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Palliative care
My health has taken a nose dive over this last year. My consultant has put me on palliative care. He says no more lung function tests or CT scans, a triple function inhaler instead of three inhalers and full time oxygen instead of ambulatory. What else can I expect from palliative care? What can
My health has taken a nose dive over this last year. My consultant has put me on palliative care. He says no more lung function tests or CT scans, a triple function inhaler instead of three inhalers and full time oxygen instead of ambulatory. What else can I expect from palliative care? What can
wheezyof
in
Lung Conditions Community Forum
11 months ago
Warm sensation in anus
After some bowel movements I'll feel a warm sensation afterwards in the anus. No diarrhea, no straining, no hemorrhoids, no bleeding. Just a warmth in the anus and feels like it isn't relaxing perhaps Anyone else have this? What causes it?
After some bowel movements I'll feel a warm sensation afterwards in the anus. No diarrhea, no straining, no hemorrhoids, no bleeding. Just a warmth in the anus and feels like it isn't relaxing perhaps Anyone else have this? What causes it?
Catsandsunsets
in
IBS Network
10 months ago
EMBARK Study: Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Fight Prostate Cancer
10 months ago
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Has Anyone Heard that it’s More Common that Patients on Abiraterone (Zytiga) are more prone to their PC morphing into Neuroendocrine ?
I read a post today that it’s more common that patients on Abiraterone (Zytiga) are more prone to their Prostate Cancer morphing into Neuroendocrine Carcinoma? Is this true? Any other Medications that are prone to have it Morp into Neuroendocrine Carcinoma ?
I read a post today that it’s more common that patients on Abiraterone (Zytiga) are more prone to their Prostate Cancer morphing into Neuroendocrine Carcinoma? Is this true? Any other Medications that are prone to have it Morp into Neuroendocrine Carcinoma ?
Shorehousejam
in
Advanced Prostate Cancer
1 year ago
I don’t understand
hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizziness and balance problems , over the 2 years since diagnosis things have changed dramatically, he went from balance issues and stooping to using a stick, he was seen by a urologist for wee retention and was given catheters
hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizziness and balance problems , over the 2 years since diagnosis things have changed dramatically, he went from balance issues and stooping to using a stick, he was seen by a urologist for wee retention and was given catheters
DeeMilo25
in
Multiple System Atrophy Trust
1 year ago
Dopamine to Pregabalin transition advice, please
I started taking Mirapexin in 2002. My dose increased over the years, reaching 5 x 0.088 mg tablets four years ago when augmentation set in. Three years ago, my doctor prescribed pregabalin and allowed me to manage my transition from Mirapexin. I have not yet completed that transition. Today, I take
I started taking Mirapexin in 2002. My dose increased over the years, reaching 5 x 0.088 mg tablets four years ago when augmentation set in. Three years ago, my doctor prescribed pregabalin and allowed me to manage my transition from Mirapexin. I have not yet completed that transition. Today, I take
MrVimes
in
Restless Legs Syndrome
1 year ago
bowel obstruction
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
Anjidav
in
Bowel Disease Support
1 year ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
1 year ago
Fosfestrol (Honvan)
New paper from India [1]. "
Outcomes and toxicity of oral Fosfestrol in metastatic castration-resistant prostate cancer-a real-world experience
" This brought back memories of being in groups shortly after I was diagnosed. There were men who discussed where to obtain Honvan (Forfestrol) a
New paper from India [1]. "
Outcomes and toxicity of oral Fosfestrol in metastatic castration-resistant prostate cancer-a real-world experience
" This brought back memories of being in groups shortly after I was diagnosed. There were men who discussed where to obtain Honvan (Forfestrol) a
pca2004
in
Fight Prostate Cancer
11 months ago
Palliative care survey for less survivable cancer patients & loved ones (UK)
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Ibrance and Anastrozole for Endometrial Cancer - Is anybody else on this regimen?
Hello, I live in the U.S. I am on Ibrance and Anastrozole for ER+ PR+ HER2- endometrial cancer for over 5 ½ years. I was originally diagnosed in 2015 and had two recurrences. Now I am in remission. In the U.S., I am not meeting people (on online forums or in real life) that are on the same regimen
Hello, I live in the U.S. I am on Ibrance and Anastrozole for ER+ PR+ HER2- endometrial cancer for over 5 ½ years. I was originally diagnosed in 2015 and had two recurrences. Now I am in remission. In the U.S., I am not meeting people (on online forums or in real life) that are on the same regimen
Merma
in
Gynae Cancer Support
1 year ago
Technical help!
Hello! I'm wanting to post my Regenerus Cortisol results. Could any tech savvy person tell me the easiet/quickest way, using Edge, Word, etc. to black out my personal details on the PDF which Regenerus send with the graph of your results etc. and then get it into a format which can be uploaded in
Hello! I'm wanting to post my Regenerus Cortisol results. Could any tech savvy person tell me the easiet/quickest way, using Edge, Word, etc. to black out my personal details on the PDF which Regenerus send with the graph of your results etc. and then get it into a format which can be uploaded in
Sneedle
in
Thyroid UK
1 year ago
pluvicto?
any feed back about the befits of Pluvicto? Is it a miracle drug? Andy Taylor from Duran Duran cured after being palliative care? Many people sending me articles about it. Right now approved for castrate resistant pCA?
any feed back about the befits of Pluvicto? Is it a miracle drug? Andy Taylor from Duran Duran cured after being palliative care? Many people sending me articles about it. Right now approved for castrate resistant pCA?
Nowhereman9
in
Advanced Prostate Cancer
1 year ago
Coagulation markers as independent predictors of prostate cancer aggressiveness.
New study below [1]. Altered coagulation factors are an early event in PCa. Indeed, the first sign of PCa in some men may be a deep vein thrombosis [DVT. The study authors wondered if there were coagulation factors associated with aggressive disease. Only fibrinogen & D-dimer were determined
New study below [1]. Altered coagulation factors are an early event in PCa. Indeed, the first sign of PCa in some men may be a deep vein thrombosis [DVT. The study authors wondered if there were coagulation factors associated with aggressive disease. Only fibrinogen & D-dimer were determined
pca2004
in
Fight Prostate Cancer
11 months ago
Piles
Last year I was diagnosed with a anal fissure and piles I was given suppositories and laxatives and it all cleared up.Had a issue a few months ago when I throught there was a small amount of blood went to the doctor who examined me and said everything was fine and not to worry and that it could have
Last year I was diagnosed with a anal fissure and piles I was given suppositories and laxatives and it all cleared up.Had a issue a few months ago when I throught there was a small amount of blood went to the doctor who examined me and said everything was fine and not to worry and that it could have
lut123
in
IBS Network
11 months ago
Lost in France
I'm new to this blog thing and am making my way around the site. Hopefully someone will get to see this.I'm Leosta and I'm caring for my husband aged 83 who has PSP-P. Well, we think so because the doctors say as he's not responding to Parkinson's medication it must be PSP. Certainly he has all
I'm new to this blog thing and am making my way around the site. Hopefully someone will get to see this.I'm Leosta and I'm caring for my husband aged 83 who has PSP-P. Well, we think so because the doctors say as he's not responding to Parkinson's medication it must be PSP. Certainly he has all
Leosta
in
PSP Association
1 year ago
Boron
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
Hi AllHas anyone heard of taking boron supplements instead of alendronic acid? (I have some osteopenia and am on prednisolone for PMR.) Many thanks
CaraDee
in
PMRGCAuk
11 months ago
Anticoagulants and Dental treatment
I recently had a molar removed.I needed a couple of stitches. I was advised to stop Rivaroxaban the night previous to the extraction and also on the night of the extraction. All good so far and went back on Rivaroxaban. Then four days post extraction I had some heavy bleeding which resulted in my returning
I recently had a molar removed.I needed a couple of stitches. I was advised to stop Rivaroxaban the night previous to the extraction and also on the night of the extraction. All good so far and went back on Rivaroxaban. Then four days post extraction I had some heavy bleeding which resulted in my returning
helpmabob
in
AF Association
1 year ago
Involvement Opportunity - Media Request (UK)
Do you live with NAFLD or Hepatitis C and are you interested in sharing your story?
We’ve been contacted by media outlets who want to interview someone of a healthy weight who was shocked to be diagnosed with NAFLD. They also want to raise awareness of hepatitis C and are looking for women
Do you live with NAFLD or Hepatitis C and are you interested in sharing your story?
We’ve been contacted by media outlets who want to interview someone of a healthy weight who was shocked to be diagnosed with NAFLD. They also want to raise awareness of hepatitis C and are looking for women
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
dentist and anticoagulants
On Thursday I am having two broken teeth removed - both are broken right by the gum so my dentist referred me to an oral surgeon as they were worried about tooth cracking etc. I believe on at least one they may need to cut the gum a little as the tooth isn’t showing but am no dental expert! I take
On Thursday I am having two broken teeth removed - both are broken right by the gum so my dentist referred me to an oral surgeon as they were worried about tooth cracking etc. I believe on at least one they may need to cut the gum a little as the tooth isn’t showing but am no dental expert! I take
ILF1
in
Atrial Fibrillation Support
1 year ago
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