Nephrogenic diabetes insipidus - Diabetes Research...

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Nephrogenic diabetes insipidus

Chocolate1970 profile image
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Hi folks , I have nephrogenic diabetes which was caused by taking lithium and I know this isn't really the right chap group as its not related to diabetes as the name suggests.

But if anyone out there has this condition aswell or any kind of knowledge of it can swapping different brands of desmopressin which I've been prescribed for DI

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Chocolate1970
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7cApO-3F profile image
7cApO-3F

Hello,

I am so sorry you have developed Diabetes due to lithium. To be honest, I didn’t know about this side effect of lithium. However, I am all too aware that lithium causes CKD (Chronic Kidney Disease). I stopped the medication when I knew what had happened to me. I didn’t consult the doctor.

It is a medication that is known to cause CKD and I am appalled that it is still being used.

Take care of yourself and I wish you the best health in the future.

Unfortunately prescribed medication can cause VERY unwanted side effects. I do hope in the future the whole of a patients well-being is considered.

Regards

Chocolate1970 profile image
Chocolate1970 in reply to7cApO-3F

Thanks very much for your kind reply. Yes, I was told that I had CKD level 3 at one point which I'm glad to say has improved due to being off lithium. I did have a really bad kidney infection once when I was in a psychiatric hospital with extra meds. I'd been prescribed at one point. They had to ask a general doctor to assess me because they thought I might have to be moved to another part of the hospital to be treated on a general ward as I was that unwell. So, yes psych. meds. can really muck up your body.

The nephrogenic diabetes insipidus isn't actually diabetes in itself . I was drinking up to 7 litres a day cause of the lithium and the kidneys can't concentrate the urine and you just drink , pee , drink pee but yeah I have to watch what meds I take due to damage to the kidneys. Defo can't take ibuprofen.

I am.glad that you are off lithium now ,are you taking anything else I was put on sodium valproate instead which also has loads of side effects and the weight just piled on .

I have managed to reduce the dosage to 500mg in the morning which isn't a therapeutic range but it seems to work for me . And I have now have made a connection with my sporadic moods being down to the fact that my thyroid meds. keep being changed.

But, that's another story.

Hope you're managing to keep well off the lithium.

Take care

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