Hi, I want som advice from the community. What do you do for pain? My neph said Tylenol only, which does nothing, and NO NSAIDS. I have sciatica, occipital neuralgia, and upper back pain, and some arthritis. I went to a Stretch Lab, thinking that might help. I use heat, and use my TENS. Everything feels good for about 1/2 hour. I’m going to try acupuncture for back and occipital, but I’d like to know how everyone deals with everyday pain.
Thank you. Love this community
I have psoriatic arthritis through out my body. I have a monthly infusion to keep the inflammation at bay. But for the last year, it has progressively stopped working. Now the last week before my next infusion is awful. The only thing I can take is Tylenol, which I do sometimes to sleep. I try to stay active to keep my joints moving. But then I end up in pain at night. I do deep breathing and meditation sometimes at night. But truthfully, I just live with it. I use a cane if I am walking for any distance because my ankle will give out. And I rest more.
I do similar things and use a cane if walking along distance, especially if walking up a hill. It takes pressure off my ankle.
I have 2 kinds of neuropathy and been advised to take Tylenol also which helps some. I use Salonpas patches too and they help the pain.
I have chronic random pain and Tylenol doesn't work for me all that well either. Doctors can't seem to find the answer to what will fix it. I just suffer but here are some things that might help. Yoga, but find one who is a yoga therapist, some poses are cat cow and cobra. They can help with sciatica. Also, massage if you can find a good one, one who goes outside the box and does myofascial relief, Bowen therapy and maybe a bit of reiki thrown in for good measure. Hot tubs. Chiro, I tried acupuncture once and it didn't help but it was a different matter. Meditation to help with pain. Lots of good ones on insight timer. To be honest I'm at the point that I would take other pain relievers just to stop the pain. Kidneys be damned.
thank you for the reply and advice. I do the lodicane patches if I’m going to be out for a while I’ll be on an 11 hr flight later this month and will look like a mummy with all the patches. I know exactly how you feel about “kidneys be damned). I was interested in how the other ppl took care of pain. Some very good suggestions.
Well I’m off to acupuncture. It has worked for me sometimes.
🙏🙏🙏🙏🙏🙏
I see a chiropractor and she sends out a daily email about "stuff". Well, today's was about sciatica and it talked about nerve flossing. Have you heard of this? I haven't. Anyway, I thought I would pass it on. I was going to copy and paste it but that function was disabled.
thank you I’ll look it up.🙏🙏🙏🙏🙏
There is something that works better than acupuncture called dry needling. Its not available everywhere. I had it in NC and it worked miracles. now in FL I can't find it, I don't think k its been approved
I've heard of that but never tried it.
yes. Here it is called IMS. I have it done every other week and massage the weeks I don’t have IMS.
I can have dry needling done at Physical Therapy. It really helps
I use aspercreme Lidocaine patches, and there is a warning on the package that says not to use more than one patch at a time.
Do you intake dairy? I saw a post that dairy gives back pain. The person stated she walking with a cane and cut dairy out no more pain no more cane. It bothers me and my pain is worse if I have dairy.
I have almost completely cut out dairy and feel no difference
I have IBS so have not done dairy in over 10 yrs. Didn’t have any pain back then nor CDK. Whatever 🤷♀️
With CKD have learned moderation is important. I am at CKD 3.
I think Gabapentin/Pregablin is something used for pain? I am taking extended release Lyrica, but I take it for RLS not pain.
I use pregablin for pain 75mg twice a day.
Does it help? any side effects?
I have not had any side effects from gabapentin. I take it for neuropathy only.
Lyrica is pregabalin. Almost the same
Medical cannabis helps a lot for my sciatic pain, and yoga for back pain from scoliosis, disk degeneration, and arthritis
I also use medical marijuana. It's the only thing that helps with pain, nausea and anxiety.
I use the medicinal at night. And I use the CBS cream during the day when nothing seems to be working.
Thank You
Ppl should mind their own biz…..see this
washingtonpost.com/dc-md-va...
It’s from the WAPO. Sometimes you have to be considerate of your fellow humans and their health.
Voltaren helps
Unfortunately, Voltaren is an NSAID. ☹️
True, but I read a few months ago that it doesn't affect t the kidneys the same as oral NSAIDs
my neph said I could use a topical analgesic like Voltaren. Unfortunately IMS on its own is not legal in my state or must be practiced by an acupuncturist certificated in procedure. I’ll ask my acu if they provide this service
Thanks again for all the advice
🙏🙏🙏🙏🙏🙏🙏🙏
Do NOT use voltaren!! It has Ibuprofen in it and kills your kidneys.
My doctor said that the nsaid in the cream doesn't affect the kidneys
My doctor says it does.
my neph said same thing.
I have no kidneys. I am allowed ibuprofen. I do take fentanyl patches and Norco. They've also added lidocaine patches and tens unit. I have 10-12 compression fractures in spine and scoliosis due to bone loss. I also take gabapentin for neuropathy and newly diagnosed PAD.Blessings
The only drugs I can get are Tylenol 3. It doesn't help much. I've had avascular necrosis - bone death in my knees for 30 years from IV prednisone. I also have significant pain from my ileostomy and parastomal hernia. My flesh is always burning. I just got two new diagnosis codes, osteoarthritis in my thumb and facet joint deterioration in my spine. Frankly I'm bitchy all the time. People just think I'm bitchy, they don't know I have constant pain.
CKD & autoimmune disease
what does kidney pain feel like?
Nephrologist doctor with CKD... what do you think?
I have stage three kidney disease but have never been on a blood pressure pill recently. 
Degenerative disc disease, degenerative joint changes, lupus and CKD
