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Experiences with
Deep brain stimulation (DBS)
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I have to fight the Beast
That's when I decided to look in clinical trials because I didn't want
DBS
. And found a trial that uses gene therapy this was 2009 and was lucky to get chosen . Went to Boston to have it done had 2 holes drilled in my head and had it done.
That's when I decided to look in clinical trials because I didn't want
DBS
. And found a trial that uses gene therapy this was 2009 and was lucky to get chosen . Went to Boston to have it done had 2 holes drilled in my head and had it done.
Hidden
in
Cure Parkinson's
13 years ago
positive thinking and dealing with parkinsons,
Hi i am maria and i am a 53 mother of 3 grown up daughters me and my husband became grandparents in march with a grandson, + another grandchild dew in feb 2012 next year, basically was diagnosed at 40 went as far as i could on meds so went on the 10 year trial for deep brain stimulation in newcastle
Hi i am maria and i am a 53 mother of 3 grown up daughters me and my husband became grandparents in march with a grandson, + another grandchild dew in feb 2012 next year, basically was diagnosed at 40 went as far as i could on meds so went on the 10 year trial for deep brain stimulation in newcastle
mazpar
in
Cure Parkinson's
13 years ago
Parkinson's and Quality of Life - a patient's perspective
To a neurologist or neurosurgeon observing my dyskinesias, the option of deep brain stimulation (
DBS
) may seem like a logical choice. However, any procedure that could potentially compromise my ability to communicate is not worth the risk for me, even if it benefits my motor symptoms.
To a neurologist or neurosurgeon observing my dyskinesias, the option of deep brain stimulation (
DBS
) may seem like a logical choice. However, any procedure that could potentially compromise my ability to communicate is not worth the risk for me, even if it benefits my motor symptoms.
CPT_Tom
in
Cure Parkinson's
13 years ago
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Deep Brain Stimlation (DBS)
I recently (June2nd) had the
DBS
op at the John Radcliffe Hospital in Oxford. Having had PD for 17 years I would say the op has been a success. It is early days yet, but I hope to be back playing golf & tennis in the not too distant future.
I recently (June2nd) had the
DBS
op at the John Radcliffe Hospital in Oxford. Having had PD for 17 years I would say the op has been a success. It is early days yet, but I hope to be back playing golf & tennis in the not too distant future.
compucure
in
Cure Parkinson's
13 years ago
Has anyone had the Deep Brain Stimulation (DBS) op? I have just had the op and am keen to share experiences. I have had PD for 17 years.
I would also be keen to know if anyone with PD goes to a gym. I go 2-3 times per week and again would be keen to share experiences. Thanks. Tony
I would also be keen to know if anyone with PD goes to a gym. I go 2-3 times per week and again would be keen to share experiences. Thanks. Tony
compucure
in
Cure Parkinson's
13 years ago
Getting On Track
There is a honeymoon period with
dbs
. I felt so great the first week that I forgot to take my meds but then by the 2nd week everything kind of settle in. I finally figured out my daily dose of meds and got on track. . While this isn't the cure every ones hoping for its a start..
There is a honeymoon period with
dbs
. I felt so great the first week that I forgot to take my meds but then by the 2nd week everything kind of settle in. I finally figured out my daily dose of meds and got on track. . While this isn't the cure every ones hoping for its a start..
Captsteve
in
Cure Parkinson's
13 years ago
Measuring Tourette's
There is even a case of deep brain stimulation (
DBS
) where the patient's tics were a lot better after the operation, but they they didn't actually feel any better as they still had the urge to tic- an example of hard numbers not telling the truth of the situation.
There is even a case of deep brain stimulation (
DBS
) where the patient's tics were a lot better after the operation, but they they didn't actually feel any better as they still had the urge to tic- an example of hard numbers not telling the truth of the situation.
sternj
in
Tourettes Action
14 years ago
Monkey Gone to Heaven
However,
DBS
is being used for the treatment of Parkinson’s disease, the the vast majority of
DBS
research that has been carried out has I the main been for PD and Epilepsy.
However,
DBS
is being used for the treatment of Parkinson’s disease, the the vast majority of
DBS
research that has been carried out has I the main been for PD and Epilepsy.
catherinem
in
Tourettes Action
13 years ago
Measuring Tourette's
There is even a case of deep brain stimulation (
DBS
) where the patient's tics were a lot better after the operation, but they they didn't actually feel any better as they still had the urge to tic- an example of hard numbers not telling the truth of the situation.
There is even a case of deep brain stimulation (
DBS
) where the patient's tics were a lot better after the operation, but they they didn't actually feel any better as they still had the urge to tic- an example of hard numbers not telling the truth of the situation.
sternj
in
Tourettes Action
14 years ago
The Dreaded Manflu
I’ve escaped! Well, for a short while, whilst we enjoy a lovely Christmas dinner with the in-laws. Yesterday was my 37th birthday which the walking manflu didn’t realise until 3.15, no card, no present, (no Christmas present either) this has been an on-going problem since 2003 not just a manflu hic-up
I’ve escaped! Well, for a short while, whilst we enjoy a lovely Christmas dinner with the in-laws. Yesterday was my 37th birthday which the walking manflu didn’t realise until 3.15, no card, no present, (no Christmas present either) this has been an on-going problem since 2003 not just a manflu hic-up
catherinem
in
Tourettes Action
13 years ago
tummy and bowel pain
does anyone suffer with tummy and bowel problems. i never did up untill i decome ill. i now have alot of acid and burning in my tummy, also very sensitive to food and medication. i can hardly tolorate any meds. my bowels seem to join in with my tummy with cramps,spasms, bloating and wind. any of this
does anyone suffer with tummy and bowel problems. i never did up untill i decome ill. i now have alot of acid and burning in my tummy, also very sensitive to food and medication. i can hardly tolorate any meds. my bowels seem to join in with my tummy with cramps,spasms, bloating and wind. any of this
nerri
in
LUPUS UK
12 years ago
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