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GPA flare, is it likely even if I only have 1 symptom
I was diagnosed with GPA in 2017, I have had 3 flares since initial diagnosis and although the symptoms have got milder each time, I always have the same symptoms - pain and loss of hearing in my ear, discomfort and blood in my nose, pain and stiffness in my finger joints and extreme fatigue. I regularly
I was diagnosed with GPA in 2017, I have had 3 flares since initial diagnosis and although the symptoms have got milder each time, I always have the same symptoms - pain and loss of hearing in my ear, discomfort and blood in my nose, pain and stiffness in my finger joints and extreme fatigue. I regularly
stuc
in
Vasculitis UK
9 months ago
Silly me
I didn't get the latest Covid jab because I was afraid it would 'set off' pmr again. So of course I got Covid...thought it was a cold. Felt grotty for four days and definitely on the mend now. I take choi kwang do and that room is where I might have picked it up (one room, one door and @ 18 bodies
I didn't get the latest Covid jab because I was afraid it would 'set off' pmr again. So of course I got Covid...thought it was a cold. Felt grotty for four days and definitely on the mend now. I take choi kwang do and that room is where I might have picked it up (one room, one door and @ 18 bodies
whitefishbay
in
PMRGCAuk
8 months ago
Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
7 months ago
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enlarged sore breasts
hi - rather embarrassing but here goes! Approximately 2 weeks ago I had to increase levothyroxine to 100 mcgs- breasts are now enlarged and sore. I can’t be pregnant- I happen to of had routine breast scan just prior to meds increase and no abnormalities detected. Has anyone else experienced this
hi - rather embarrassing but here goes! Approximately 2 weeks ago I had to increase levothyroxine to 100 mcgs- breasts are now enlarged and sore. I can’t be pregnant- I happen to of had routine breast scan just prior to meds increase and no abnormalities detected. Has anyone else experienced this
Purplepuffin
in
Thyroid UK
9 months ago
Leg Pain pt 3
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Alloagirl
in
Pain Concern
8 months ago
Fostair Nexhaler - Side Effects after 2 months?
Hi everyone, Hope you can advise. I had asthma when I was in my teens but then it got better, now in my thirties my ashtma decided to come back. It appeared one year, but I was able to manage it by running so no inhaler was almost unnecessary, but sometimes would take the brown. Then had COVID (mild
Hi everyone, Hope you can advise. I had asthma when I was in my teens but then it got better, now in my thirties my ashtma decided to come back. It appeared one year, but I was able to manage it by running so no inhaler was almost unnecessary, but sometimes would take the brown. Then had COVID (mild
Othacon
in
Asthma Community Forum
8 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
7 months ago
chronic knee pain, can anyone help!
lve had knee pain before, lve had my knee drained , steroid injection s , but the last 2weeks have been chronic pain never had it this bad before, l dread going to bed trying to walk when l get out of bed is almost impossible, l need a chair with wheels on to get to bathroom, it’s okay when I’m sitting
lve had knee pain before, lve had my knee drained , steroid injection s , but the last 2weeks have been chronic pain never had it this bad before, l dread going to bed trying to walk when l get out of bed is almost impossible, l need a chair with wheels on to get to bathroom, it’s okay when I’m sitting
Kate2628
in
NRAS
8 months ago
Caring for mum with severe copd
Been following for a while but this is my first post. Mums a young 76 and had copd for around 15 years, it started deteriorating in 2022 starting with infection after infection and then ending up in hospital for 5 days late July with respiratory failure type 2, with infection they thought, she was put
Been following for a while but this is my first post. Mums a young 76 and had copd for around 15 years, it started deteriorating in 2022 starting with infection after infection and then ending up in hospital for 5 days late July with respiratory failure type 2, with infection they thought, she was put
Oioisaveloy
in
Lung Conditions Community Forum
8 months ago
cellulitis
Hello, Has anyone had cellulitis? I have had it for just over a week. I have just completed a 2 day course of Ciprobay 500 and it didn’t work then I had a 2 day of Meronam 1gm tds by injection and I can tell it works good. Now, I need your advice if I can travel for a week with my oral antibiotic Augmentin
Hello, Has anyone had cellulitis? I have had it for just over a week. I have just completed a 2 day course of Ciprobay 500 and it didn’t work then I had a 2 day of Meronam 1gm tds by injection and I can tell it works good. Now, I need your advice if I can travel for a week with my oral antibiotic Augmentin
ANA4
in
CLL Support
9 months ago
Dad in hospital
My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat , biscuits, fortunately he turned them downHe is in a room on his own and needs help to wash but they say they are short staffed and can't help. They
My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat , biscuits, fortunately he turned them downHe is in a room on his own and needs help to wash but they say they are short staffed and can't help. They
MyDad1
in
PSP Association
4 months ago
Flare after Shingrix shingles vaccine?
Hi Everyone, I received my second (recombinant) shingles vaccine yesterday. The first one caused a mild fever and malaise. This time my finger joints are stiff and pretty painful. Has anyone else had something similar and, if so, how long did it last? Thanks so much
Hi Everyone, I received my second (recombinant) shingles vaccine yesterday. The first one caused a mild fever and malaise. This time my finger joints are stiff and pretty painful. Has anyone else had something similar and, if so, how long did it last? Thanks so much
HGCCNM
in
NRAS
4 months ago
chest infection symptoms
hi, I have a diagnosis of bronchiectasis which doesn’t usually cause me any problems. I’ve just had a cold which has left me with a slight cough but nothing major. However, after starting to feel better I feel like my chest is tight and have found myself getting breathless when walking my dog. I’ve
hi, I have a diagnosis of bronchiectasis which doesn’t usually cause me any problems. I’ve just had a cold which has left me with a slight cough but nothing major. However, after starting to feel better I feel like my chest is tight and have found myself getting breathless when walking my dog. I’ve
disney75
in
Lung Conditions Community Forum
4 months ago
How effective is fenofibrate for itch?
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
Carly92
in
PBC Foundation
9 months ago
Schwannomatosis NF3 and AZ Covid 19 vaccines finally out of system after 3 years
Good news for a change? My left arm has been tingling for about the last 6 weeks, shaking, even in sleep I have to put it under the pillow, so I can sleep, this afternoon watching TV, 1st Feb, lower left arm slightly warm twitching as per usual, I lost patience with it and severely hit back of hand
Good news for a change? My left arm has been tingling for about the last 6 weeks, shaking, even in sleep I have to put it under the pillow, so I can sleep, this afternoon watching TV, 1st Feb, lower left arm slightly warm twitching as per usual, I lost patience with it and severely hit back of hand
Adlon57
in
Healthy Evidence
8 months ago
Flu A/scarred lungs/coughing
I was taken in an ambulance to hospital from the GP surgery on 14th February as my oxygen was so low. By 15th February at 2am I was put to sleep. I had flu A, a chest infection, sepsis and pneumonia. I had to have 3 blood transfusions and dialysis while I was asleep for 3 weeks. I was given
I was taken in an ambulance to hospital from the GP surgery on 14th February as my oxygen was so low. By 15th February at 2am I was put to sleep. I had flu A, a chest infection, sepsis and pneumonia. I had to have 3 blood transfusions and dialysis while I was asleep for 3 weeks. I was given
Dolphinsandwales
in
ICUsteps
4 months ago
RSV vaccine?
Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid last September and hoping that immunity is going to last awhile. As always, so appreciate the advice on this great site.
Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid last September and hoping that immunity is going to last awhile. As always, so appreciate the advice on this great site.
Spartans1
in
PMRGCAuk
8 months ago
anyone have achy legs
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
Corolla1
in
Restless Legs Syndrome
8 months ago
Covid free test kit for - Certain Vulnerable People from the Government website link.
Covid free test kit for - Vulnerable People from Government. Good afternoon everyone. Can someone tell me please when the Government stopped send out Covid test kit for vulnerable people? I used to qualify for these and have a box sent to me when requested because I have no immune system. The link
Covid free test kit for - Vulnerable People from Government. Good afternoon everyone. Can someone tell me please when the Government stopped send out Covid test kit for vulnerable people? I used to qualify for these and have a box sent to me when requested because I have no immune system. The link
Joseph260268
in
Lung Conditions Community Forum
8 months ago
Thyroid/post viral fatigue/perimenopause/CFS - help!
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Dahliasanddaisies
in
Thyroid UK
8 months ago
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