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Sezary Syndrome.
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings? I greatly
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings? I greatly
Champlain
in
CLL Support
19 days ago
Iodine and Povidone - A Chemistry Lesson
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
Over the years, we have seen many mentions of povidone-iodine. This video is the first time I have ever come across a proper explanation as to why povidone-iodine is chosen! It then continues with its aim of extracting pure iodine from povidone-iodine. The video could be very boring if you are
helvella
Thyroid UK
in
Thyroid UK
19 days ago
negative pressure in both ears
Hello everyone Has anyone been diagnosed with negative pressure in their ears? I had an appointment with the audiologist recently and she said I had negative pressure in both my ears. I have hearing loss in both ears and tinnitus in my left ear, sometimes in my right ear. I am waiting to be fitted
Hello everyone Has anyone been diagnosed with negative pressure in their ears? I had an appointment with the audiologist recently and she said I had negative pressure in both my ears. I have hearing loss in both ears and tinnitus in my left ear, sometimes in my right ear. I am waiting to be fitted
Choralmusic
in
Tinnitus UK
20 days ago
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tinnitus - get your hearing aids insured!!
while out on a regular five mile hill walk two weeks ago high up on the Quantocks, with the weather windy and cold then warmer and still, my hat was on and off every ten mins. By the time I reached the car I noticed that one of the aids was no longer there. It’s wasnt in the scarf, down my top or in
while out on a regular five mile hill walk two weeks ago high up on the Quantocks, with the weather windy and cold then warmer and still, my hat was on and off every ten mins. By the time I reached the car I noticed that one of the aids was no longer there. It’s wasnt in the scarf, down my top or in
Bridiecat
in
Tinnitus UK
20 days ago
mucus
Hi, I've had mucus in my inner ear for around 7 years which causes tinnitus,I can keep cracking it by yawning but makes the tinnitus even louder, been to doctors had MRI scan but can't do anything and don't seem that interested,I was wondering if I burst my ear drum it would let the fluid out or would
Hi, I've had mucus in my inner ear for around 7 years which causes tinnitus,I can keep cracking it by yawning but makes the tinnitus even louder, been to doctors had MRI scan but can't do anything and don't seem that interested,I was wondering if I burst my ear drum it would let the fluid out or would
Manmax
in
Tinnitus UK
20 days ago
Tinnitus
I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus is getting worse and was reading up on it. So it seems it can affect people with auto immune diseases. I am taking 20mg methotrexate each week and these drugs are known to increase symptoms of tinnitus. Does anyone else have
I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus is getting worse and was reading up on it. So it seems it can affect people with auto immune diseases. I am taking 20mg methotrexate each week and these drugs are known to increase symptoms of tinnitus. Does anyone else have
LuckyLucy007
in
Scleroderma & Raynaud's UK (SRUK)
20 days ago
Change in inhalers
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
spookylou
in
Asthma Community Forum
21 days ago
Thank you
I just wanted to thank everyone who took the time to reply to my previous post about my balance issues. It was very overwhelming having so many replies and as i work a 12 hour shift and have brain fog and my concentration is non existant it's taken me this long to read all the replies. I had my drs
I just wanted to thank everyone who took the time to reply to my previous post about my balance issues. It was very overwhelming having so many replies and as i work a 12 hour shift and have brain fog and my concentration is non existant it's taken me this long to read all the replies. I had my drs
catpurple7
in
Thyroid UK
22 days ago
denosumab
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
RosettaClapp
in
CLL Support
23 days ago
Hearing loss
Hi all, I've had tinnitus for many years. It was mild for a long long time, so it was totally bearable, and just meant I didn't hear the higher tones of birdsong or someone's voice in a particularly noisy room. But in the last couple of years it's suddenly gotten much worse. A shrill ringing in one
Hi all, I've had tinnitus for many years. It was mild for a long long time, so it was totally bearable, and just meant I didn't hear the higher tones of birdsong or someone's voice in a particularly noisy room. But in the last couple of years it's suddenly gotten much worse. A shrill ringing in one
NHMaria
in
Tinnitus UK
25 days ago
New to Tinnitus
Hi, I'm new to Tinnitus. I have a burst ear drum and have finished a course of 7 days of antibiotics. The sound is constant and I can't sleep. I have locked myself away for a week now and haven't left home because I feel a bit scared and anxious. I know I need to try getting back to a normal day life
Hi, I'm new to Tinnitus. I have a burst ear drum and have finished a course of 7 days of antibiotics. The sound is constant and I can't sleep. I have locked myself away for a week now and haven't left home because I feel a bit scared and anxious. I know I need to try getting back to a normal day life
Tinny2024
in
Tinnitus UK
26 days ago
Inflamed ear drum the cause of pulsatile tinnitus?
So today I had a visit to my GP to see what to do about my pulsatile tinnitus in right ear (happens few times a day, for 20-30min). And when she checked my ears she saw that my sound tunnel in left ear is a bit red but my right ear drum is red and inflamed. I was give antibiotics and some ear drops
So today I had a visit to my GP to see what to do about my pulsatile tinnitus in right ear (happens few times a day, for 20-30min). And when she checked my ears she saw that my sound tunnel in left ear is a bit red but my right ear drum is red and inflamed. I was give antibiotics and some ear drops
NewOne2023
in
Atrial Fibrillation Support
26 days ago
Tinnitus and Ear Wax
HiI have had tinnitus for 6 years now still no reason why as I have no hearing loss but know it started same time as menapause so was wondering if everyone tried HRT and if it helped? It is in center of my head which I can deal with but I keep getting build of wax in my left ear so my tinnitus moves
HiI have had tinnitus for 6 years now still no reason why as I have no hearing loss but know it started same time as menapause so was wondering if everyone tried HRT and if it helped? It is in center of my head which I can deal with but I keep getting build of wax in my left ear so my tinnitus moves
FriSoph
in
Tinnitus UK
26 days ago
Spirulina and Chlorella
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Maple1981
in
NRAS
28 days ago
MRI results…how long to wait?
Hi guys, hope you’re all okay. So I had my pelvic MRI scan on Monday, it was awful as I was in the scanner for an hour and 10mins 😥. I stayed strong and got through it though as I know it was important. Just wondered how long you’ve had to wait for results (with nhs). My letter said up to six weeks.
Hi guys, hope you’re all okay. So I had my pelvic MRI scan on Monday, it was awful as I was in the scanner for an hour and 10mins 😥. I stayed strong and got through it though as I know it was important. Just wondered how long you’ve had to wait for results (with nhs). My letter said up to six weeks.
endowarrior12
in
Endometriosis UK
29 days ago
pigment dispersion syndrome
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
Hi lovely people 😀 I have EDS, not lupus, but many of my symptoms are similar I’ve recently been dxd with pigment dispersion syndrome by an ophthalmologist at our regional eye hospital. It happens when pigment from the iris sheds onto other parts of the eye, causing inflammation and vision problems
MEGS53
in
LUPUS UK
29 days ago
New Sufferer advice
Hi Everybody My name is Daniel I have had to call out for some help or advice from this community please. I had never thought something like this would start to completely alter my life. I woke up one morning.... and had this "yinggggggg" sound in my left ear... it was annoying but i just thought
Hi Everybody My name is Daniel I have had to call out for some help or advice from this community please. I had never thought something like this would start to completely alter my life. I woke up one morning.... and had this "yinggggggg" sound in my left ear... it was annoying but i just thought
dannyboy1973
in
Tinnitus UK
30 days ago
Next instalment. I thought I`d better do this now before I start working.
In fact, I don't remember ever seeing my dad drunk, except for one occasion when he had had, perhaps, an excess of drink. We were on a family holiday in Ireland, in a horse drawn caravan, which in itself was an experience, especially for the horse as we had no prior experience whatsoever of the care
In fact, I don't remember ever seeing my dad drunk, except for one occasion when he had had, perhaps, an excess of drink. We were on a family holiday in Ireland, in a horse drawn caravan, which in itself was an experience, especially for the horse as we had no prior experience whatsoever of the care
LissacFrance
in
Lung Conditions Community Forum
1 month ago
Short Synatchen Test
Quick question, could someone help me with some vague results from the hospital. Have been taking Pred for a long time but with the help of Methotrexate injections I am down to 3 mgs (hurray). I had a short synatchen test a couple of weeks ago and Rheumatology Nurse rang me and babbled very quickly
Quick question, could someone help me with some vague results from the hospital. Have been taking Pred for a long time but with the help of Methotrexate injections I am down to 3 mgs (hurray). I had a short synatchen test a couple of weeks ago and Rheumatology Nurse rang me and babbled very quickly
Hollybee21
in
PMRGCAuk
1 month ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
1 month ago
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