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Diamine oxidase (DAO) deficiency
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Various B12D/PA resources
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
jade_s
in
Pernicious Anaemia Society
1 year ago
don’t know what’s happening
previous test 30 may 23 at 8/30 on 150 thyroxine 12 and half t3 Tsh 0.02 (0.27-4.2). T4 17.9(10.5-22) t3 4.3(3.1-6.8) Mention to the dr about what you had said about iron panel/ chronic disease,she said yes your thyroid wasn’t sure if she was doing it although she’d book me to have bloods I had already
previous test 30 may 23 at 8/30 on 150 thyroxine 12 and half t3 Tsh 0.02 (0.27-4.2). T4 17.9(10.5-22) t3 4.3(3.1-6.8) Mention to the dr about what you had said about iron panel/ chronic disease,she said yes your thyroid wasn’t sure if she was doing it although she’d book me to have bloods I had already
Kowbie
in
Thyroid UK
1 year ago
T3 much better but feeling worse again!
I'm on a high dose of levo, 200mcg per day (I weigh 80kg right now), and just got test results back that show my T3 levels are much improved. However, of course, my TSH is now below range and my T4 way over. My ferritin, etc, is as bad as it's ever been, despite taking 210mg of ferrous fumarate each
I'm on a high dose of levo, 200mcg per day (I weigh 80kg right now), and just got test results back that show my T3 levels are much improved. However, of course, my TSH is now below range and my T4 way over. My ferritin, etc, is as bad as it's ever been, despite taking 210mg of ferrous fumarate each
crabapple1
in
Thyroid UK
1 year ago
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Terrified
I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my level was 154 and I also had vitamin D deficiency and iron deficiency at the same time. I was given loading doses of B12 and felt so much better and then went onto 3 monthly injections. I found that towards the end of the
I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my level was 154 and I also had vitamin D deficiency and iron deficiency at the same time. I was given loading doses of B12 and felt so much better and then went onto 3 monthly injections. I found that towards the end of the
Hayley31
in
Pernicious Anaemia Society
1 year ago
Advice on latest ferritin, VitD, vitB12 please
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Insomania
in
Thyroid UK
1 year ago
augmentation pregabilin
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Esme2007
in
Restless Legs Syndrome
1 year ago
Please help with blood results for iron status
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
sasha_nico
in
Thyroid UK
1 year ago
8 week bloodtest
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
catpurple7
in
Thyroid UK
1 year ago
Ferratin level
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
fiftyone
in
Thyroid UK
1 year ago
Advice on Medichecks and GP iron results please
On 21st June I had some tests done by GP early morning and fasting. Results were: IRON = 13 umol/l (6-35) SERUM TRANSFERRIN =2.52g/l (2-3.6) TRANSFERRIN SATURATION= 21% No range given FERRITIN = 69ug/l (13-150 or 13-300 if post meno) I am past meno
On 21st June I had some tests done by GP early morning and fasting. Results were: IRON = 13 umol/l (6-35) SERUM TRANSFERRIN =2.52g/l (2-3.6) TRANSFERRIN SATURATION= 21% No range given FERRITIN = 69ug/l (13-150 or 13-300 if post meno) I am past meno
Eton
in
Thyroid UK
1 year ago
Iron Infusions for RLS
Another research paper showing iron infusions of Ferric Carboxymaltose improves RLS. We now have the uphill battle of convincing our GPs and neurologists. If you are trying to persuade your medical team to follow the Mayo Clinic Algorithm and increase serum ferritin as first line treatment for RLS,
Another research paper showing iron infusions of Ferric Carboxymaltose improves RLS. We now have the uphill battle of convincing our GPs and neurologists. If you are trying to persuade your medical team to follow the Mayo Clinic Algorithm and increase serum ferritin as first line treatment for RLS,
Joolsg
in
Restless Legs Syndrome
1 year ago
Your thyroid and iron deficiency stories, please
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
HowNowWhatNow
in
Thyroid UK
1 year ago
serum iron
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
Elsie77
in
Restless Legs Syndrome
1 year ago
Clarification of blood results
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hollybushroad
in
Thyroid UK
1 year ago
Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
1 year ago
blood test back - any thoughts?
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
Phantom38
in
Restless Legs Syndrome
1 year ago
Iron Deficiency Without Anemia (IDWA)
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
Rexz
in
Pernicious Anaemia Society
1 year ago
Iron tabs.help
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Whymelord
in
Restless Legs Syndrome
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
Iron supplements dosage
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
pennygates
in
Restless Legs Syndrome
1 year ago
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