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struggling - waiting to hear back from gynae
Hi all, I hope you’re all doing ok. I have finally after 2.5 years had a referral to gynaecology, which I had to fight really hard for after having my symptoms played off time and time again as IBS and other things. I really struggle with back/abdo/groin pain and have urinary and bowel issues. I’ve
Hi all, I hope you’re all doing ok. I have finally after 2.5 years had a referral to gynaecology, which I had to fight really hard for after having my symptoms played off time and time again as IBS and other things. I really struggle with back/abdo/groin pain and have urinary and bowel issues. I’ve
eloisejm
in
Endometriosis UK
11 months ago
Rheumatoid Meningitis Recovery
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
Meningitis Now
1 year ago
Knee and Thigh pain
A question for all you wonderful experts. Out of the blue I developed soreness and stiffness in both knees and outside of left thigh. Painkillers and nsaids don't do anything for it. Sitting down fine but can't put much weight on them. Have app with doctor next week but in the meantime I wondered if
A question for all you wonderful experts. Out of the blue I developed soreness and stiffness in both knees and outside of left thigh. Painkillers and nsaids don't do anything for it. Sitting down fine but can't put much weight on them. Have app with doctor next week but in the meantime I wondered if
daisylazy
in
PMRGCAuk
1 year ago
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Shingles vaccine
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
My wife was refused the shingles vaccine by her GP as she wasn't old enough (not over 70) we asked for it a year after she had shingles which she really suffered from and still has a bit of discomfort from. Has any MPN patients been refused because of their age?
jointpain
in
MPN Voice
1 year ago
athletes foot ?
I’ve always had problem with my pinky toe as it bends under my other toe. It’s never been this bad. Normally when it’s sore and itchy I apply athlete foot cream and it goes within a few days as sweat gets trapped easily. I’ve been using athletes foot cream for 3 weeks now and I don’t think it is that
I’ve always had problem with my pinky toe as it bends under my other toe. It’s never been this bad. Normally when it’s sore and itchy I apply athlete foot cream and it goes within a few days as sweat gets trapped easily. I’ve been using athletes foot cream for 3 weeks now and I don’t think it is that
Ladybitsandbobs
in
NRAS
1 year ago
STILL ON THE BED, STILL TRYING TO DEAL WITH OUR FLAILING MED SYSTEM - NO ANSWERS
Ok. Been putting off writing because it's going to be long. Rheumy still hasn't gotten back to me on CT scan done July 6. Hips screaming. Shoulders tolerable. Why has she not? She is only in the clinic 1 day/week now. Next appt. She set for me is Oct. 3! This from their nursing line who advised me to
Ok. Been putting off writing because it's going to be long. Rheumy still hasn't gotten back to me on CT scan done July 6. Hips screaming. Shoulders tolerable. Why has she not? She is only in the clinic 1 day/week now. Next appt. She set for me is Oct. 3! This from their nursing line who advised me to
Missus835
in
PMRGCAuk
1 year ago
LDN RT for Medical Professionals
25% off with the code news34. Patients message me for discounted places. Dr Darin Ingels will be recording a presentation for the LDN 2023 Conference on: Low Dose Naltrexone (LDN) and Lyme Disease. In-person Tickets, Livestream, all give free access to the Livestream recordings. www.ldn2023.com #ldn
25% off with the code news34. Patients message me for discounted places. Dr Darin Ingels will be recording a presentation for the LDN 2023 Conference on: Low Dose Naltrexone (LDN) and Lyme Disease. In-person Tickets, Livestream, all give free access to the Livestream recordings. www.ldn2023.com #ldn
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Rheumatologist refuse to believe I have PMR.
They choose not to provide me any more prednisone. I have been off for a week now. Many of the physical symptoms have returned since being off. I was hoping the increase of systematic inflammation was due to a chronic tooth infection, and not to say it may not have influenced, but I cannot deny the fact
They choose not to provide me any more prednisone. I have been off for a week now. Many of the physical symptoms have returned since being off. I was hoping the increase of systematic inflammation was due to a chronic tooth infection, and not to say it may not have influenced, but I cannot deny the fact
SMH4CRNA
in
PMRGCAuk
1 year ago
Systemic enzymes
Does anyone know if systemic enzymes, like Wobenzym, are bad for those with kidney disease. They are to reduce joint pain and inflammation, but I am wondering if they are as bad as nsaids. I have been taking some every day for years, but now I am 3a kd. Hard to find any answers to that question
Does anyone know if systemic enzymes, like Wobenzym, are bad for those with kidney disease. They are to reduce joint pain and inflammation, but I am wondering if they are as bad as nsaids. I have been taking some every day for years, but now I am 3a kd. Hard to find any answers to that question
peggykd
in
Kidney Disease
1 year ago
lupus and shingles
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Hey guys, I hope you’re all keeping safe and well. Just wondering if anyone has any tips or advice on how to manage having lupus and shingles! I got diagnosed on Wednesday and it’s safe to say I’m suffering a bit. Is there anything I should be looking out for? Avoiding? Thanks in advance!
Krishny18
in
LUPUS UK
1 year ago
OK, I'm starting from the beginning!
Right, after many attempts at restarting at week 6 and repeatedly going off the boil, I have decided to go right back to square one and start from the very beginning (a very good place to start 😉). Please may I ask you all to keep me accountable? I can do it, it's just a question of getting my mojo
Right, after many attempts at restarting at week 6 and repeatedly going off the boil, I have decided to go right back to square one and start from the very beginning (a very good place to start 😉). Please may I ask you all to keep me accountable? I can do it, it's just a question of getting my mojo
Over60sRunner
Graduate
in
Couch to 5K
1 year ago
pred and tetanus shot??
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
I will be speaking to a doctor at an emergency clinic but never confident they are well enough informed about the way PMR patients are dosed on pred. I would so appreciate the wisdom of this community. I got a cat scratch today...my fragile skin readily disintegrate...small amount of bleeding. Is
agingfeminist
in
PMRGCAuk
1 year ago
Shingles vaccine
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
My husband has been called in for a shingles vaccination. Am i correct that he should ask for a non live vaccine as the love vaccine poses a risk to me as I am immune suppressed? I seem to remember hearing this somewhere. Still struggling to get answer fro my nurse advice line. Thanks
Gilliancheche
in
NRAS
1 year ago
Variable Asthma and pain medication.
Good day to everyone, I hope you are all taking good care, especially with the warm weather! I would like to ask people from the community about pain medication and Asthma. I have a variable asthma of 5%, diagnosed at the same time as copd. 6 weeks ago I ended up in A&E with severe pain in my leg
Good day to everyone, I hope you are all taking good care, especially with the warm weather! I would like to ask people from the community about pain medication and Asthma. I have a variable asthma of 5%, diagnosed at the same time as copd. 6 weeks ago I ended up in A&E with severe pain in my leg
Shalz
in
Lung Conditions Community Forum
1 year ago
cbd oil
I also have RA which seems controlled as long as the weather is good. I can't take nsaids..Tylenol does nothing..I was wondering if anyone takes or uses cbd oil and if it was ok with chronic kidney disease?
I also have RA which seems controlled as long as the weather is good. I can't take nsaids..Tylenol does nothing..I was wondering if anyone takes or uses cbd oil and if it was ok with chronic kidney disease?
tresa56
in
Kidney Disease
1 year ago
I went to the neph doctor for the 1st time...ugh...a couple of questions
She said I have stage 3a chronic kidney disease...The only thing she based it off of was egfr...I am not sure if other things need to be considered? She is sending me for a ultrasound and said to come back in 6 months and didnt seem very informative or concerned...Is this normal? How often would
She said I have stage 3a chronic kidney disease...The only thing she based it off of was egfr...I am not sure if other things need to be considered? She is sending me for a ultrasound and said to come back in 6 months and didnt seem very informative or concerned...Is this normal? How often would
tresa56
in
Kidney Disease
1 year ago
MinnadeParis
Hi, I want som advice from the community. What do you do for pain? My neph said Tylenol only, which does nothing, and NO NSAIDS. I have sciatica, occipital neuralgia, and upper back pain, and some arthritis. I went to a Stretch Lab, thinking that might help. I use heat, and use my TENS. Everything
Hi, I want som advice from the community. What do you do for pain? My neph said Tylenol only, which does nothing, and NO NSAIDS. I have sciatica, occipital neuralgia, and upper back pain, and some arthritis. I went to a Stretch Lab, thinking that might help. I use heat, and use my TENS. Everything
MinnadeParis
in
Kidney Disease
1 year ago
Treatment Options??
Due to other underlying medical conditions & disabilities I am unable to go on any hormonal medication (oestrogen or progesterone). I can't take NSAIDS. I've had scans etc and had laparoscopy surgery for the endo but ablation not excision due to other medical conditions. I am in more pain than ever now
Due to other underlying medical conditions & disabilities I am unable to go on any hormonal medication (oestrogen or progesterone). I can't take NSAIDS. I've had scans etc and had laparoscopy surgery for the endo but ablation not excision due to other medical conditions. I am in more pain than ever now
Cats1311
in
Endometriosis UK
1 year ago
CLOTTED MENSTRUAL CYCLE EVERY MONTH?
Before I was diagnosed last year I began getting clotted periods, I would get maybe one day or two of normal non-clotted but very bright red blood. It would then darken but only slightly and then it was mainly stringy clots. I currently have to use a Super+ tampon PLUS Depends each cycle just to so I
Before I was diagnosed last year I began getting clotted periods, I would get maybe one day or two of normal non-clotted but very bright red blood. It would then darken but only slightly and then it was mainly stringy clots. I currently have to use a Super+ tampon PLUS Depends each cycle just to so I
ICONICSOAPERY
in
Adenomyosis Advice Association
1 year ago
shingles
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
Shaza123
in
PMRGCAuk
1 year ago
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