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Experiences with
Diamine oxidase (DAO) deficiency
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Levothyroxine sodium anhydrous
Over the years we have seen several discussions around the issue of some manufacturers stating "Levothyroxine sodium" and others "Levothyroxine sodium anhydrous" . Just noticed that the current British National Formulary gives the active ingredient in every listed levothyroxine product, including liquids
Over the years we have seen several discussions around the issue of some manufacturers stating "Levothyroxine sodium" and others "Levothyroxine sodium anhydrous" . Just noticed that the current British National Formulary gives the active ingredient in every listed levothyroxine product, including liquids
helvella
Thyroid UK
in
Thyroid UK
6 years ago
Levothyroxine and Iron Supplements
I've just bought some iron supplements in the hope it might boost my energy levels but I've read online they can interfere with levothyroxine. Could anyone give me some advice on whether it's safe to take them? I take my levo in the morning so could I take the iron in the evenings?
I've just bought some iron supplements in the hope it might boost my energy levels but I've read online they can interfere with levothyroxine. Could anyone give me some advice on whether it's safe to take them? I take my levo in the morning so could I take the iron in the evenings?
Jumaz
in
Thyroid UK
6 years ago
Iron Supplements
Hi all,just wanted some advice .My recent medichecks bloods revealed my Ferritin level was 117 (30-400).Do you think I should supplement with Iron to get this figure up or is it ok ?.I have Hashimotos Thanks.
Hi all,just wanted some advice .My recent medichecks bloods revealed my Ferritin level was 117 (30-400).Do you think I should supplement with Iron to get this figure up or is it ok ?.I have Hashimotos Thanks.
Haynton
in
Thyroid UK
6 years ago
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Unexplained Upper Gastrointestinal bleeding Omeprazole
Had 2 episodes of upper gastrointestinal bleeding (Meleana). One 2015 and the other June 2018. Resulted in iron deficiency anaemia and recent one rapid onset and collapse with emergency admission to A and E. Had all usual tests of camera down throat; capsule endoscopy and colonoscopy with no culprit
Had 2 episodes of upper gastrointestinal bleeding (Meleana). One 2015 and the other June 2018. Resulted in iron deficiency anaemia and recent one rapid onset and collapse with emergency admission to A and E. Had all usual tests of camera down throat; capsule endoscopy and colonoscopy with no culprit
Countrycyclist
in
Thyroid UK
6 years ago
Anemia on Ibrutinib
Posting for a friend who started ibrutinib very recently. This is her first treatment. "After two weeks on ibrutinib, my hemoglobin level is 7.6 so I need a transfusion. It wasn’t something I was expecting. Just wondering if you had a similar experience on ibrutinib or have needed a transfusion at
Posting for a friend who started ibrutinib very recently. This is her first treatment. "After two weeks on ibrutinib, my hemoglobin level is 7.6 so I need a transfusion. It wasn’t something I was expecting. Just wondering if you had a similar experience on ibrutinib or have needed a transfusion at
Eagle5327
in
CLL Support
6 years ago
Anyone else having to battle each time they need an iron infusion?
I’ve had PA since I was a teenager, although it took them years to identify it and I was 23 by the time I received my first loading doses. The main reason they missed the PA was due to an ongoing iron anaemia which was disguising the cell shapes on blood tests. The B12 was treated but the iron issue
I’ve had PA since I was a teenager, although it took them years to identify it and I was 23 by the time I received my first loading doses. The main reason they missed the PA was due to an ongoing iron anaemia which was disguising the cell shapes on blood tests. The B12 was treated but the iron issue
Katyluisa
in
Pernicious Anaemia Society
6 years ago
Gastritis leading to anaemia
I have just had a gastroscopy and have gastritis and duodenitis, they now want to do a colonoscopy because I have low trasnsferrin (10) and haemaglobin levels of 110 which is a bit below the normal so I am anaemic. Has anyone else been down this path? I know I have gastritis because that is how I have
I have just had a gastroscopy and have gastritis and duodenitis, they now want to do a colonoscopy because I have low trasnsferrin (10) and haemaglobin levels of 110 which is a bit below the normal so I am anaemic. Has anyone else been down this path? I know I have gastritis because that is how I have
RainyDayMarisa
in
Pernicious Anaemia Society
6 years ago
Blood results
Finally got my blood results back. In Australia T3 & T4 are not tested if TSH is in acceptable range 😩 TSH- 1.01 (0.50-4.70) Vitamin D - 22 (50-200) Ferritin - 23 (30-200) Iron - 9 (9-30) Transferrin 2.3 (2.0-3.6) Transfer.sat - 16 (15-50) The above consistent with Iron Deficiency Vitamin B12 - 656
Finally got my blood results back. In Australia T3 & T4 are not tested if TSH is in acceptable range 😩 TSH- 1.01 (0.50-4.70) Vitamin D - 22 (50-200) Ferritin - 23 (30-200) Iron - 9 (9-30) Transferrin 2.3 (2.0-3.6) Transfer.sat - 16 (15-50) The above consistent with Iron Deficiency Vitamin B12 - 656
Bridie2014
in
Thyroid UK
6 years ago
What relevance have MCH, MCV, MCHC results have in possible B12 deficiency ?
I had some FBC tests done recently and the above plus Serum alkaline phosphatase were considered 'abnormal'. No treatment but combined with a low B12 serum test I wondered if there was a connection? Since then taking 1000mcg cyanacobalim pills plus 1200ug B12 spray hoping this will help. Better add
I had some FBC tests done recently and the above plus Serum alkaline phosphatase were considered 'abnormal'. No treatment but combined with a low B12 serum test I wondered if there was a connection? Since then taking 1000mcg cyanacobalim pills plus 1200ug B12 spray hoping this will help. Better add
jib70
in
Pernicious Anaemia Society
6 years ago
Do my lab results look normal?
I've just got my lab results back from my full blood count and B12 test and am wondering whether they look normal? They appear to fall within the normal ranges although my RBCs and haematocrit are on the lower end of the scale and my MCV and MCH are on the high end of the scales. I have an appointment
I've just got my lab results back from my full blood count and B12 test and am wondering whether they look normal? They appear to fall within the normal ranges although my RBCs and haematocrit are on the lower end of the scale and my MCV and MCH are on the high end of the scales. I have an appointment
Ck12232
in
Pernicious Anaemia Society
6 years ago
Test Results .
Good afternoon, I have today received these results from my recent blood test . I am currently taking 50mg Thyroxine at night and I am gluten and dairy free. I do not take iron or Vit B12 supplements . I would be most grateful if someone could advise me before I send these results to my doctor. As the
Good afternoon, I have today received these results from my recent blood test . I am currently taking 50mg Thyroxine at night and I am gluten and dairy free. I do not take iron or Vit B12 supplements . I would be most grateful if someone could advise me before I send these results to my doctor. As the
TJc64
in
Thyroid UK
6 years ago
b 12 stopped working after the sixth shot
i have migraines and my neuro suggested b 12 . My levels were low at 180 pg /ml - i was asked to take 6 shots -migraines greatly improved -i got 50 percent relief but after the 6 th shot methyl cobalamin is ineffective , i kept self injecting another 12 more shots only to find b 12 levels more than 3000
i have migraines and my neuro suggested b 12 . My levels were low at 180 pg /ml - i was asked to take 6 shots -migraines greatly improved -i got 50 percent relief but after the 6 th shot methyl cobalamin is ineffective , i kept self injecting another 12 more shots only to find b 12 levels more than 3000
pinkypop
in
Pernicious Anaemia Society
6 years ago
This works for me, maybe it'll help you
Hi all, I'm new to the forum but not to RLS. I've had it, lightly, all my life as has my mother (worse than me). A good few months ago I was lying in bed, with my feet not happy, unable to sleep and I suddenly remembered the pills my mother used to take decades ago. They were called Limb Ease, you could
Hi all, I'm new to the forum but not to RLS. I've had it, lightly, all my life as has my mother (worse than me). A good few months ago I was lying in bed, with my feet not happy, unable to sleep and I suddenly remembered the pills my mother used to take decades ago. They were called Limb Ease, you could
smudges
in
Restless Legs Syndrome
6 years ago
Signed off from haematologist today.
I went to see the haematologist I was originally referred to for anaemia back in February. It was she who recognised the spider naevie and felt my enlarged liver. She referred me for a liver scan and a gastroscopy and colonoscopy which confirmed the diagnosis of cirrhosis. She said that I should still
I went to see the haematologist I was originally referred to for anaemia back in February. It was she who recognised the spider naevie and felt my enlarged liver. She referred me for a liver scan and a gastroscopy and colonoscopy which confirmed the diagnosis of cirrhosis. She said that I should still
GrandmaDylan
in
British Liver Trust
6 years ago
Anyone tried ferrous gluconate tablets(by crescent) prescription use) 😕
Hi there guys I thought I would give you a little post😀 as you regulars know I've had abit of a problem with my iron defiencey, I've been taking floravital liquid with no probs but its not strong enough to rise my levels up, gP said to try ferrous fumerate, ferrous sulphate and cannot take either of
Hi there guys I thought I would give you a little post😀 as you regulars know I've had abit of a problem with my iron defiencey, I've been taking floravital liquid with no probs but its not strong enough to rise my levels up, gP said to try ferrous fumerate, ferrous sulphate and cannot take either of
Rmichelle
in
Thyroid UK
6 years ago
Iron/Ferritin levels
Hi, I was diagnosed with PA earlier on this year. I received my loading doses in May and I'm having a top up injection of B12 every 3 months. Unfortunately, my iron levels are now low. My ferritin level is 5, my iron level is 9 and my saturation level is 11%. My haemoglobin level is normal so my GP
Hi, I was diagnosed with PA earlier on this year. I received my loading doses in May and I'm having a top up injection of B12 every 3 months. Unfortunately, my iron levels are now low. My ferritin level is 5, my iron level is 9 and my saturation level is 11%. My haemoglobin level is normal so my GP
stacie146
in
Pernicious Anaemia Society
6 years ago
Blood test results
Had my levels checked again. Still feeling awful. My serum ferritin is 31 ug/L the range is 23-300. My gp has advised to take one iron tablet a day. Not sure why there is a exclamation mark next to the red blood cell count.
Had my levels checked again. Still feeling awful. My serum ferritin is 31 ug/L the range is 23-300. My gp has advised to take one iron tablet a day. Not sure why there is a exclamation mark next to the red blood cell count.
Searching4help
in
Thyroid UK
6 years ago
Statin
The doctor wants My LDL cholesterol to be lower and has put me on a statin drug. He will test my liver enzymes after 30 days. Have any of you with PBC experienced elevated liver enzymes from statins?
The doctor wants My LDL cholesterol to be lower and has put me on a statin drug. He will test my liver enzymes after 30 days. Have any of you with PBC experienced elevated liver enzymes from statins?
Sissymcc
in
British Liver Trust
6 years ago
Iron panel - serum iron. How to get this checked when GP won't!
I am reliably informed (by SeasideSusie - thanks Susie😊) that it would be wise to get my serum iron tested before supplementing further with ferrous fumurate. My doctor has already told me I am not anaemic and, after seeing my numbers, Susie agrees, although my ferritin is low in range. Another GP at
I am reliably informed (by SeasideSusie - thanks Susie😊) that it would be wise to get my serum iron tested before supplementing further with ferrous fumurate. My doctor has already told me I am not anaemic and, after seeing my numbers, Susie agrees, although my ferritin is low in range. Another GP at
Caroline888
in
Thyroid UK
6 years ago
Low vitamin B12,low ferritin, antibodies anti parietal cell weak positive.
Hello everybody; I have been diagnosted with low b12 (185) in 2009, since I had no macrocytose, my GP refused any further investigastions. Recently I decided to continue the battle alone; I have : slight anemia (11-12 Hg) ;normal MCV Low iron and ferritine ;normal B9. antibodies anti parietal cell weak
Hello everybody; I have been diagnosted with low b12 (185) in 2009, since I had no macrocytose, my GP refused any further investigastions. Recently I decided to continue the battle alone; I have : slight anemia (11-12 Hg) ;normal MCV Low iron and ferritine ;normal B9. antibodies anti parietal cell weak
samiral
in
Pernicious Anaemia Society
6 years ago
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