Hi there you all
I'm a swedish woman with a HUVS-diagnos. After trying out antihistamines, plaquenil, corticosteroides, dapsone, azatioprine, methotrexate, hydroxychloroquine my doctors gave me Xolair (omalizumab). After six shots a felt better then ever. Now they won't give me any more. The reason given is little research and scientific evidence.
Of course, with such rare disease and new therapy. Can anyone help me with some information, personal experience, articles, research. Anyhing at all would be a big help.
With love from Sweden & Petra