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Deep brain stimulation (DBS)
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Playing with the settings of my brain
Hi all This is a link to my vlog about
DBS
and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Hi all This is a link to my vlog about
DBS
and speech issues. https://www.youtube.com/watch?v=Sn4IP7-px0w Cheers, Ian
Ianfrizell
in
Cure Parkinson's
5 years ago
My SIBO, CFS, IBS recovery plan
Hello Everyone! My name is David. I have suffered from chronic fatigue for many years. I have recently tested positive for Methan Dominant SIBO. I have started a herbal and lifestyle protocol to clear out the bacterial overgrowth and get my life back. Please feel free to follow my blog and monitor my
Hello Everyone! My name is David. I have suffered from chronic fatigue for many years. I have recently tested positive for Methan Dominant SIBO. I have started a herbal and lifestyle protocol to clear out the bacterial overgrowth and get my life back. Please feel free to follow my blog and monitor my
dh2909
in
IBS Network
5 years ago
Hi
Hi guys been to the doctor again and have had my ropinerol upt to 6mg a day the Gabapentin stays the same for now she has also given me folic acid and cholecalciferol 20,000unit 1 capsule 2 days a week for 7 weeks can anyone relate to this
Hi guys been to the doctor again and have had my ropinerol upt to 6mg a day the Gabapentin stays the same for now she has also given me folic acid and cholecalciferol 20,000unit 1 capsule 2 days a week for 7 weeks can anyone relate to this
Jane190
in
Restless Legs Syndrome
5 years ago
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Scottish girl is world's youngest deep brain stimulation patient
Scottish girl is world's youngest deep brain stimulation patient https://www.theguardian.com/science/2019/jul/10/scottish-girl-worlds-youngest-person-to-be-treated-with-deep-brain-stimulation? I've posted about this kind of thing before. Although, deep brain stimulation is a bit extreme for the sorts
Scottish girl is world's youngest deep brain stimulation patient https://www.theguardian.com/science/2019/jul/10/scottish-girl-worlds-youngest-person-to-be-treated-with-deep-brain-stimulation? I've posted about this kind of thing before. Although, deep brain stimulation is a bit extreme for the sorts
monkeybus
in
AMN EASIER
5 years ago
Dystonia and Parkinson's disease: What is the relationship?
Interestingly,
DBS
for PD can cause dystonia such as blepharospasm and bilateral pallidal
DBS
for dystonia can result in features of parkinsonism.
Interestingly,
DBS
for PD can cause dystonia such as blepharospasm and bilateral pallidal
DBS
for dystonia can result in features of parkinsonism.
Farooqji
in
Cure Parkinson's
5 years ago
DBS, has anyone considered this procedure to help with tremors?
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patient’s prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
I am scheduled to have this procedure next month. I have heard some good things from some PD patients and would like to hear other PD patient’s prospective. My diagnosis was in early 2018. Right hand tremor, now taking 25/100 x 3 (3 times/day), my procedure will be on my left side. Meds work, but tire
PHN001
in
Cure Parkinson's
5 years ago
Colofac versus Buscopan
I found Buscopan really helped my IBS (wind on left hand side and pain plus general feeling ill) but the GP said it had been associated with dementia so I stopped. I’m thinking of trying Colofac as peppermint capsules don’t seem to help. Anyone found Colofac helpful?
I found Buscopan really helped my IBS (wind on left hand side and pain plus general feeling ill) but the GP said it had been associated with dementia so I stopped. I’m thinking of trying Colofac as peppermint capsules don’t seem to help. Anyone found Colofac helpful?
Wifflesnook
in
IBS Network
5 years ago
Losing hope
I am not suitable for
DBS
. I recently had a hosptial trial with apomorphine - with out success. I had the first classic PD symptoms a year ago after falling off a ladder. Now 80% of the time i'm a stooped, shuffling, juddering wreck and for much of that 80% i can't move at all.
I am not suitable for
DBS
. I recently had a hosptial trial with apomorphine - with out success. I had the first classic PD symptoms a year ago after falling off a ladder. Now 80% of the time i'm a stooped, shuffling, juddering wreck and for much of that 80% i can't move at all.
pen1
in
Cure Parkinson's
5 years ago
Help me plz linzess and Amitiza
Hello everyone I been having this problem all my life encoperisis and enuresis now I know its more ibs-c i just turn 28 I been trying to get this better but nothing is helping. My gi doctor gave me Linzess 290mg 1 a day but when I go to CvS to pick it up they want 1k for 90 pills yeah no sorry cant pay
Hello everyone I been having this problem all my life encoperisis and enuresis now I know its more ibs-c i just turn 28 I been trying to get this better but nothing is helping. My gi doctor gave me Linzess 290mg 1 a day but when I go to CvS to pick it up they want 1k for 90 pills yeah no sorry cant pay
craigers618
in
IBS Network
5 years ago
Further adjustment required
Hi all This is a link to my vlog about speech problems associated with deep brain stimulation surgery. https://youtu.be/N3SJwYgvVPs Cheers, Ian
Hi all This is a link to my vlog about speech problems associated with deep brain stimulation surgery. https://youtu.be/N3SJwYgvVPs Cheers, Ian
Ianfrizell
in
Cure Parkinson's
5 years ago
Help! My legs are swollen all the time.
I was diagnosed 17 years ago and had
DBS
on my left side to control my tremor in my right arm/hand in 2010. I am scheduled for
DBS
on June 3rd to make my symptoms on the left side behave. The swelling in my legs is terrible.
I was diagnosed 17 years ago and had
DBS
on my left side to control my tremor in my right arm/hand in 2010. I am scheduled for
DBS
on June 3rd to make my symptoms on the left side behave. The swelling in my legs is terrible.
LauraL
in
Cure Parkinson's
5 years ago
Another FUS news. Now from Isreal . Looks like it's replacing DBS
The firm obtained US Food and Drug Administration (FDA) approval for its technology in 2016, based on a clinical study of 76 patients, which demonstrated that the treatment is effective and safe. A three-year follow-up of the same group of patients showed that tremor reduction was sustained over a period
The firm obtained US Food and Drug Administration (FDA) approval for its technology in 2016, based on a clinical study of 76 patients, which demonstrated that the treatment is effective and safe. A three-year follow-up of the same group of patients showed that tremor reduction was sustained over a period
Farooqji
in
Cure Parkinson's
5 years ago
DBS
Anyone that has had
DBS
, would you please share your experience? I’m highly considering starting the approval process. I’m 45, dx in 2008, and have exhausted medication options. I’ve tried diet, exercise, HDT.
Anyone that has had
DBS
, would you please share your experience? I’m highly considering starting the approval process. I’m 45, dx in 2008, and have exhausted medication options. I’ve tried diet, exercise, HDT.
Jlloy5
in
Cure Parkinson's
5 years ago
Another Question about DBS
I’ve been following the latest discussions about
DBS
. It makes me feel hopeful. However, I have a pacemaker already and am wondering if that would disqualify me as a candidate. Has anyone ever heard anything about this? I plan to ask my MDS, but I don’t see him again until next January.
I’ve been following the latest discussions about
DBS
. It makes me feel hopeful. However, I have a pacemaker already and am wondering if that would disqualify me as a candidate. Has anyone ever heard anything about this? I plan to ask my MDS, but I don’t see him again until next January.
Cjbro2000
in
Cure Parkinson's
5 years ago
DBS battery--affecting my symptoms?
I had
DBS
surgery 4.5 years ago. I have been alerted to the fact that my battery needs changing out by my
DBS
monitor, and I am having the minimal surgery on 4/24. I was diagnosed almost 20 years ago (I am now 70) and have stayed fairly functional. Until now.
I had
DBS
surgery 4.5 years ago. I have been alerted to the fact that my battery needs changing out by my
DBS
monitor, and I am having the minimal surgery on 4/24. I was diagnosed almost 20 years ago (I am now 70) and have stayed fairly functional. Until now.
tnleighla
in
Cure Parkinson's
5 years ago
dystonia after requip
As time went on he got a
DBS
but never was able to resolve the dystonia. He continued to be on Requip until well after his
DBS
placement. It has been frustrating for me because I know that Requip was the devil that caused my husband's iissues.
As time went on he got a
DBS
but never was able to resolve the dystonia. He continued to be on Requip until well after his
DBS
placement. It has been frustrating for me because I know that Requip was the devil that caused my husband's iissues.
Grvarley
in
Cure Parkinson's
5 years ago
Need Help and Advice On What I Can Do To Relieve The Intensity Level of My Current and Parkinsons Disease Symptoms
The course of action they are investlgating is either a duo pump or possibly
DBS
surgery. At this time I am not sure if and when this would take place, but I am currently having a lot of problems which is also interfering with my family life as well. I have been following Dr.
The course of action they are investlgating is either a duo pump or possibly
DBS
surgery. At this time I am not sure if and when this would take place, but I am currently having a lot of problems which is also interfering with my family life as well. I have been following Dr.
neilp02
in
Cure Parkinson's
5 years ago
WHICH WOULD YOU CONSIDER AS THE MOST BENEFICIAL TO YOU AS A PD TREATMENT? MEDICATION OR DBS.
opinions we go a long way to help me decide on my options,at the right time.Please if you have been on medication therapy for sveral years and then opted for surgery with DBS.Kindly share your experiences.As I understand through my searches online and communication with different online PD experts,that
DBS
opinions we go a long way to help me decide on my options,at the right time.Please if you have been on medication therapy for sveral years and then opted for surgery with DBS.Kindly share your experiences.As I understand through my searches online and communication with different online PD experts,that
DBS
GBAMIGOD
in
Cure Parkinson's
5 years ago
B1 Intolerance
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
JeanieBeanie
in
Cure Parkinson's
5 years ago
Anyone on Inbrija
Finally got our Inbrija prescription. 2 capsules at a time seems too strong ( PWP is on a low dose of rytary due to
DBS
). Jury is still out. Anyone else try it yet?
Finally got our Inbrija prescription. 2 capsules at a time seems too strong ( PWP is on a low dose of rytary due to
DBS
). Jury is still out. Anyone else try it yet?
Adnelg54
in
Cure Parkinson's
5 years ago
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