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Experiences with
D-bifunctional protein (DBP) deficiency
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Having DBS done?
I was wondering if anyone out there has had DBS. My doctor says nows the time for me to get it, and I would like to talk to other people who have had it done, and have they had a bad side effects from it. I live in Chicago and am thinking about going to RUSH hospital. Any info would be helpful. Thanks
I was wondering if anyone out there has had DBS. My doctor says nows the time for me to get it, and I would like to talk to other people who have had it done, and have they had a bad side effects from it. I live in Chicago and am thinking about going to RUSH hospital. Any info would be helpful. Thanks
shakietwo
in
Cure Parkinson's
6 years ago
Please can I have some help with blood tests
I have looked at the graph for over 15 years posted patient access. It’s the first time I have got into normal range for second 3 things. I have introduced T3 and been gluton free for 1 year. My belief is that is the reason, blessings because of this forum , White count. 3.89. Range.
I have looked at the graph for over 15 years posted patient access. It’s the first time I have got into normal range for second 3 things. I have introduced T3 and been gluton free for 1 year. My belief is that is the reason, blessings because of this forum , White count. 3.89. Range.
Gcart
in
Thyroid UK
6 years ago
Anaemia
Happy New Year to you all! I'm wondering if anybody out there takes an iron supplement for iron deficiency anaemia? I have cirrhosis and have been diagnosed with anaemia. My GP has just prescribed 2 x 250 mg daily. At what level does iron become toxic for the liver? I'd be grateful to hear from anyone
Happy New Year to you all! I'm wondering if anybody out there takes an iron supplement for iron deficiency anaemia? I have cirrhosis and have been diagnosed with anaemia. My GP has just prescribed 2 x 250 mg daily. At what level does iron become toxic for the liver? I'd be grateful to hear from anyone
Darsmum100
in
British Liver Trust
6 years ago
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Some advice on low iron
Hi I just been recently told by my Doctor I'am iron deficient but without Anaemia. My ferritin level was 9 u/gl my symptoms before this and still are light headeness, fuzzy head, extreme tiredness, headaches. (I have heavy mentraul cycles) I have been put on iron tablets 4 weeks ago and I can see a
Hi I just been recently told by my Doctor I'am iron deficient but without Anaemia. My ferritin level was 9 u/gl my symptoms before this and still are light headeness, fuzzy head, extreme tiredness, headaches. (I have heavy mentraul cycles) I have been put on iron tablets 4 weeks ago and I can see a
23Elisha
in
Pernicious Anaemia Society
6 years ago
Anaemia
Hi I have coeliac and hasimotos. My consultant says I'm anaemic but not due to iron now ?? But gave me iron tablets before the blood results ( after a normal colonoscopy) and they made my hemmoroids worse which was counterproductive so just taking one. Not seeing him till April ?????
Hi I have coeliac and hasimotos. My consultant says I'm anaemic but not due to iron now ?? But gave me iron tablets before the blood results ( after a normal colonoscopy) and they made my hemmoroids worse which was counterproductive so just taking one. Not seeing him till April ?????
JoanneG45
in
Thyroid UK
6 years ago
Blood test ok? Some advice on this please (new member)
Uploaded blood test result if anyone can tell these are ok? I was told they were by GP; other results were: Ferritin 23 u/gl (raised from 10 u/gl , after 4 weeks of taking prescribed ferrous fumurate prescribed by GP for iron deficiency) Full blood count seems to be ok Haemoglobin is now 139 (range
Uploaded blood test result if anyone can tell these are ok? I was told they were by GP; other results were: Ferritin 23 u/gl (raised from 10 u/gl , after 4 weeks of taking prescribed ferrous fumurate prescribed by GP for iron deficiency) Full blood count seems to be ok Haemoglobin is now 139 (range
Cheryl1986
in
Thyroid UK
6 years ago
PA (percnais SP? anemia? She has OK b12 and low iron. Why?
Sorry to be so uninformed but I thought the PA (can't spell the type of anemia) could be from low b12 EVEN THOUGH it tests normal (the b12 I mean). My daughter has been low on iron for a long time. Iron pills don't work and cause extreme constipation. She was given an infusion of iron...we're waiting
Sorry to be so uninformed but I thought the PA (can't spell the type of anemia) could be from low b12 EVEN THOUGH it tests normal (the b12 I mean). My daughter has been low on iron for a long time. Iron pills don't work and cause extreme constipation. She was given an infusion of iron...we're waiting
Lynne0762
in
Thyroid UK
6 years ago
New mememer ...Advice on iron deficiency please
I have very heavy periods. And recently had a full blood count and got told my iron ferritin was 10 u/gl (range 10-291 u/gl) GP gave me ferrous fumurate 210mg iron tablets I had never heard of these tablets but they are a small brown tablet taken orally. I have been taking these for nearly 3 weeks
I have very heavy periods. And recently had a full blood count and got told my iron ferritin was 10 u/gl (range 10-291 u/gl) GP gave me ferrous fumurate 210mg iron tablets I had never heard of these tablets but they are a small brown tablet taken orally. I have been taking these for nearly 3 weeks
Cheryl1986
in
Thyroid UK
6 years ago
Hashimotos plus low iron levels
I would like to hear of others experiences with Hashimotos plus low iron levels. I am having an iron infusion tomorrow. Thankyou in advance.
I would like to hear of others experiences with Hashimotos plus low iron levels. I am having an iron infusion tomorrow. Thankyou in advance.
Josieaus
in
Thyroid UK
6 years ago
Deep Brain Stimulation
Thought about DBS? Please view my daughter's 7 minute video on my experience with Deep Brain Stimulation. (Spoiler: it worked!) https://youtu.be/QjuoZhSv-XI Thanks, folks.
Thought about DBS? Please view my daughter's 7 minute video on my experience with Deep Brain Stimulation. (Spoiler: it worked!) https://youtu.be/QjuoZhSv-XI Thanks, folks.
Richter
in
Cure Parkinson's
6 years ago
Low battery Medtronic DBS increasing off time
I’m currently waiting for approval for the replacement of my DBS battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
I’m currently waiting for approval for the replacement of my DBS battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
etterus
in
Cure Parkinson's
6 years ago
Further Advise please on low iron symptoms
GP says iron ferritin (from blood test) is low (I had a 32 days bleed from a colcoscopy procedure on my cervix to remove abnormal cells that made me have like a very heavy period for so long and also had an infection from the procedure, finally the bleeding stopped just over a week ago) my iron ferritin
GP says iron ferritin (from blood test) is low (I had a 32 days bleed from a colcoscopy procedure on my cervix to remove abnormal cells that made me have like a very heavy period for so long and also had an infection from the procedure, finally the bleeding stopped just over a week ago) my iron ferritin
Hidden
in
Thyroid UK
6 years ago
HDT for people who have had DBS
Just wondering if high dose thiamine is helpful for people who have had DBS? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
Just wondering if high dose thiamine is helpful for people who have had DBS? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
MarciAC4
in
Cure Parkinson's
6 years ago
Diminished memory and DBS battery replacement
I am wondering if there is a connection with memory being diminished when the DBS battery is runnning low and/or out?
I am wondering if there is a connection with memory being diminished when the DBS battery is runnning low and/or out?
Parkiewife
in
Cure Parkinson's
6 years ago
2019: Will Medicare Cover Parkinson's ?
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
FMundo
in
Cure Parkinson's
6 years ago
Results update
Hi all I went to my GP with my recent blood results (refer to my previous post for all info) finally he has increased my Levothyroxine from 75mcg daily to 100mcg one day and 75mcg the next. It's small but at least an increase not a decrease as before. The dr at blue horizons thought my low/insufficient
Hi all I went to my GP with my recent blood results (refer to my previous post for all info) finally he has increased my Levothyroxine from 75mcg daily to 100mcg one day and 75mcg the next. It's small but at least an increase not a decrease as before. The dr at blue horizons thought my low/insufficient
Eladee
in
Thyroid UK
6 years ago
DBS hybrid: Medtronic leads with Boston Scientific stimulator
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
etterus
in
Cure Parkinson's
6 years ago
Iron levels and NDT
Hi there I’ve been trying to increase my NDT dose from 1 grain to 1.5 but my hypothyroid symptoms seem to worsen to the point of being unbearable! I’ve had a recent iron blood test with results as follows:- Iron- 15.17 umol/l (5.80-34.50) TIBC- 55.27 umol/l (45-72) Transferrin saturation-27.45% (range
Hi there I’ve been trying to increase my NDT dose from 1 grain to 1.5 but my hypothyroid symptoms seem to worsen to the point of being unbearable! I’ve had a recent iron blood test with results as follows:- Iron- 15.17 umol/l (5.80-34.50) TIBC- 55.27 umol/l (45-72) Transferrin saturation-27.45% (range
SLP01
in
Thyroid UK
6 years ago
After 26 years, bloods are still a puzzle?
Here is a blood test from yesterday. I've been from T4 only, for 25 years, to T3 only, for 3weeks, to, now, 50 mcg of T4 and 30 mcg of T3. I began having problems six months ago with Levo while I was removing all traces of processed sugar from my diet. I had been on .88 mcg of Levo for 25 years and
Here is a blood test from yesterday. I've been from T4 only, for 25 years, to T3 only, for 3weeks, to, now, 50 mcg of T4 and 30 mcg of T3. I began having problems six months ago with Levo while I was removing all traces of processed sugar from my diet. I had been on .88 mcg of Levo for 25 years and
GKeith
in
Thyroid UK
6 years ago
Parkinsons and dental work
Has anyone had extensive dental work after having DBS. I am needing implants and am concerned about possible heeating of DBS lead, etc.
Has anyone had extensive dental work after having DBS. I am needing implants and am concerned about possible heeating of DBS lead, etc.
Cbauer
in
Cure Parkinson's
6 years ago
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