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Dapsone
Has anyone had any experience with
dapsone
. I had a rash possibly due to bactrim so i was changed to
dapsone
.
Has anyone had any experience with
dapsone
. I had a rash possibly due to bactrim so i was changed to
dapsone
.
lrcooke
in
CLL Support
7 years ago
Two years and counting
I am currently on 16mgs of Prednisone and 125mg
Dapsone
, and have swellings on the inside of each wrist which are quite sore, and a few rashes on my chest, neck and back. I’m due to see my Dermatologist next week for a review, and hopefully a check on the medication. Happy New Year to all.
I am currently on 16mgs of Prednisone and 125mg
Dapsone
, and have swellings on the inside of each wrist which are quite sore, and a few rashes on my chest, neck and back. I’m due to see my Dermatologist next week for a review, and hopefully a check on the medication. Happy New Year to all.
Adro
in
Sweet's Syndrome UK
7 years ago
Thanks to you all
addiction ,i got degree in looking after a child that was more in hospital than out he had rare skin desease I agreed that all dermatologist could examine him ask me questions photos the size of the wall .of his blisters tonsils they pickled as the blisters never go into mouth he took
dapsone
addiction ,i got degree in looking after a child that was more in hospital than out he had rare skin desease I agreed that all dermatologist could examine him ask me questions photos the size of the wall .of his blisters tonsils they pickled as the blisters never go into mouth he took
dapsone
Faithfull
in
British Liver Trust
7 years ago
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Drugs to Avoid with CMT
wp-content/uploads/2015/04/NeuroMeds.pdf Proposed list of medications of concern to patients with CMT Definite high risk (including asymptomatic CMT) Vinca alkaloids (vincristine) Moderate to significant risk Amiodarone Bortezomib (velcade) Cisplatin, carboplatin, oxaliplatin Colchicine (extended use)
Dapsone
wp-content/uploads/2015/04/NeuroMeds.pdf Proposed list of medications of concern to patients with CMT Definite high risk (including asymptomatic CMT) Vinca alkaloids (vincristine) Moderate to significant risk Amiodarone Bortezomib (velcade) Cisplatin, carboplatin, oxaliplatin Colchicine (extended use)
Dapsone
Hidden
in
Charcot-Marie-Tooth UK
7 years ago
Extreme Fatigue
I have been taking
DAPSONE
every day since diagnosis. I haven't had an appointment with a specialist for nearly 2 years. I'm 53 years young 😜. Any tips on overcoming this fatigue feeling would be welcome. Thank you
I have been taking
DAPSONE
every day since diagnosis. I haven't had an appointment with a specialist for nearly 2 years. I'm 53 years young 😜. Any tips on overcoming this fatigue feeling would be welcome. Thank you
Leelee64
in
LUPUS UK
7 years ago
Compicated HSP in young adult
She struggled with almost continuous symptoms for about a year while she was treated with high dose steroids,
dapsone
, cellcept- all without much affect on disease but many side affects. Eventually, she was started on iv rituxan- it has put her in a somewhat controlled remission.
She struggled with almost continuous symptoms for about a year while she was treated with high dose steroids,
dapsone
, cellcept- all without much affect on disease but many side affects. Eventually, she was started on iv rituxan- it has put her in a somewhat controlled remission.
motherofhsp
in
Vasculitis UK
7 years ago
Fairly horrible photo of my hand
Janie, our history sounds very similar but I haven’t tried
Dapsone
yet. Thanks everyone for your encouragement, talk soon Lesley (PS it does ache but not as bad as what it looks!). The white around the edge is an ointment called Calmoseptine which the nurse used as a barrier cream.
Janie, our history sounds very similar but I haven’t tried
Dapsone
yet. Thanks everyone for your encouragement, talk soon Lesley (PS it does ache but not as bad as what it looks!). The white around the edge is an ointment called Calmoseptine which the nurse used as a barrier cream.
lesleyg
in
Behçet's UK
7 years ago
ITP 8years
Hi.sir.iam from india.suffering from ITP since 8years.ivig .
dapsone
,retuximob.
Hi.sir.iam from india.suffering from ITP since 8years.ivig .
dapsone
,retuximob.
cherukulavanya
in
ITP Support Association
7 years ago
Is there a fix for Dermatitis Herpetiformis.
After living with DH for 3 years and being on
Dapsone
the same, I am wondering if anyone has a good practitioner who understands this condition and can help get to a solution.
After living with DH for 3 years and being on
Dapsone
the same, I am wondering if anyone has a good practitioner who understands this condition and can help get to a solution.
dwaage1
in
Gluten Free Guerrillas
7 years ago
It's a rollercoaster
At The last appointment, I had a different Haematologist who started tapering me off the prednisolone (again) and put me on
Dapsone
(100mg).
At The last appointment, I had a different Haematologist who started tapering me off the prednisolone (again) and put me on
Dapsone
(100mg).
mdearman
in
ITP Support Association
7 years ago
Cutaneous vasculitis flare up
I have been on mmf, azothiaprine, and
dapsone
but was unable to tolerate all of theses. I was fine with methotrexate but it did not stop the flare ups. The only thing that seems to work is prednisolone but once below 15mg the ulcers return. I'm so grateful for this website.
I have been on mmf, azothiaprine, and
dapsone
but was unable to tolerate all of theses. I was fine with methotrexate but it did not stop the flare ups. The only thing that seems to work is prednisolone but once below 15mg the ulcers return. I'm so grateful for this website.
johanna-68
in
Vasculitis UK
7 years ago
New here - Ankylosing Spondilitis sufferer (although controlled), + Vasculitis, Possible Polyarteritis Nodosa. On Pred, Sulfasal & Dapsone
Just looking to share info/advice and experiences with anyone else out there with these sort of ailments
Just looking to share info/advice and experiences with anyone else out there with these sort of ailments
cclarke
in
Vasculitis UK
7 years ago
Cutaneous Vasculitis
But in May this year it has all started again and now been prescribed
Dapsone
Tablets. I'm only on my third day but I'm hoping and praying that these will do something. Anyone else using
Dapsone
?
But in May this year it has all started again and now been prescribed
Dapsone
Tablets. I'm only on my third day but I'm hoping and praying that these will do something. Anyone else using
Dapsone
?
lou1972
in
Vasculitis UK
7 years ago
Blurry eyes
Immunologist started me on
Dapsone
to help unexplained intensely itchy red rash & haven't had a rash for 13 days now, haven't previously gone more than 6 days in 18months. He did say might improve joint pain & exhaustion but hasn't & wanted to ask if anyone else taking
Dapsone
.
Immunologist started me on
Dapsone
to help unexplained intensely itchy red rash & haven't had a rash for 13 days now, haven't previously gone more than 6 days in 18months. He did say might improve joint pain & exhaustion but hasn't & wanted to ask if anyone else taking
Dapsone
.
Persiankiwi
in
The Australian Sjögren's Syndrome Association
7 years ago
Revolade stopped working suddenly
Dapsone
did not work on me. My doctor suggested Revolade. The platelets used to to increase upto 3 lakhs when I was on Revolade. They start decreasing when I stop the tablet. This has been happening for quite sometime. Now suddenly platelets have started decreasing even when I am on Revolade.
Dapsone
did not work on me. My doctor suggested Revolade. The platelets used to to increase upto 3 lakhs when I was on Revolade. They start decreasing when I stop the tablet. This has been happening for quite sometime. Now suddenly platelets have started decreasing even when I am on Revolade.
Divije
in
ITP Support Association
7 years ago
Painkillers
His meds are Warfarin 5mg daily, Digoxin together with Tamsulosin,
Dapsone
Flexafenide and Bumetanide. He was told he could take just 4 paracetamol daily but the Doc yesterday said up the dose to 8 daily (the full dose).
His meds are Warfarin 5mg daily, Digoxin together with Tamsulosin,
Dapsone
Flexafenide and Bumetanide. He was told he could take just 4 paracetamol daily but the Doc yesterday said up the dose to 8 daily (the full dose).
excel1234
in
AF Association
8 years ago
Vasculitis flare ups on and off for years and drs are confused. Please. Has anyone had this problem. I feel very alone with it
I took
dapsone
for a long time and was in remission through all of my teen years. Then i came to adulthood. At the age of 23 i started having spots flare up and disappear again right up till 2 years ago.
I took
dapsone
for a long time and was in remission through all of my teen years. Then i came to adulthood. At the age of 23 i started having spots flare up and disappear again right up till 2 years ago.
Hidden
in
Vasculitis UK
8 years ago
Considering splenectomy to treat ITP
Hi - I have ITP and have been treated with Prednisone,
Dapsone
and IVIG intermittently for the past 3 years with no real success at getting my platelets above 50 000. My count is normally between 30 000 - 40 000 whilst on Prednisone - its lower when on no drugs.
Hi - I have ITP and have been treated with Prednisone,
Dapsone
and IVIG intermittently for the past 3 years with no real success at getting my platelets above 50 000. My count is normally between 30 000 - 40 000 whilst on Prednisone - its lower when on no drugs.
U_ever
in
ITP Support Association
8 years ago
Gluten-free & Dapsone - but still struggling
This week I told the doc that perhaps I should stop the
Dapsone
- to see if it actually makes any difference - because my symptoms of late have been really bad So I stopped the
Dapsone
, and now 3 days later I am blistering and itching at a new pace of severe outbreak.
This week I told the doc that perhaps I should stop the
Dapsone
- to see if it actually makes any difference - because my symptoms of late have been really bad So I stopped the
Dapsone
, and now 3 days later I am blistering and itching at a new pace of severe outbreak.
dwaage1
in
Gluten Free Guerrillas
8 years ago
HUVS and Xolair (omalizumab)
After trying out antihistamines, plaquenil, corticosteroides,
dapsone
, azatioprine, methotrexate, hydroxychloroquine my doctors gave me Xolair (omalizumab). After six shots a felt better then ever. Now they won't give me any more. The reason given is little research and scientific evidence.
After trying out antihistamines, plaquenil, corticosteroides,
dapsone
, azatioprine, methotrexate, hydroxychloroquine my doctors gave me Xolair (omalizumab). After six shots a felt better then ever. Now they won't give me any more. The reason given is little research and scientific evidence.
kleopetra
in
Vasculitis UK
8 years ago
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