Hi I'm looking for other people who suffer from nephrogenic diabetes insipidus caused by taking lithium for years .
As I've posted recently pharmacy keeps swapping brands of levothyroxine well they keep swapping my brands of desmopressin which is also a hormone .
Is it ok to keep swapping brands with it being a hormone aswell.
I was having this discussion with my daughter and she was told that if she's given different brands of her oral contraceptive to look out for any changes in mood and side effe ts
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Chocolate1970
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Sorry you've not had any replies to your question Chocolate1970. I'm replying so that your post gets back into the news feed, in case anyone can help. 😊
Thanks for that , I've had a couple of people reply . I think that it's something that people that are taking lithium should be aware of and not to listen to cpns when they are told all the excessive drinking is habit forming ,like I was told . As diabetes insipidus is a very rare condition those that are on lithium and present symptoms of excessive thirst and urination should be tested for this .
I suggest that most especially in your case, switching is a bad idea.
The link takes you to my UK medicines document. Appendix F has some details about what you prescriber can, and should, do to ensure you always get the same make.
Afraid I have zero idea about desmopressin - but there are a lot of products! I note at least one product identifies that it contains aspartame - which is important for some.
The UK document contains up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and also liothyronine available in the UK. Includes injectables and descriptions of tablet markings which allow identification. Latest updates include all declared ingredients for all UK products and links to Patient Information Leaflets, Dictionary of Medicines and Devices (dm+d), etc. PLUS how to write prescriptions in Appendix F.
Also includes links for anti-thyroid medicines (but not product details).
Thanks for your reply , once again it was very helpful as your reply regarding my levothyroxine before helped aswell .I can't believe how many different types of desmopressin there are . As it too is a hormone if they keep swapping brands of this and levothyroxine no wonder I'm all over the place.
I have asked my pharmacist to stick to the same brands for both meds and I was told that they have made my weekly tray up way in advance cause the assistant that does it is going on holiday which suggests to me they're getting more than a 1 month prescription from my gp .
But on a brighter note I am glad to say that I'm feeling so much better today, well ain't that a surprise, not !!!! So yes defo down to the pharmacy keep changing brands .
The vencamil aristo is defo the one which suits me best as I've had no bloating and diarrhoea. And I didn't know that it didn't contain lactose and gluten .
So I've learnt so much talking to people on this chat .
And also learnt that it's so important to take levothyroxine on an empty stomach with no other meds , wait at least half an hour before food and do not have caffeine for at least 2 hours after taking .
Which I wasn't doing before , I'd take it with all my other meds and sometimes with a glass of coke so at least now when I get my next thyroid blood test my endocrinologist will have a proper blood result as last time she said she said i might need it increased but she never cause I hadn't been taking it correctly and it could alter the true levels .
Virtually no UK licensed medicines contain gluten. And the few that contain any wheat derivatives are usually regarded as gluten-free but could be a problem for those with non-Coeliac wheat sensitivity.
Arginine vasopressin deficiency (AVP-D) occurs when there's not enough AVP in the body to regulate urine production.
AVP-D is the most common type of diabetes insipidus.
It can be caused by damage to the hypothalamus or pituitary gland – for example, after an infection, operation, brain tumour or head injury.
In about 1 in 3 cases of AVP-D there's no obvious reason why the hypothalamus stops making enough AVP.
Arginine vasopressin resistance (AVP-R)
Arginine vasopressin resistance (AVP-R) occurs when there's enough AVP in the body but the kidneys fail to respond to it.
It can be caused by kidney damage or, in some cases, inherited as a problem on its own.
Some medications, particularly lithium (used to help stabilise mood in some people with specific mental health conditions, such as bipolar disorder), can cause AVP-R.
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