Experiences with

Deep brain stimulation (DBS)

Can anyone who has had DBS and also had/has Restless Legs Syndrome as part of their Parkinson's symptoms tell me what happened to their Restless legs after DBS?

So i'm going to trial lowering my levodopa by baby steps...and start thinking seriously about DBS. Since we don't know to what extent Medicare will cover Vyalev, and my guess is they'll put up as many roadblocks as possible, it may just make more sense to go ahead with starting the DBS process.

There was a post to the technical paper in Nature Medicine a few weeks ago about an innovation to traditional DBS. Adaptive DBS involves putting in brain sensors to automatically increase or reduce the amount of stimulation.

I’ve started the process to have DBS. My question is to those who have had the procedure….does DBS relieve this type of muscle strain? Thank you

My neurologist has recommended for DBS . As per the data ,I am informed that the success rate is 90%.Here also the neurologists are divided in two. Few says that medicine will continue even after DBS while other say no.

si=bIdoBFZ6JCL94ZCz above link talks about DBS, Duodopa, Vyalev and Focused Ultrasound, including patient feedback . I thought it’s a useful information to share. Laura

I had DBS in late August. I lost 20 pounds waiting. I had bradykinesia mostly in the lower extremities.

My Partner had the second DBS surgery last week. Installed Medtronic. When is the equipment tuned to experience the benefits? Does it need to be tuned regularly or only once? We are hoping for a great outcome. She is female 56 years has had Parkinson’s for over 10 years. Thank you Richard

Abbott announced it has initiated a pivotal clinical trial, called the TRANSCEND study, to evaluate the use of the company's deep brain stimulation (DBS) system to manage treatment-resistant depression (TRD), a form of major depressive disorder.

The local hospital performs “awake” DBS. I’ve had several back procedures over the past 18 yrs where I was lightly sedated but no anesthesia . In 3 cases I went vagal and passed out. The procedures were aborted.

The downside was a loss of balance which is not addressed by the DBS, unfortunately. So now I’d like more information about the pacemaker for Parkinson’s because I’m tired of falling over and breaking various bones.

Since EMPs (electromagnetic pulse) can disrupt electronics, does anyone know if an (EMP) can potentially fry the electrical components present in my DPS apparatus? Sources of of EMPs include Nuclear explosions or massive solar flares. I guess my potentially fried brain is the least of my problems

I was approved and recently had DBS. The doctors at this facility insisted that only one side of my brain was completed per surgery. Now the doctor wants to wait for the other side until next year.

As I get closer to one of the "Big Three" procedures- Dbs, Vyalet pump or PTT-Fus, I'm trying to get a feel for the total amount of levadopa (c/l or c/l + mucuna, etc..) people were taking before and now after their new selves are up and running.

Its like waiting for the executioner. Fingers crossed I'll come through it ok and start the new year with improving symptoms. Im told it'll be a four hour operation and that I could be home next day. Wish me luck.

First Patient The 47-year-old patient who received the first aDBS treatment outside of a study setting yesterday had previously been treated with DBS. "However, he still experienced side effects.

It feels like my DBS surgery is getting nearer. I have an appointment for a pre-op on Sunday and was wondering if anyone knows what to expect?Is there anything I should prepare for? Cheers

He was an MIT and Stanford grad so I thought he must know something about DBS so I made the decision to go for it. My surgery was this last Tuesday 12/17/24 and as of today i couldn’t be happier.

Its been a long drawn out process but I will be having my DBS surgery in two weeks on 31st December. So if all goes well I'll be starting next year all wired up and by February ready to go.Just a few quick questions. The surgeon tells me that I should be ready to walk out the next day.

I'm wishing apon my lucky star, that I will be put on a waiting list soon for DBS or a subcutaneous injectiion pump, but I'm not holding my breath. Our medical system here in Canada is in poor shape, with several years long waiting lists for DBS.