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D-bifunctional protein (DBP) deficiency
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CLEAR POINT OR MRI INTERVENTION DBS SURGERY VOTED "No" BY UCLA BOARD OF REGENTS
I got the devastating news on Weds. that after waiting over a year for the surgery which was again promised in 30 to 60 days in August we were told they have decided not to do this surgery at UCLA . I have gotten progressively worse & had my hopes on this surgery! Now it appears we have to look at
I got the devastating news on Weds. that after waiting over a year for the surgery which was again promised in 30 to 60 days in August we were told they have decided not to do this surgery at UCLA . I have gotten progressively worse & had my hopes on this surgery! Now it appears we have to look at
wynn7
in
Cure Parkinson's
11 years ago
DBS and me
http://sukas-myworld.blogspot.com/2013/11/dbs-and-me.html
http://sukas-myworld.blogspot.com/2013/11/dbs-and-me.html
SuKas
in
Cure Parkinson's
11 years ago
What are the attributes of an effective treatment for PD?
Is a regimen of daily ingestion of Coconut Oil an effective treatment for Parkinson’s disease? If effective means effective cure, then the answer is NO. Is there something better? Again the answer is NO! https://www.michaeljfox.org/glossary.php#nuerons “No currently available treatment for Parkinson's
Is a regimen of daily ingestion of Coconut Oil an effective treatment for Parkinson’s disease? If effective means effective cure, then the answer is NO. Is there something better? Again the answer is NO! https://www.michaeljfox.org/glossary.php#nuerons “No currently available treatment for Parkinson's
fwes
in
Cure Parkinson's
11 years ago
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Longest Surviving DBS Patient Dies
Dick Lee Swindler had DBS surgery in 1995, 18 years of service. Dick Lee Swindler, 68, of Olathe, died October 12, 2103. He was born on October 27, 1944, in Pratt, KS. He was the son of John Herbert and Margaret Alice (Talbott) Swindler. He is survived by his wife, Marjorie, son Sean Swindler and daughter
Dick Lee Swindler had DBS surgery in 1995, 18 years of service. Dick Lee Swindler, 68, of Olathe, died October 12, 2103. He was born on October 27, 1944, in Pratt, KS. He was the son of John Herbert and Margaret Alice (Talbott) Swindler. He is survived by his wife, Marjorie, son Sean Swindler and daughter
fwes
in
Cure Parkinson's
11 years ago
Hospitalisation and other things
I will do my best to remember that I have this account and try and post on here from time to time.It has been such a long time since I posted on here (just over a year, maybe a little more). This is somewhere I need to remember to post really, as it's a good source for people to find information on
I will do my best to remember that I have this account and try and post on here from time to time.It has been such a long time since I posted on here (just over a year, maybe a little more). This is somewhere I need to remember to post really, as it's a good source for people to find information on
alexfrombath
in
Tourettes Action
11 years ago
Vitamin b12 deficiency or pernicious anaemia? How to know the difference?
Recently you good people explained how my vitamin B 12 was way too low...it was somewhere in the 280 region (reference 225 - 1100). I am seeing my GP in the week and I need to be knowledgeable. As well as having coeliac disease and an underactive thyroid, I have been diagnosed with UCTD: recently I
Recently you good people explained how my vitamin B 12 was way too low...it was somewhere in the 280 region (reference 225 - 1100). I am seeing my GP in the week and I need to be knowledgeable. As well as having coeliac disease and an underactive thyroid, I have been diagnosed with UCTD: recently I
bestbuddy
in
Thyroid UK
11 years ago
Blood test results show iron deficiency & Vit D deficiency - advice please
Hi lovely people! You've been so helpful to me over the last 6 months, can I ask some more advice please. I am hypothyroid and take 100 levothyroxine daily. However, I am sooo tired still, my legs ache when I climb stairs and when I get up from a seat it takes a while until I can walk properly. I
Hi lovely people! You've been so helpful to me over the last 6 months, can I ask some more advice please. I am hypothyroid and take 100 levothyroxine daily. However, I am sooo tired still, my legs ache when I climb stairs and when I get up from a seat it takes a while until I can walk properly. I
Tweetypie28
in
Thyroid UK
11 years ago
DBS and freezing...does the surgery help control freezing episodes?.My MDS says no.just wondered if anyone had any success.
ivyanne
in
Cure Parkinson's
11 years ago
Blood test results -- August 2013
Hi guys, These are the complete results of my blood test from August since starting the Levothyroxine. Everything from the printout is here in case anyone can see some sort of link. Total white blood cell count (normal 4.00-10.00) - 5.20 Red blood cell count (normal 3.80-4.80) - 4.94 Haemoglobin estimation
Hi guys, These are the complete results of my blood test from August since starting the Levothyroxine. Everything from the printout is here in case anyone can see some sort of link. Total white blood cell count (normal 4.00-10.00) - 5.20 Red blood cell count (normal 3.80-4.80) - 4.94 Haemoglobin estimation
Hidden
in
Thyroid UK
11 years ago
DBS SURVEYS
Hey Parkies, I almost 4got to let u no about an orgaination, that specializes In surveys for DBS patients. I have been taking them 4 over a year now. It is called dbs4pd.org. And 4 the parkies that r homebound , u no longer have to say I can't partisapate because I can't get out, no reason now not
Hey Parkies, I almost 4got to let u no about an orgaination, that specializes In surveys for DBS patients. I have been taking them 4 over a year now. It is called dbs4pd.org. And 4 the parkies that r homebound , u no longer have to say I can't partisapate because I can't get out, no reason now not
fronya69
in
Cure Parkinson's
11 years ago
What is DBS?
Pheonixalight
in
Cure Parkinson's
11 years ago
DBS? . . . . . HELP!
I had an appointment with my neurologist this week. She is a movement disorder specialist and is a big proponent of DBS. I've known this about her since I began seeing her almost 2 years ago. However, we hadn't really discussed DBS prior to this most recent visit. At my appointment she told me that
I had an appointment with my neurologist this week. She is a movement disorder specialist and is a big proponent of DBS. I've known this about her since I began seeing her almost 2 years ago. However, we hadn't really discussed DBS prior to this most recent visit. At my appointment she told me that
IamJoel56
in
Cure Parkinson's
11 years ago
Blood results help please! I FEEL underactive, but as per usual, am told ...NORMAL!
RAI treatment 2010 - so no working thyroid of my own. (no ref range written for Free T4 and most of the others are missing - but verbally over phone Doc said - range is 6 - 22 (?) so perfectly acceptable within range! I feel LOW!) Serum Free T4 - 9pmol/L Serum TSH - 0.06 (LOW result - 0.30-5.00)
RAI treatment 2010 - so no working thyroid of my own. (no ref range written for Free T4 and most of the others are missing - but verbally over phone Doc said - range is 6 - 22 (?) so perfectly acceptable within range! I feel LOW!) Serum Free T4 - 9pmol/L Serum TSH - 0.06 (LOW result - 0.30-5.00)
jimjim
in
Thyroid UK
11 years ago
DBS and weight gain plus blow to head
Had DBS more than year and half ago after being diagnosed with pd over 17 years ago . About 6 month I got hit in head with a bar across entry to public garage and then six month later ad a ad fall and hit he's don kitchen counter, seems after first hit I gained a few pounds. Had not gained any after
Had DBS more than year and half ago after being diagnosed with pd over 17 years ago . About 6 month I got hit in head with a bar across entry to public garage and then six month later ad a ad fall and hit he's don kitchen counter, seems after first hit I gained a few pounds. Had not gained any after
FifteenyearsPD
in
Cure Parkinson's
11 years ago
Iron Infusion - will this kick my Thyroxine into action and make me feel over medicated ?
My Gastroenterologist has decided to give me an iron infusion because my ferritin levels have not gone over 14 in 2 years. As we know iron effects how the Thyroxine works and I assume because of my iron levels that full potential has not been reached. Has anyone had an iron infusion, and did it affect
My Gastroenterologist has decided to give me an iron infusion because my ferritin levels have not gone over 14 in 2 years. As we know iron effects how the Thyroxine works and I assume because of my iron levels that full potential has not been reached. Has anyone had an iron infusion, and did it affect
Jessiepup
in
Thyroid UK
11 years ago
Two questions for those with DBS
There has been several questions recently about DBS which leads me to 2 more. There are 2 different sites for electrode placement. One is the globus pallidus internus and the other is the more common site, the subthalamic nucleus. Do you know which site has been used in your procedure? Also, prior
There has been several questions recently about DBS which leads me to 2 more. There are 2 different sites for electrode placement. One is the globus pallidus internus and the other is the more common site, the subthalamic nucleus. Do you know which site has been used in your procedure? Also, prior
etterus
in
Cure Parkinson's
11 years ago
I have Hypothyroidism,and i'm taking iron tablets for being anemic, will the iron tablts change the affects of the thyroxine? thanks Anita
anitajeanwebb
in
Thyroid UK
11 years ago
Does anyone who has had DBS experience sharp, electrical like pains shooting down their legs. If so, can anything be done about it?
I am posing this question on behalf of a friend who has had DBS, but does not use the Internet. He had his DBS operation four years ago and goes for a 2 day assessment in London later this week.
I am posing this question on behalf of a friend who has had DBS, but does not use the Internet. He had his DBS operation four years ago and goes for a 2 day assessment in London later this week.
Norton1
in
Cure Parkinson's
11 years ago
Mother and Baby Volunteer Search
Dear new parents or parents to be, My name is Ayla and I am studying a Psychoanalytic Observational Studies course at The Tavistock and Portman trust and I am looking for a mother to volunteer with her newborn baby to take part in the Infant Observation sessions as a part of my studies. In order to
Dear new parents or parents to be, My name is Ayla and I am studying a Psychoanalytic Observational Studies course at The Tavistock and Portman trust and I am looking for a mother to volunteer with her newborn baby to take part in the Infant Observation sessions as a part of my studies. In order to
Aylam88
in
Pregnancy and Parenting Support
11 years ago
DBS
I have had DBS on Nov 2012,...... inspite of several tuning sessions unable to find the "sweet" spot.... frustrated
I have had DBS on Nov 2012,...... inspite of several tuning sessions unable to find the "sweet" spot.... frustrated
SuKas
in
Cure Parkinson's
11 years ago
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