Need a little info on the DBS surgery for Parkinson’s.
Doc says our daughter has reached the limit for the Sinemet dosage and is beginning g to show signs of needing more help. The only thing left is DBS. She’s not worried about the actual surgery but the cost since her insurance won’t cover very much. A large deductible is one problem. Anyway, just wondering if anyone had any helpful comments or advice. Thanks in advance. 🙏❤️
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I'm so sorry Williemom but I'm unable to help you on that one as I live in the UK and we have the NHS. The only thing I can suggest is to look into how effective the procedure is; have you looked for any self help groups for others that have Parkinsons and have had the treatment?
In the meantime I have located the link below online.
parkinson.org/Understanding...
Take care
Alicia
❤️❤️thank you so much . Found a couple of sites for technical info. Just looking for some assurance I guess, that this would be a good option🌻 but if it’s the only thing left to do then I guess it’s the only option! Just a Mother doing some worrying!🙏🏻🌈❤️💕🌺💐🥺
My wife has had PD since 2007. She finally got DBS in 2020. Is everything great, no. From where we were before DBS to now is 1000% better. She had a tough time twice a day. When she started her medicine for the day and when she stopped her meds for the day. That is all gone. No more totally crap times. We are still in the early stages and she will need more "adjustments/programming" but I wish we would have done it years ago.
Thank you for replying. Happy for you both that all is going better. 1000% is wonderful. Her meds are beginning to not work as well. Especially the dyskinesia and has a lot of leg pain and stiff toes. Since doc says can’t up the meds then I guess the DBS is the next step.. she went through a few bad months last year with way too much cArbidopa/levodopa so she is ready for something else. Besides her husband who works I am her caregiver so I try to stay up to date on all things Parkinsons.
Hope everything continues good for your loved one.🙏🏻
You're welcome and I wish I could help more. You're a mum, you're allowed to worry, I'm a mum to 2 grown up daughters and a grandmother so I understand you worrying. It's an awful condition for your daughter to have and I really feel for her, and you seeing her like this.
I see that royal57 has sent a reply which I'm really pleased about.
Wishing your daughter all the luck in the world.
Alicia 💜💜 xx
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BRAINWORKS with Activity2004 9-8-2020 FILL IN THE BLANK
The longest day and and night i ever remember.