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Confused about hospice care
Hi,sorry for long post.my mum has been admitted to hospice for heart failure.She was referred by cardiology who said she had weeks to live.This was in fact weeks ago and she is very much still here and seems to be improving.They are now looking for a bed in a nursing home.I am concerned about her meds
Hi,sorry for long post.my mum has been admitted to hospice for heart failure.She was referred by cardiology who said she had weeks to live.This was in fact weeks ago and she is very much still here and seems to be improving.They are now looking for a bed in a nursing home.I am concerned about her meds
mitsy
in
Heart Failure Support
2 months ago
My 80 year-old dad with MPCa, broke his leg and now seems to be giving up. Advice on best anti-anxiety meds desperately needed.
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Lemonpower
in
Advanced Prostate Cancer
3 months ago
Palliative care study
This study highlights the benefits and efficacy of getting involved with palliative care sooner rather than later and using telehealth where possible: https://www.practiceupdate.com/c/167106/32/1/?elsca1=emc_conf_ASCO2024Post-6&elsca2=email&elsca3=practiceupdate_onc&elsca4=202452_ASCO2024Post-6&elsca5
This study highlights the benefits and efficacy of getting involved with palliative care sooner rather than later and using telehealth where possible: https://www.practiceupdate.com/c/167106/32/1/?elsca1=emc_conf_ASCO2024Post-6&elsca2=email&elsca3=practiceupdate_onc&elsca4=202452_ASCO2024Post-6&elsca5
Shams_Vjean
in
Advanced Prostate Cancer
3 months ago
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Dad diagnosed with GBM grade 4
Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays a few times a year abroad to a man who sits on the sofa refusing to go out or do anything. He has got a healthy appetite but is eating way too
Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays a few times a year abroad to a man who sits on the sofa refusing to go out or do anything. He has got a healthy appetite but is eating way too
KerriC05
in
Glioblastoma Support
3 months ago
Being Mortal Book by Atul Gawande
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
lgutman
in
Advanced Prostate Cancer
3 months ago
Overcoming Pneumonia Susceptibility
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
TuffNuttoCrack
in
Advanced Prostate Cancer
3 months ago
Adrenal Insufficiency and reducing steroid inhaler
Hi,I was diagnosed with adrenal insufficiency last year and have been stable on 20mg of hydrocortisone. My respiratory consultant has reduced me from 2 puffs twice a day of 160 Alvesco to 3 puffs once a day. Now I'm feeling unwell. Could the reduction in my inhaler be impacting my adrenal insuffiency
Hi,I was diagnosed with adrenal insufficiency last year and have been stable on 20mg of hydrocortisone. My respiratory consultant has reduced me from 2 puffs twice a day of 160 Alvesco to 3 puffs once a day. Now I'm feeling unwell. Could the reduction in my inhaler be impacting my adrenal insuffiency
Kodimp
in
Asthma Community Forum
7 months ago
A catchup on my hospital outcome
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
katieoxo60
in
Lung Conditions Community Forum
4 months ago
Offered palliative care only
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
NJRV
in
Glioblastoma Support
4 months ago
IBS/Covid/Stress - Help!
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
MidnightReader
in
IBS Network
4 months ago
My Cancer Journey Repost
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
4 months ago
refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
4 months ago
referral - why?
My rheumatologist referred me to an endocrinologist because like many others I was struggling a bit reducing. I was on 4mg of pred. Apparently my synacthen test showed a normal basal level and a post of 432 - suboptimal but near normal. However the endocrinologist said he was “unsure whether it would
My rheumatologist referred me to an endocrinologist because like many others I was struggling a bit reducing. I was on 4mg of pred. Apparently my synacthen test showed a normal basal level and a post of 432 - suboptimal but near normal. However the endocrinologist said he was “unsure whether it would
AnniesRyder5
in
PMRGCAuk
7 months ago
Itching with blood thinners (Apixaban and Edoxapan)
Had to change from Apixaban to Edoxapan due to severe reaction of itching all over the body, it was really bad. The Edoxapan is much better, but still get the occasional real itches on back and legs . but they gave me E45 anti itch cream that REALLY works well and often stops after a few minutes after
Had to change from Apixaban to Edoxapan due to severe reaction of itching all over the body, it was really bad. The Edoxapan is much better, but still get the occasional real itches on back and legs . but they gave me E45 anti itch cream that REALLY works well and often stops after a few minutes after
Quovadisuk
in
Atrial Fibrillation Support
7 months ago
Fatigue, coma naps and pituitary
Hey everyone, Has anyone experienced such bouts of fatigue where you fall asleep and you just have to fall asleep that given moment and you are gone for an hour? This started happening to me in July last year, but got increasingly worse over time. I thought it was my iron, but I fixed that with iron
Hey everyone, Has anyone experienced such bouts of fatigue where you fall asleep and you just have to fall asleep that given moment and you are gone for an hour? This started happening to me in July last year, but got increasingly worse over time. I thought it was my iron, but I fixed that with iron
Incoguto
in
Thyroid UK
7 months ago
Anxiety/worry and extreme itching
I need to vent because this thing is driving me crazy. I've had anxiety off and for most of my life and am used to the symptoms and the ways to deal with them. The last three weeks or so, I've been under a lot of stress and starting having random, intense itching. It started as just my hands, then my
I need to vent because this thing is driving me crazy. I've had anxiety off and for most of my life and am used to the symptoms and the ways to deal with them. The last three weeks or so, I've been under a lot of stress and starting having random, intense itching. It started as just my hands, then my
Grandmaof3
in
Anxiety and Depression Support
7 months ago
My story
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
Flowers2024
in
PSP Association
5 months ago
Another update on potential meds intolerance
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Incoguto
in
Thyroid UK
8 months ago
Bitter Taste In Mouth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
LizMitchell
in
PMRGCAuk
8 months ago
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