolone so sleep is finally improving. Being able to walk small distances. Defined getting my mojo back. On new mart regime with
elanaoali
in
Asthma Community Forum
7 months ago
Does flu/covid affect sperm?
Hello, hope everyone is well. My question is the title really. My husband's had the flu or covid not sure, and is due to have a semen analysis to see if we can freeze any following the medication he is on. Thanks in advance x
Hello, hope everyone is well. My question is the title really. My husband's had the flu or covid not sure, and is due to have a semen analysis to see if we can freeze any following the medication he is on. Thanks in advance x
AP86
in
Fertility Network UK
5 months ago
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Fever for 5 weeks (viral meningitis)
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Roosvanderv
in
Meningitis Now
7 months ago
Covid has just hit our Thanksgiving plans!
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
PJBinMI
in
SHARE Metastatic Breast Cancer
7 months ago
Asthma
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
E44E44
in
Asthma Community Forum
2 months ago
When to restart Biologics after Covid Infection
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Intheend
in
NRAS
7 months ago
Mouth Ulcers and Taste issue
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
BigH63
in
ICUsteps
7 months ago
Flare up after ear infection
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
Bue2
in
Fibromyalgia Action UK
9 months ago
Night sweats worse and facial flushing after steroid injection
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
Gwelos
in
AF Association
7 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
2 months ago
Covid antibodies
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
jbzm
in
NRAS
7 months ago
Taste loss
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
Rich806
in
Acoustic Neuroma Support
9 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
8 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
7 months ago
Sharp pains in head - lupus related or something else?
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Treetop33
in
LUPUS UK
7 months ago
Issues sleeping, and other things
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
PW_R
in
Lung Conditions Community Forum
3 months ago
Bloody Covid can sod off!
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Washo66
in
British Heart Foundation
7 months ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
7 months ago
Pneumonia
Hi. I had my follow up chest x-ray for pneumonia 3 weeks ago and the good news is that it's come back clear. I'm really pleased but I'm still coughing at night and feel a bit breathless in the mornings. I told the doctor when he rang me with the results and he said, the infection has gone but lungs take
Hi. I had my follow up chest x-ray for pneumonia 3 weeks ago and the good news is that it's come back clear. I'm really pleased but I'm still coughing at night and feel a bit breathless in the mornings. I told the doctor when he rang me with the results and he said, the infection has gone but lungs take
Scooby1967
in
Lung Conditions Community Forum
7 months ago
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