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to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Any comment on cortisol/aldosterone results please
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
PotatoFan
in
Thyroid UK
6 months ago
What Causes Autoimmune Diseases?
Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?Reviewed By: Ana-Maria Orbai, M.D., M.H.S. Autoimmune disease affects 23.5 million Americans, and nearly 80 percent of those are women. If you’re one of the millions of women affected by this group of diseases, which includes
Interesting read...Autoimmune Disease: Why Is My Immune System Attacking Itself?Reviewed By: Ana-Maria Orbai, M.D., M.H.S. Autoimmune disease affects 23.5 million Americans, and nearly 80 percent of those are women. If you’re one of the millions of women affected by this group of diseases, which includes
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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Wednesday's 'Word'
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
General Update - I got lost in the site
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Sorry everyone, I managed to get totally confused again, and I think I've posted duplicate replies, then lost other replies and now I can't find all the replies that were left for me so I think I've managed to delete them. Trouble is my hands shake so much these days that I keep pressing wrong buttons
Blondgrassblowing
in
PMRGCAuk
7 days ago
ATA Virtual Patient Forum: International Thyroid Awareness Week - Wednesday, May 29, 2024, 8pm - 9:15pm EDT
In case anyone is interested, registration appears to be open - both in they are accepting registrations AND it is open to the public. It would be interesting to find out about how useful it is. The time makes it somewhat awkward for many in the UK. I think it works out to be 01:00 in the morning
In case anyone is interested, registration appears to be open - both in they are accepting registrations AND it is open to the public. It would be interesting to find out about how useful it is. The time makes it somewhat awkward for many in the UK. I think it works out to be 01:00 in the morning
helvella
Thyroid UK
in
Thyroid UK
3 months ago
High dose Ergocalciferol (Vit. D-2) for Osteoporosis?
Since losing my long time primary doctor last year, I am on my second doctor for advice for osteoporosis. I was reluctant to take Prolia recommended by the first D.O. doctor and the second Internist Doctor recommended 50,000 (I think IU) weekly for a couple of months. I haven't picked up the prescription
Since losing my long time primary doctor last year, I am on my second doctor for advice for osteoporosis. I was reluctant to take Prolia recommended by the first D.O. doctor and the second Internist Doctor recommended 50,000 (I think IU) weekly for a couple of months. I haven't picked up the prescription
pegpowell
in
PMRGCAuk
8 days ago
I have a question.
Does anyone's rheumatologist order a CRP HS blood test? I heard of CRP, but not this one. Is it solely for heart disease, or something to do with other diseases too like Lupus?? Mine was high.
Does anyone's rheumatologist order a CRP HS blood test? I heard of CRP, but not this one. Is it solely for heart disease, or something to do with other diseases too like Lupus?? Mine was high.
Willow7733
in
LUPUS UK
8 days ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
6 months ago
Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
6 months ago
Intrinsic Factor result
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
Chickens44
in
Pernicious Anaemia Society
3 months ago
how often for a Fibroscan
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Can you have “attacks” when in persistent/constant afib?
If you are in persistent/constant bradycardic (40-60ish bpm) afib can you still have “attacks” of afib? Sort of ad-hoc exasperation of say breathlessness, chest pressure etc. I’m not even sure that question makes any sense… we are still trying to sort out what are “afib symptoms” and what isn’t after
If you are in persistent/constant bradycardic (40-60ish bpm) afib can you still have “attacks” of afib? Sort of ad-hoc exasperation of say breathlessness, chest pressure etc. I’m not even sure that question makes any sense… we are still trying to sort out what are “afib symptoms” and what isn’t after
Efka
in
Atrial Fibrillation Support
9 days ago
Newbie and blood tests
Good morning all, I've been borderline underactive thyroid for a year or so. I was never told my levels and they aren't on my GP app. I've been retested recently and have a TSH level of 6. I also have a TSH receptor level of 0.3. I have a few symptoms.. Tiredness Brain fog Cold all the time Thinning
Good morning all, I've been borderline underactive thyroid for a year or so. I was never told my levels and they aren't on my GP app. I've been retested recently and have a TSH level of 6. I also have a TSH receptor level of 0.3. I have a few symptoms.. Tiredness Brain fog Cold all the time Thinning
HubbaBubbaLover
in
Thyroid UK
3 months ago
The Idea of White Coat Syndrome led to me having many mini strokes.
"White coat syndrome, or white coat hypertension, is the term for when you get a high blood pressure reading in a doctor's office and a normal reading at home. The anxiety of being around doctors in white coats can make your blood pressure rise. Most people don't need treatment if their blood pressure
"White coat syndrome, or white coat hypertension, is the term for when you get a high blood pressure reading in a doctor's office and a normal reading at home. The anxiety of being around doctors in white coats can make your blood pressure rise. Most people don't need treatment if their blood pressure
Tugun
in
Lung Conditions Community Forum
10 days ago
Persistent AF
Hi all,I have recently gone back In to AF and just seen my cardiologist after having an echo and 24 hour monitor. The echo has shown the hearts looks OK with a good EF and moderate dilation of left atrium, the monitor showed my HR anywhere between low 70's and mid 120's with an average of 94! The cardiologist
Hi all,I have recently gone back In to AF and just seen my cardiologist after having an echo and 24 hour monitor. The echo has shown the hearts looks OK with a good EF and moderate dilation of left atrium, the monitor showed my HR anywhere between low 70's and mid 120's with an average of 94! The cardiologist
Bigredhear
in
Atrial Fibrillation Support
10 days ago
Compression socks for travel
Hello, wondering if anyone has a good experience with compression socks for long haul travel? I do experience some feet swelling these days during the day which usually goes away with elevation for a brief period of time. I have flights coming up in the 7 to 14 hour range so am thinking that apart
Hello, wondering if anyone has a good experience with compression socks for long haul travel? I do experience some feet swelling these days during the day which usually goes away with elevation for a brief period of time. I have flights coming up in the 7 to 14 hour range so am thinking that apart
Support_helps
in
Vasculitis UK
10 days ago
Cardioversion of Atrial Fibrillation (AF)
Atrial fibrillation (AF) is a common rhythm disturbance of the heart which may cause rapid irregular palpitations, chest pain, breathlessness or fatigue. Sometimes it is hardly noticed by the patient. In such cases it is often picked up by routine examination of the pulse listening to the heart or recording
Atrial fibrillation (AF) is a common rhythm disturbance of the heart which may cause rapid irregular palpitations, chest pain, breathlessness or fatigue. Sometimes it is hardly noticed by the patient. In such cases it is often picked up by routine examination of the pulse listening to the heart or recording
SamAdmin
Administrator
in
Atrial Fibrillation Support
11 days ago
Question about support stockings
Hello. It's been a while with posting. I have been wearing support stockings since last November after arriving home from the hospital, for almost 10 months now, they have always been a struggle, and it's a bit tough to wear shorts with these knee-high's, I usually wear long pants outside to hide them
Hello. It's been a while with posting. I have been wearing support stockings since last November after arriving home from the hospital, for almost 10 months now, they have always been a struggle, and it's a bit tough to wear shorts with these knee-high's, I usually wear long pants outside to hide them
gbn_
in
Atrial Fibrillation Support
11 days ago
What is post ablation normal heart rate
I had my ablation last week for a fib which I have been told was a success. I have felt very dizzy with occasional ectopics since but bp has been ok and heart rate between 72 and 78. Then today everything has changed. Lots of ectopics and resting heart rate between 95 and 98. Should I be worried?
I had my ablation last week for a fib which I have been told was a success. I have felt very dizzy with occasional ectopics since but bp has been ok and heart rate between 72 and 78. Then today everything has changed. Lots of ectopics and resting heart rate between 95 and 98. Should I be worried?
Nantoone
in
Atrial Fibrillation Support
12 days ago
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