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Experiences with
D-bifunctional protein (DBP) deficiency
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Iron panel and full blood count test results - is it safe to supplement?
Hi there again. I've been looking into my low ferritin, and recently did both the iron panel and FBC. Could someone please comment on them? is it safe to start supplementing? Anything to watch out for?
Hi there again. I've been looking into my low ferritin, and recently did both the iron panel and FBC. Could someone please comment on them? is it safe to start supplementing? Anything to watch out for?
Purple_Green
in
Thyroid UK
3 years ago
B vitamins and iron supplementation
For several years I had been taking a multi-vitamin (for eye health) containing modest amounts of B vitamins and iron. Over a year ago I had my B12, folate and iron tested. The results were: Vitamin B12 and Folate Serum vitamin B12 849ng/L (197 – 771) High Serum folate 17.4 ug/L (3.9
For several years I had been taking a multi-vitamin (for eye health) containing modest amounts of B vitamins and iron. Over a year ago I had my B12, folate and iron tested. The results were: Vitamin B12 and Folate Serum vitamin B12 849ng/L (197 – 771) High Serum folate 17.4 ug/L (3.9
DoDoc
in
Thyroid UK
3 years ago
6 weeks on T4/T3 - thyroid, advanced iron and vit d test results - advice please and mini update :)
Here are my past results on 100 mcg levo (left, 11/20) followed by my new results (02/21) on the right. Results are from Thriva and I followed "our" protocol, except I forgot to split my nighttime dose of T3, which I took just over 8 hours before the test. I alo did an NHS test this morning for the endocrinologist
Here are my past results on 100 mcg levo (left, 11/20) followed by my new results (02/21) on the right. Results are from Thriva and I followed "our" protocol, except I forgot to split my nighttime dose of T3, which I took just over 8 hours before the test. I alo did an NHS test this morning for the endocrinologist
Lotika
in
Thyroid UK
3 years ago
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Bloods Show Lots of Deficiencies
Hey, I’m new to the site and as some of you seem to have some really good knowledge I’m hoping you might be able to help me. I had a little girl 3 years ago and since then, my health has been really poor- always having infections or needing medication for something. I found out I had underactive thyroid
Hey, I’m new to the site and as some of you seem to have some really good knowledge I’m hoping you might be able to help me. I had a little girl 3 years ago and since then, my health has been really poor- always having infections or needing medication for something. I found out I had underactive thyroid
GemH2013
in
Thyroid UK
3 years ago
Lot of questions re DBS lately. Everything you could want to know.
Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ............4 Chapter 2 An Overview of Deep Brain Stimulation (DBS) Therapy...............8 Chapter 3 Risks and Complications of DBS ..................................................19 Chapter 4 Is DBS Right for You? ...........
Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ............4 Chapter 2 An Overview of Deep Brain Stimulation (DBS) Therapy...............8 Chapter 3 Risks and Complications of DBS ..................................................19 Chapter 4 Is DBS Right for You? ...........
MBAnderson
in
Cure Parkinson's
3 years ago
DBS for Parkinsons
Need a little info on the DBS surgery for Parkinson’s. Doc says our daughter has reached the limit for the Sinemet dosage and is beginning g to show signs of needing more help. The only thing left is DBS. She’s not worried about the actual surgery but the cost since her insurance won’t cover very much
Need a little info on the DBS surgery for Parkinson’s. Doc says our daughter has reached the limit for the Sinemet dosage and is beginning g to show signs of needing more help. The only thing left is DBS. She’s not worried about the actual surgery but the cost since her insurance won’t cover very much
Williemom
in
Positive Wellbeing During Self-Isolation
3 years ago
Dbs lottery?
Dbs lottery
Dbs lottery
Abepark2013
in
Cure Parkinson's
3 years ago
DBS lottery
Whilst I’ve read dozens of posters extolling the virtues of DBS here on the site and have witnessed many stories on YouTube similarly telling of good things, the PWP that I know personally who’ve had it haven’t been so encouraging. 😕 Guy 1 was hoping to reduce his meds but has ended up taking the
Whilst I’ve read dozens of posters extolling the virtues of DBS here on the site and have witnessed many stories on YouTube similarly telling of good things, the PWP that I know personally who’ve had it haven’t been so encouraging. 😕 Guy 1 was hoping to reduce his meds but has ended up taking the
jeeves19
in
Cure Parkinson's
3 years ago
IRON RESULTS, Advice Please.
Hi Everyone, apart from a multitude of symptoms which are ongoing something else that has been nagging me since my last blood results in Sept 20 was the fact that there was an asterisk mark against one of my iron results and i would welcome any input from anyone who understands
Hi Everyone, apart from a multitude of symptoms which are ongoing something else that has been nagging me since my last blood results in Sept 20 was the fact that there was an asterisk mark against one of my iron results and i would welcome any input from anyone who understands
SPD1
in
Thyroid UK
3 years ago
DBS, good or bad thing?
I've decided to take the plunge on dbs, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
I've decided to take the plunge on dbs, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
Hidden
in
Anxiety and Depression Support
3 years ago
Links to some articles comparing FUS to DBS for Essential Tremors
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
pdpatient
in
Cure Parkinson's
3 years ago
DBS - yes or no?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
Hidden
in
Anxiety and Depression Support
3 years ago
New to the forum
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
thfc1961
in
Cure Parkinson's
3 years ago
Deep Brain Stimulation
Can those who have had DBS please share their experiences
Can those who have had DBS please share their experiences
thfc1961
in
Cure Parkinson's
3 years ago
How can i fix anxiety ?
I can't get rid of anxiety, other than antidepressants(ssri) ??? I've been on cipralex for a while and I don't want to go back on it, it has too many side effects. Although I take t3 and levo but I still have anxiety and visual disturbance. t3 helped me a lot but I don't get rid of anxiety.My doctor
I can't get rid of anxiety, other than antidepressants(ssri) ??? I've been on cipralex for a while and I don't want to go back on it, it has too many side effects. Although I take t3 and levo but I still have anxiety and visual disturbance. t3 helped me a lot but I don't get rid of anxiety.My doctor
hipolion
in
Thyroid UK
4 years ago
New Diagnostic Methods for PA
I found this online today here, https://www.ncbi.nlm.nih.gov/books/NBK540989/ It describes new methods of diagnosing PA. It looks interesting. Alternative and new approaches to the diagnosis of PA are under evaluation. One of these is a newer propriety cobalamin absorption test, which has its basis
I found this online today here, https://www.ncbi.nlm.nih.gov/books/NBK540989/ It describes new methods of diagnosing PA. It looks interesting. Alternative and new approaches to the diagnosis of PA are under evaluation. One of these is a newer propriety cobalamin absorption test, which has its basis
MoKayD
in
Pernicious Anaemia Society
4 years ago
Ferritin rising no supplements
Hiya My question what can make ferritin rise? I've always had trouble trying to raise ferritin in the past so had to take iron tablets I got it up over many months to 88. But I have had no supplements for a long while now and I dont eat meat infact my diet and weight loss is not good atm it hasnt
Hiya My question what can make ferritin rise? I've always had trouble trying to raise ferritin in the past so had to take iron tablets I got it up over many months to 88. But I have had no supplements for a long while now and I dont eat meat infact my diet and weight loss is not good atm it hasnt
Hidden
in
Thyroid UK
4 years ago
Pros and Cons of Four Different Brain Surgeries For Parkinson’s Diseases
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
Farooqji
in
Cure Parkinson's
3 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
3 years ago
Total B12, Active B12 and Folate Results.
Hi I recently had some private blood tests to monitor my thyroid and had additional test done at the same time. I am concerned about the following results, Active B12 Result 73 pmol/L Range 37.5 -188 pmol/L SOME ABNORMAL RESULTS Total B12 Result 296 pmol/L Insufficient Range 300 -
Hi I recently had some private blood tests to monitor my thyroid and had additional test done at the same time. I am concerned about the following results, Active B12 Result 73 pmol/L Range 37.5 -188 pmol/L SOME ABNORMAL RESULTS Total B12 Result 296 pmol/L Insufficient Range 300 -
lucylocks
in
Pernicious Anaemia Society
4 years ago
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