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I just want to talk ..
I am finally posting excuse my poor English it’s not my native language I have been diagnosed with CKD by a coincidencewhen I tested my blood and urin for a routine test befor college, the protein in urine was elevated and after several months I had to do my pre surgery checkups and they found my
I am finally posting excuse my poor English it’s not my native language I have been diagnosed with CKD by a coincidencewhen I tested my blood and urin for a routine test befor college, the protein in urine was elevated and after several months I had to do my pre surgery checkups and they found my
Asmot
in
Kidney Dialysis
1 year ago
spasmonal (alverine citrate for constipation
hi has anyone tried this for constipation as I’m still struggling with constipation which leans on my bowel due to long redundant loops if my bowel. Apparently Spasmonal helps with spasms for the bowel and uterus I haven’t got a uterus anymore but might help bladder spasms too?? But I’m wary as I thought
hi has anyone tried this for constipation as I’m still struggling with constipation which leans on my bowel due to long redundant loops if my bowel. Apparently Spasmonal helps with spasms for the bowel and uterus I haven’t got a uterus anymore but might help bladder spasms too?? But I’m wary as I thought
Nerissa
in
IBS Network
1 year ago
Indomethacin - resenisitize to Enza
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
In a preclinical study indo seems to resensitize to Enza by blocking CRXR7 thus indirectly AR-V7. The trial was started in 2018, results should be known in July 2023. Does anybody know anything from that trial? I just rechallenged with Enza bringing PSA down from 7 to 0.5, if adding cheap indo prevents
Hidden
in
Fight Prostate Cancer
1 year ago
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Pluvicto works but at what cost
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
Beach18
in
Advanced Prostate Cancer
1 year ago
Chronic constipation
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
hi so I have been suffering with severe chronic constipation soft stools for almost 3 years, they have done testings and ruled out nothing. I always feel it in my rectum and they did a defecography on me last week and found an intra-anal intussusception and a 2.5 cm Rectocele. I am confused on this.
Liv12b
in
IBS Network
1 year ago
after radium 223
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
Jojoberries
in
Advanced Prostate Cancer
1 year ago
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
1 year ago
caelyx in platinumResistance
hello My 80 year old mum was told after three excellent responses in chemo the last two she became platinum resistant and progression in the lungs. Some thickening of the lining the consultant said the only option was caelyx but due to her age and possible brutal side effects and probability of not
hello My 80 year old mum was told after three excellent responses in chemo the last two she became platinum resistant and progression in the lungs. Some thickening of the lining the consultant said the only option was caelyx but due to her age and possible brutal side effects and probability of not
Lolathestaffie
in
My Ovacome
1 year ago
Options for Recurrent PCa w/ RT Initial Therapy
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Researcher50
in
Advanced Prostate Cancer
1 year ago
Prolapse surgery
I have suffered with uterine prolapse for approximately 4 years and have had a Gellhorn pessary for almost 3 years. Prolapse is now at stage 3 with more and more problems with the pessary, discomfort, burning bladder and infections. It came out so now have a larger pessary. This is even more uncomfortable
I have suffered with uterine prolapse for approximately 4 years and have had a Gellhorn pessary for almost 3 years. Prolapse is now at stage 3 with more and more problems with the pessary, discomfort, burning bladder and infections. It came out so now have a larger pessary. This is even more uncomfortable
Catsaloud
in
Women's Health
1 year ago
Temgesic/Buprenorphine
Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphine and the different half life of these 2 medicines.Both have Buprenorphine hydrochloride as the active ingredient BUT Temgesic has a much shorter half life. This means it will have to be taken every 6 to 8 hours throughout
Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphine and the different half life of these 2 medicines.Both have Buprenorphine hydrochloride as the active ingredient BUT Temgesic has a much shorter half life. This means it will have to be taken every 6 to 8 hours throughout
Joolsg
in
Restless Legs Syndrome
1 year ago
Liquid biopsy
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
Dental Treatment after open heart surgery
Hi I am 7 months recovering from open heart surgery for a repair to my mitral and tricuspid valves. This morning one of my teeth started hurting when I was eating my breakfast. Now tonight the tooth feels a bit loose. My question is do I have to have antibiotics before any dental treatment and if so
Hi I am 7 months recovering from open heart surgery for a repair to my mitral and tricuspid valves. This morning one of my teeth started hurting when I was eating my breakfast. Now tonight the tooth feels a bit loose. My question is do I have to have antibiotics before any dental treatment and if so
shebas
in
Heart Valve Voice
1 year ago
Seeking advice re: end-of-life planning with family
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Havik
in
Kidney Dialysis
1 year ago
systemic sine sclerosis
Sines systemic sclerosis morning all I have a question alongside all of my other symptoms I seem to be getting sore gums and ulcers in my mouth this happens when I’m in a flare up and is painful and distressing any tips ??
Sines systemic sclerosis morning all I have a question alongside all of my other symptoms I seem to be getting sore gums and ulcers in my mouth this happens when I’m in a flare up and is painful and distressing any tips ??
Jaq1971
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Increasing steroids for dental treatment
Hi all - I have previously seen posts about increasing preds for dental treatment, is this all treatment or specific things? and does it still apply at low levels? I am having a crown fitted for a broken tooth and am currently on 2mbs/1.5mgs - DSNS! Thanks
Hi all - I have previously seen posts about increasing preds for dental treatment, is this all treatment or specific things? and does it still apply at low levels? I am having a crown fitted for a broken tooth and am currently on 2mbs/1.5mgs - DSNS! Thanks
MDT1
in
PMRGCAuk
1 year ago
Rutin / Senolytics
New paper below [1]. In 1995, Edward Giovannucci was responsible for triggering the PCa lycopene craze. "Of 46 vegetables and fruits or related products, four were significantly associated with lower prostate cancer risk; of the four--tomato sauce, tomatoes, and pizza, but not strawberries--were
New paper below [1]. In 1995, Edward Giovannucci was responsible for triggering the PCa lycopene craze. "Of 46 vegetables and fruits or related products, four were significantly associated with lower prostate cancer risk; of the four--tomato sauce, tomatoes, and pizza, but not strawberries--were
pca2004
in
Fight Prostate Cancer
1 year ago
Dual ARi in mCRPCa - Antonarakis = 'Combo of 2 AR-directed agents should not be utilized in clinical practice at this time', MedPage 7/20/23
Posted without comment for the SOC crowd. [i]
Emmanuel Antonarakis, MD, on Dual Androgen Receptor Inhibition in Metastatic Castration-Resistant Prostate Cancer– 'Combination of two androgen-directed agents should not be utilized in clinical practice at this time', MedPage Today, ASCO > Prostate Cancer
Posted without comment for the SOC crowd. [i]
Emmanuel Antonarakis, MD, on Dual Androgen Receptor Inhibition in Metastatic Castration-Resistant Prostate Cancer– 'Combination of two androgen-directed agents should not be utilized in clinical practice at this time', MedPage Today, ASCO > Prostate Cancer
cujoe
in
Fight Prostate Cancer
1 year ago
Medically induced zombie looking for help!
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Fibro_warrior
in
Fibromyalgia Action UK
1 year ago
Petrified !!!!
Hello , I am 52 yrs old and this will be my first colonoscopy . For about a year I have has haemorrhoids on and off very itchy and sore bottom that goes with it. Felt the lump/s when I have had the attacks. No lumps present now. Have had some constipation lately and have seen a little blood when
Hello , I am 52 yrs old and this will be my first colonoscopy . For about a year I have has haemorrhoids on and off very itchy and sore bottom that goes with it. Felt the lump/s when I have had the attacks. No lumps present now. Have had some constipation lately and have seen a little blood when
Hidden
in
IBS Network
1 year ago
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