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Experiences with
D-bifunctional protein (DBP) deficiency
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Drugs/food and drink that interfere with Levothyroxine Absorption
http://www.worstpills.org/public/page.cfm?op_id=420 Interactions that result in reduced levothyroxine absorption: CALCIUM PRODUCTS calcium carbonate (TUMS) calcium carbonate and magnesium hydroxide (ROLAIDS) OTHER ANTACIDS aluminum hydroxide (AMPHOJEL) iron supplements ferrous sulfate (FEOSOL
http://www.worstpills.org/public/page.cfm?op_id=420 Interactions that result in reduced levothyroxine absorption: CALCIUM PRODUCTS calcium carbonate (TUMS) calcium carbonate and magnesium hydroxide (ROLAIDS) OTHER ANTACIDS aluminum hydroxide (AMPHOJEL) iron supplements ferrous sulfate (FEOSOL
Nathalina
in
Thyroid UK
11 years ago
can you have a full vitamin blood panel test on NHS?
Hi everyone, Quick query, I was wondering if its possible to have a full vitamins level blood test done on the NHS? Does this exist? I've so far had my iron, b12 and folates tested in june. my iron was 35.7 and b12 227 and folates 10. As my iron and b12 are low (not sure if folates are? They were
Hi everyone, Quick query, I was wondering if its possible to have a full vitamins level blood test done on the NHS? Does this exist? I've so far had my iron, b12 and folates tested in june. my iron was 35.7 and b12 227 and folates 10. As my iron and b12 are low (not sure if folates are? They were
lulujeanne
in
Thyroid UK
11 years ago
Director of DBS Clinical Research Development.. Department of Neurosurgery, Anatomy and Neurobiolology, University of Kentucky.
I had the most amazing experience last week! Just tell me...what are the chances that someone on this blog site would be in my clinic....sitting in front of me...having had consultations with me....going through DBS, with me sitting by their side every step of the way..there when it's all over? I would
I had the most amazing experience last week! Just tell me...what are the chances that someone on this blog site would be in my clinic....sitting in front of me...having had consultations with me....going through DBS, with me sitting by their side every step of the way..there when it's all over? I would
annh
in
Cure Parkinson's
11 years ago
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After being diagnosed for 5 years, I'm facing DBS. Is there anyone who has regretted having it? I will be getting it at Barrow Neurological.
parkinsonspistol
in
Cure Parkinson's
11 years ago
Does anyone have experience of using LDN (Low Dose Naltrexone) and Topiramate, alongside Thyroxine 25mg please?
I have used LDN and Topiramate for a couple of years after being told (wrongly) I have CFS. LDN is an Immune Modulator and Topiramate is for Migraines. I have just started taking Thyroxine 25mg, and don't good at all! I am not sure if this is because I have started taking Thyroxine or because I am taking
I have used LDN and Topiramate for a couple of years after being told (wrongly) I have CFS. LDN is an Immune Modulator and Topiramate is for Migraines. I have just started taking Thyroxine 25mg, and don't good at all! I am not sure if this is because I have started taking Thyroxine or because I am taking
catsndogs
in
Thyroid UK
11 years ago
MHRA: Intravenous iron and serious hypersensitivity reactions: new strengthened recommendations to manage and minimise risk
At least one person here has related that they had an iron infusion. For that person and anyone else who is interested, the MHRA have made significant changes to reduce risk. [i]Intravenous iron and serious hypersensitivity reactions: new strengthened recommendations to manage and minimise risk
At least one person here has related that they had an iron infusion. For that person and anyone else who is interested, the MHRA have made significant changes to reduce risk. [i]Intravenous iron and serious hypersensitivity reactions: new strengthened recommendations to manage and minimise risk
helvella
Thyroid UK
in
Thyroid UK
11 years ago
dbs
i got home from the hospital had dbs all went very well
i got home from the hospital had dbs all went very well
salon
in
Cure Parkinson's
11 years ago
Question about B12 Again ( sorry )
Hi, Although I haven't tested for iron ( Iam a TT case ) I remember reading about that without thyroids your body does not absorb the iron normally from the food ( correct ?) I have ordered the Methylcobalamin tablets from Amazon and wonder that even if I haven't been tested is it ok to start the iron
Hi, Although I haven't tested for iron ( Iam a TT case ) I remember reading about that without thyroids your body does not absorb the iron normally from the food ( correct ?) I have ordered the Methylcobalamin tablets from Amazon and wonder that even if I haven't been tested is it ok to start the iron
ThyroidHell
in
Thyroid UK
11 years ago
i am scheduled for dbs on sept 13 and 16 any words of wisdom please advise
salon
in
Cure Parkinson's
11 years ago
Does having DBS reduce or eliminate the number of falls compared with before the operation?
A friend of mine has had DBS, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the DBS 'adjusted' or by having had a change in their medication?
A friend of mine has had DBS, but still falls, sometimes daily. Has anyone had the same experience, but eliminated falling by having the DBS 'adjusted' or by having had a change in their medication?
Norton1
in
Cure Parkinson's
11 years ago
DBS for gait freezing
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for DBS. Has anyone on this site had DBS for gait freezing and at what age did you have it?
I don't have a tremor but suffer with gait freezing.I'm 70 and have been told I'm too old for DBS. Has anyone on this site had DBS for gait freezing and at what age did you have it?
camper
in
Cure Parkinson's
11 years ago
My doctors say my test results are fine but...
Hi, I have been so unwell had the sweats so third coming down ill all the time. So I had some test done the doctors said was all fine. But I got a print out and my TSH level was 4.79 the range is (0.27-4.2) T4 was ok at 13.6 but my basophils count is above range and so is Eosinophil. I always have iron
Hi, I have been so unwell had the sweats so third coming down ill all the time. So I had some test done the doctors said was all fine. But I got a print out and my TSH level was 4.79 the range is (0.27-4.2) T4 was ok at 13.6 but my basophils count is above range and so is Eosinophil. I always have iron
pepsirat
in
Thyroid UK
11 years ago
Use of anti-epileptic drugs and risk of hypothyroidism
This paper may be of interest to those of you who have taken anti-epileptic drugs (AED) such as phenytoin, valproate, phenobarbital, carbamazepine, and oxcarbazepine. [i]Pharmacoepidemiol Drug Saf. 2013 Aug 15. doi: 10.1002/pds.3498. [Epub ahead of print]
Use of antiepileptic drugs and risk
This paper may be of interest to those of you who have taken anti-epileptic drugs (AED) such as phenytoin, valproate, phenobarbital, carbamazepine, and oxcarbazepine. [i]Pharmacoepidemiol Drug Saf. 2013 Aug 15. doi: 10.1002/pds.3498. [Epub ahead of print]
Use of antiepileptic drugs and risk
helvella
Thyroid UK
in
Thyroid UK
11 years ago
Deep-brain stimulation (DBS) - some information
Hello everyone There was a very informative programme about DBS yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Hello everyone There was a very informative programme about DBS yesterday on BBC TV radio 4 - see http://www.bbc.co.uk/learningzone/clips/deep-brain-stimulation-a-treatment-for-depression/5364.html Partner
Partner
in
Cure Parkinson's
11 years ago
Has anyone had slow but some response to dbs? My Dr.is working it up slowly as my meds.are reduced. It is difficult to be patient!
nonnie
in
Cure Parkinson's
11 years ago
I was about to start a course of Ibrutinib as a treatment naive patient and was told that I must wait until my anaemia was under control.
I have been told I must have two pints of blood transfused and a course of steroids, does anyone have any knowledge/experience of AIHA which is the possible cause of this fatigue/anaemia with a haemoglobin count of eight and no other symptoms since diagnosis eight years ago?
I have been told I must have two pints of blood transfused and a course of steroids, does anyone have any knowledge/experience of AIHA which is the possible cause of this fatigue/anaemia with a haemoglobin count of eight and no other symptoms since diagnosis eight years ago?
Berrytog
in
CLL Support
11 years ago
Family of Henrietta Lacks agrees to release of genomic data
"The HeLa cell line was established in 1951 from a biopsy of a cervical tumour taken from Henrietta Lacks, a working-class African-American woman living near Baltimore. The cells were taken without the knowledge or permission of her or her family, and they became the first human cells to grow well in
"The HeLa cell line was established in 1951 from a biopsy of a cervical tumour taken from Henrietta Lacks, a working-class African-American woman living near Baltimore. The cells were taken without the knowledge or permission of her or her family, and they became the first human cells to grow well in
AussieNeil
Partner
in
CLL Support
11 years ago
tomorrow is my appt for psychology workup prior to dbs any thoughts or tips for me?thanks please reply with your experience.
salon
in
Cure Parkinson's
11 years ago
Iron supplementation
My ferritin is still too low inspite of supplementing and taking the iron with orange juice to aid absorption. I am using Spatone as it is supposed to be kind on the digestive system. Can anyone recommend another brand or suggest ways I cd increase my iron uptake.
My ferritin is still too low inspite of supplementing and taking the iron with orange juice to aid absorption. I am using Spatone as it is supposed to be kind on the digestive system. Can anyone recommend another brand or suggest ways I cd increase my iron uptake.
Caze
in
Thyroid UK
11 years ago
DBS they will not change the battery . Feel like I am in some sick study. For over a year I have been told the battery is good for 3 months.
I say you said that last time and the time before . I told them its not working only to be told it is. I ask them to prove it and turn it off. Only to be fob off with if we turn it off may not be able to switch it on again . I don't believe them. my question is has any had a DBS switch off and on
I say you said that last time and the time before . I told them its not working only to be told it is. I ask them to prove it and turn it off. Only to be fob off with if we turn it off may not be able to switch it on again . I don't believe them. my question is has any had a DBS switch off and on
export
in
Cure Parkinson's
11 years ago
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