Search
Search
About
Log in
Join
Experiences with
Deep brain stimulation (DBS)
Posts
Communities
1,053 public posts
Filter results
RYTARY OR SINEMET, WHICH WORKS BEST AND CAUSES MILD OR NO DYSKINESIA OR DYSTONIA?
According to some of the posts I read here,most doctors would increase the dose,which usually result in severe and painful dyskinesia/dystonia.Some of these complications are not reversible and debilitating, warranting additional drug to alleviate the problem or
DBS
.
According to some of the posts I read here,most doctors would increase the dose,which usually result in severe and painful dyskinesia/dystonia.Some of these complications are not reversible and debilitating, warranting additional drug to alleviate the problem or
DBS
.
OREOLU
in
Cure Parkinson's
4 years ago
FDA Approves Medtronic’s Percept PC Deep Brain Stimulation System
Percept is also the first approved
DBS
system that can be used in certain full-body MRI scans, allowing greater access to imaging for patients and clinicians, Medtronic reports in a press release."
Percept is also the first approved
DBS
system that can be used in certain full-body MRI scans, allowing greater access to imaging for patients and clinicians, Medtronic reports in a press release."
pvw2
in
Cure Parkinson's
4 years ago
Study: Deep brain stimulation may slow Parkinson's disease
OK, here is a reason to get
DBS
without waiting until meds don't work. https://www.upi.com/Health_News/2020/07/01/Study-Deep-brain-stimulation-may-slow-Parkinsons-disease/6891593556182/
OK, here is a reason to get
DBS
without waiting until meds don't work. https://www.upi.com/Health_News/2020/07/01/Study-Deep-brain-stimulation-may-slow-Parkinsons-disease/6891593556182/
pvw2
in
Cure Parkinson's
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hi! This is my first post. DBS assessment - Has anyone had the same result as my brain MRI test below? If so, what are your symptoms?
Brain MRI test result: Microvascular ischemic disease brain also called White matter disease
Brain MRI test result: Microvascular ischemic disease brain also called White matter disease
Kingdomcome
in
Cure Parkinson's
4 years ago
My experience with DBS (Deep Brain Stimulation) Surgery
My Neurologist mention
DBS
(Deep Brain Stimulation) Surgery as an option, so I looked into it.
DBS
seemed extreme to me and actually it seemed barbaric as well. Screwing that think into my head and drilling a hole into my skull?? No thanks! I will just shake my drinks up a while longer.
My Neurologist mention
DBS
(Deep Brain Stimulation) Surgery as an option, so I looked into it.
DBS
seemed extreme to me and actually it seemed barbaric as well. Screwing that think into my head and drilling a hole into my skull?? No thanks! I will just shake my drinks up a while longer.
JeffroC
in
Cure Parkinson's
4 years ago
Any other PD people out there...your major PD symptom is toes curling up on both feet
I'm also considering
DBS
for the toe-curling to possibly reduce the number of Sinemet pills I take daily. If anyone has any input, would love to hear it, no matter how minute the input is.
I'm also considering
DBS
for the toe-curling to possibly reduce the number of Sinemet pills I take daily. If anyone has any input, would love to hear it, no matter how minute the input is.
willason
in
Cure Parkinson's
4 years ago
Rice researchers create tiny, magnetically-powered neural stimulator
It seems this could improve
DBS
. https://www.news-medical.net/news/20200608/Rice-researchers-create-tiny-magnetically-powered-neural-stimulator.aspx
It seems this could improve
DBS
. https://www.news-medical.net/news/20200608/Rice-researchers-create-tiny-magnetically-powered-neural-stimulator.aspx
pvw2
in
Cure Parkinson's
4 years ago
So I finished the book...
And Steve Evans was the first marathon finisher to have had
DBS
treatment. He finished the LA Marathon in 8 hours, 40 minutes. The author had to stop during the same race to take his Sinemet, thereby missing a sub-4 hour finish time.
And Steve Evans was the first marathon finisher to have had
DBS
treatment. He finished the LA Marathon in 8 hours, 40 minutes. The author had to stop during the same race to take his Sinemet, thereby missing a sub-4 hour finish time.
kaypeeoh
in
Cure Parkinson's
4 years ago
Sand volleyball after DBS
Does anyone play sand volleyball after having
DBS
? My programming nurse said I should be fine to play...I had
DBS
in October/November 2019. I guess I'm concerned about getting hit in the battery.
Does anyone play sand volleyball after having
DBS
? My programming nurse said I should be fine to play...I had
DBS
in October/November 2019. I guess I'm concerned about getting hit in the battery.
Jlloy5
in
Cure Parkinson's
4 years ago
Feeling more positive
Hi I posted about 3 weeks ago really at the end of my tether, and wondering if I would be able to return to work again. Since then I have contacted the hospital and I have a telephone appointment with an EP at the end of Sept and then out of the blue I got a call from the cardiologist who suggested I
Hi I posted about 3 weeks ago really at the end of my tether, and wondering if I would be able to return to work again. Since then I have contacted the hospital and I have a telephone appointment with an EP at the end of Sept and then out of the blue I got a call from the cardiologist who suggested I
Dickieticker
in
AF Association
4 years ago
Bisoprolol Fumarate or Nebivolol to avoid ED
Nebivolol / Bisoprolol Fumarate. I’ve been on 5mg Bisoprolol Fumarate during the last 5 years or so. I started experiencing weak erections. I didn’t payed attention at the beginning as I thought it was due to daily working stress and any other regular effect from the life routine but the problem grew
Nebivolol / Bisoprolol Fumarate. I’ve been on 5mg Bisoprolol Fumarate during the last 5 years or so. I started experiencing weak erections. I didn’t payed attention at the beginning as I thought it was due to daily working stress and any other regular effect from the life routine but the problem grew
Nanirightnow
in
AF Association
4 years ago
DBS completion
i need to complete my
DBS
checks with ID info
i need to complete my
DBS
checks with ID info
annsuelyn
in
Mencap
4 years ago
Is there a limit on Dopaboost intake?
My dad is on a surgery waitlist for
DBS
here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily.
My dad is on a surgery waitlist for
DBS
here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily.
pdkid
in
Cure Parkinson's
4 years ago
Horizant
I am a long term rls sufferer and I need help dealing with my condition. I was on gabapentin for about 9 years but the condition just steadily got worse. After a neurological consult, I was given ropinirol & clonazapan. Results were variable at best. Due to side effects, I stopped taking clonazapan.
I am a long term rls sufferer and I need help dealing with my condition. I was on gabapentin for about 9 years but the condition just steadily got worse. After a neurological consult, I was given ropinirol & clonazapan. Results were variable at best. Due to side effects, I stopped taking clonazapan.
Earlyriser13
in
Restless Legs Syndrome
4 years ago
HAS ANYONE WITH PD HAD SPINAL CORD STIMULATOR IMPLANTED FOR POSTURE CORRECTION,PAIN MODULATION AND MOTOR FUNCTION?
I have read that it is similarly to
DBS
,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to
DBS
? Thanks in advance.
I have read that it is similarly to
DBS
,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to
DBS
? Thanks in advance.
OREOLU
in
Cure Parkinson's
4 years ago
DBS - deep brain stimulation for Dystonia
Has anyone on here experienced or has
DBS
plz - I know mainly it’s for Parkinson’s but they do it for Dystonia too & wondered if anyone had the procedure or had any advice plz - I’m yet to have Botox so any advice on that would be most helpful too - or herbal remedies ? Maybe cannabis oil !
Has anyone on here experienced or has
DBS
plz - I know mainly it’s for Parkinson’s but they do it for Dystonia too & wondered if anyone had the procedure or had any advice plz - I’m yet to have Botox so any advice on that would be most helpful too - or herbal remedies ? Maybe cannabis oil !
Toto88
in
Dystonia Society
4 years ago
Poor response to medication
He is considering me as a candidate for Deep Brain stimulation and this scares me, anyone had
DBS
and would like to share how they find it?
He is considering me as a candidate for Deep Brain stimulation and this scares me, anyone had
DBS
and would like to share how they find it?
nanster
in
Cure Parkinson's
4 years ago
DBS procedure
Does anyone know why anyone know why a doctor how the doctor knows which area of the brain to target (GPI or STN) during
DBS
procedure?
Does anyone know why anyone know why a doctor how the doctor knows which area of the brain to target (GPI or STN) during
DBS
procedure?
moonsake10
in
Cure Parkinson's
4 years ago
Coronavirus
And I have
DBS
fitted
And I have
DBS
fitted
Gareth78
in
Dystonia Society
4 years ago
Mirena IUD levonorgestrel levels after 6 years?
Hi there, I decided to have the Mirena IUD fitted 6 years ago for the treatment of Endio and will now need this replaced. Does anyone know how the hormonal side of the Mirena works in terms of longevity. ie Should I expect any side effects when this is replaced as the level of levonorgestrel has lessened
Hi there, I decided to have the Mirena IUD fitted 6 years ago for the treatment of Endio and will now need this replaced. Does anyone know how the hormonal side of the Mirena works in terms of longevity. ie Should I expect any side effects when this is replaced as the level of levonorgestrel has lessened
Posh5000
in
Endometriosis UK
4 years ago
1
...
15
16
17
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
795 results
IBS Network
40 results
Restless Legs Syndrome
31 results
View top 10 communities
Sort by
Most Relevant
Newest