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Rhupus
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
Buglove22
in
LUpus Patients Understanding and Support
4 months ago
Warfarin
Hi i m taking warfarin now for one month for LV thrombus. The warfrin level is not going up. I m following the right diet for warfarin. Please help me.
Hi i m taking warfarin now for one month for LV thrombus. The warfrin level is not going up. I m following the right diet for warfarin. Please help me.
neomiferdy
in
Atrial Fibrillation Support
2 months ago
PSA +
Is a PSA increase from .13 to .20 a concern? I'm on Eligard and Zytiga & Prednisone + Xgeva.
Is a PSA increase from .13 to .20 a concern? I'm on Eligard and Zytiga & Prednisone + Xgeva.
TommyCarz2
in
Advanced Prostate Cancer
7 months ago
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Extravasation
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
Extravasation
in
Blue Faery Liver Cancer
7 months ago
Avodart and Flomax
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
CountryJoe
in
Advanced Prostate Cancer
7 months ago
Ablation/S-ICD Recovery Time - why is it taking so long?
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
AspiringVet
in
Heart Rhythm Disorders Support
2 months ago
Ozone treatments benefit Parkinson's, when my brother down two or three days 1/2 ozone really seems to energize him and clear his brain.
We are using about 1 LPM oxygen and getting about 12 Gamma ozone bubbled in olive oil and breathing in nose or mouth. We are usually intaking in mouth which also kills all mouth bacteria. Is any one using any other protocols with results.
We are using about 1 LPM oxygen and getting about 12 Gamma ozone bubbled in olive oil and breathing in nose or mouth. We are usually intaking in mouth which also kills all mouth bacteria. Is any one using any other protocols with results.
clarksdocs
in
Cure Parkinson's
7 months ago
Is the rhythm of your heart regular?
A simple pulse check only takes 30 seconds! Atrial fibrillation, also known as AF or AFib is a quivering or irregular heart rhythm (arrhythmia) that can lead to an AF-related stroke or heart failure if left untreated. If you have AF, your heart beats in an irregular rhythm causing the blood to not
A simple pulse check only takes 30 seconds! Atrial fibrillation, also known as AF or AFib is a quivering or irregular heart rhythm (arrhythmia) that can lead to an AF-related stroke or heart failure if left untreated. If you have AF, your heart beats in an irregular rhythm causing the blood to not
TracyAdmin
Partner
in
Atrial Fibrillation Support
2 months ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
2 months ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
Involvement Opportunity - British Liver Trust Patient Advisory Group (UK)
Our Patient Advisory Group (PAG) helps us to serve the full, diverse nature of the UK’s liver disease community. It ensures the patient voice is embedded even more in key strategy and decision-making processes. At the moment we are underrepresented in some areas and we are looking for people to join
Our Patient Advisory Group (PAG) helps us to serve the full, diverse nature of the UK’s liver disease community. It ensures the patient voice is embedded even more in key strategy and decision-making processes. At the moment we are underrepresented in some areas and we are looking for people to join
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
filgotinib dosage
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
Doodlereggie
in
NRAS
7 months ago
Has anyone had medication changed from bisoprolol?
My previous posts were related to my mum and her anxiety. Mum has permanent AF. We ended up going private to see a consultant and mum had a monitor for a week to monitor her heart rate. The results did show that her heart rate was high - around 160 was the higher results. The consultant increased bisoprolol
My previous posts were related to my mum and her anxiety. Mum has permanent AF. We ended up going private to see a consultant and mum had a monitor for a week to monitor her heart rate. The results did show that her heart rate was high - around 160 was the higher results. The consultant increased bisoprolol
Nickybhf
in
Atrial Fibrillation Support
2 months ago
Lupus diagnosis after taking hydroxychloriquine for 14 months
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Hi guys, hope everyone is well. Since getting diagnosed with lupus last month one thing has been really bothering me... As bit of a back story I was diagnosed with RA a few years ago. Over the last 6-8 months I've been amassing a bunch of other symptoms which last month resulted in my RA diagnosed
Diagnosis_Collector
in
LUPUS UK
4 months ago
Please help my grandfather
Hi all thanks for accepting me into this group, I would love to help my grandfather feel abit more comfortable.Grandad had 2 replacement hips last year has suspected cancer in lung and ureter (both will stay undiagnosed due to fraility.) He has COPD, AF, Osteoarthritis and now got systolic heart diease
Hi all thanks for accepting me into this group, I would love to help my grandfather feel abit more comfortable.Grandad had 2 replacement hips last year has suspected cancer in lung and ureter (both will stay undiagnosed due to fraility.) He has COPD, AF, Osteoarthritis and now got systolic heart diease
Danielle2419
in
Atrial Fibrillation Support
2 months ago
Mum update (CBD)
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Araucana
in
PSP Association
2 months ago
Blood Test for MS Activity Gets FDA Breakthrough Designation
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
The US Food and Drug Administration (FDA) has granted breakthrough device designation to the Elecsys Neurofilament Light Chain (NfL) test for multiple sclerosis (MS). November, 2023
Made by Roche, the test is intended to be used as an aid in detection of disease activity in adults aged 18
BettysMom
in
My MSAA Community
4 months ago
What do you think?
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
docbulldog
in
Advanced Prostate Cancer
7 months ago
Raynaud's in dark skinned patients
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
CarerEdi
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Returning to Warfarin after 4 months on Edoxaban ...... part 2
I posted on here my original comments on this subject. Hopefully, this update, will be of interest. I made the decision to quit Edoxaban on 6 April. I didn't /couldn't be bothered to make contact with my GP, whenever I phone up for a chat I'm asked to make an appointment which usually is about 10 days
I posted on here my original comments on this subject. Hopefully, this update, will be of interest. I made the decision to quit Edoxaban on 6 April. I didn't /couldn't be bothered to make contact with my GP, whenever I phone up for a chat I'm asked to make an appointment which usually is about 10 days
BenHall1
in
Atrial Fibrillation Support
2 months ago
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