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Experiences with
Cystitis
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Interstitial cystitis....what a pain :-( help
Finally managed to get a referral for my symptoms of interstitial
cystitis
which have plagued me on and off for 12 years but Have in the past been continually fobbed off with antibiotics.
Finally managed to get a referral for my symptoms of interstitial
cystitis
which have plagued me on and off for 12 years but Have in the past been continually fobbed off with antibiotics.
Chablis
in
LUPUS UK
9 years ago
Worried is Endo back already?
My bladder
cystitis
is back and the pains are unbearable again, I hate the burning and stabbing pains, I can't sleep now, have to keep going for a wee during the night. I'm so tired all the time, loss of appetite, I can go a whole day without eating.
My bladder
cystitis
is back and the pains are unbearable again, I hate the burning and stabbing pains, I can't sleep now, have to keep going for a wee during the night. I'm so tired all the time, loss of appetite, I can go a whole day without eating.
Sweetyassi
in
Endometriosis UK
9 years ago
Fed up with pains
Hi, Fed up with Endo, adhesions,
cystitis
returning so many times after having so many operations. I'm wondering if it's food related. I am getting panic attacks, getting scared just before I eat in case it makes the pains worse.
Hi, Fed up with Endo, adhesions,
cystitis
returning so many times after having so many operations. I'm wondering if it's food related. I am getting panic attacks, getting scared just before I eat in case it makes the pains worse.
Sweetyassi
in
Endometriosis UK
9 years ago
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Possible endometriosis/early stages of diagnosis. Newbie.
. - one or two bouts of UTI a year - and suffers from
cystitis
(following intercourse) since I was 16, but I know the signs and follow a routine to try and prevent this. - had copper coil inserted summer 2013 (didn't want hormones even though I know copper coil isn't ideal for heavy periods) -before
. - one or two bouts of UTI a year - and suffers from
cystitis
(following intercourse) since I was 16, but I know the signs and follow a routine to try and prevent this. - had copper coil inserted summer 2013 (didn't want hormones even though I know copper coil isn't ideal for heavy periods) -before
KWJ2
in
Endometriosis UK
9 years ago
M.E, low ferritin, low vitamin D, any advice on blood tests would be really appreciated please?
Last Autumn after months of
cystitis
and feeling generally rotten I requested some blood tests and these were as follow...
Last Autumn after months of
cystitis
and feeling generally rotten I requested some blood tests and these were as follow...
Jo5454
in
Thyroid UK
9 years ago
Autonomic Neuropathy
Has anyone been diagnosed with an autonomic neuropathy as a result of lupus or sjogrens? I would be really interested to hear from you. Thanks Jenny
Has anyone been diagnosed with an autonomic neuropathy as a result of lupus or sjogrens? I would be really interested to hear from you. Thanks Jenny
Galaxy2
in
LUPUS UK
9 years ago
Pain pain pain!!!!
The thing is that I have an infection feel s like
cystitis
gone through 2 boxes of the
cystitis
sachets you get from the chemist and no joy so I went to my gp he gave me a weeks worth of citral opram and it didn't work so went back to my go and got some more antibiotics and I'm
The thing is that I have an infection feel s like
cystitis
gone through 2 boxes of the
cystitis
sachets you get from the chemist and no joy so I went to my gp he gave me a weeks worth of citral opram and it didn't work so went back to my go and got some more antibiotics and I'm
Hidden
in
Endometriosis UK
9 years ago
Post Lap Vaginal Pain and Spasms
Hi Ladies, I hope you are all well and not suffering too much. Three weeks ago I had my third lap which went really well. Since then I've been doing great bar one concern. On four separate occasions I've experienced a sharpe shooting pain in what I can only presume is my vaginal wall on the right hand
Hi Ladies, I hope you are all well and not suffering too much. Three weeks ago I had my third lap which went really well. Since then I've been doing great bar one concern. On four separate occasions I've experienced a sharpe shooting pain in what I can only presume is my vaginal wall on the right hand
ShortStuff88
in
Endometriosis UK
9 years ago
Vagus nerve stimulation Radi4 program
I listened to "Frontier" on Radio 4 last Tuesday @ 21:00. It was about inflammatory disease and alternatives to DMARDs and biological drugs. There are trials happening in the USA and Europe which look very promising. It might be worth listening to the program on IPlayer if you are interested. This is
I listened to "Frontier" on Radio 4 last Tuesday @ 21:00. It was about inflammatory disease and alternatives to DMARDs and biological drugs. There are trials happening in the USA and Europe which look very promising. It might be worth listening to the program on IPlayer if you are interested. This is
stbernhard
in
NRAS
9 years ago
Lupus and interstitial cystitis-crumbs it is painful
For many years, I have suffered from what were thought to be recurrent uti's but my recent bout ( 6 in 5 months) have all come back negative for infection I cannot describe how painful it can be at times, it really comes on quickly and feels like my insides are going to explode..... Other times, it
For many years, I have suffered from what were thought to be recurrent uti's but my recent bout ( 6 in 5 months) have all come back negative for infection I cannot describe how painful it can be at times, it really comes on quickly and feels like my insides are going to explode..... Other times, it
Chablis
in
LUPUS UK
9 years ago
2nd Lap. Numb leg?
Mainly excision this time rather than diathermy and a biopsy was taken from my bladder to rule out interstitial
cystitis
. I'm in the usual amount of pain - stayed in hospital for one night but am regretting not staying longer now as my pain management seems to be not very good.
Mainly excision this time rather than diathermy and a biopsy was taken from my bladder to rule out interstitial
cystitis
. I'm in the usual amount of pain - stayed in hospital for one night but am regretting not staying longer now as my pain management seems to be not very good.
sophie89
in
Endometriosis UK
9 years ago
Cystitis sachets ok with Urso?
Does anyone suffer with
cystitis
? And if so, does anyone know whether taking the over-the-counter sachets which you dissolve in water are ok with Urso/PBC? Any help appreciated....until I can call the doctor in the morning!!!
Does anyone suffer with
cystitis
? And if so, does anyone know whether taking the over-the-counter sachets which you dissolve in water are ok with Urso/PBC? Any help appreciated....until I can call the doctor in the morning!!!
KK72
in
PBC Foundation
9 years ago
Hi Everyone - update
Hi, after months of feeling poorly and seeing one private endo. I went to see a different one and they have found I consistently have an elevated FT4 level with a normal TSH. They have suggested this could be secondary hyperthyroidism and I require some more detailed bloods. Has anyone else got this
Hi, after months of feeling poorly and seeing one private endo. I went to see a different one and they have found I consistently have an elevated FT4 level with a normal TSH. They have suggested this could be secondary hyperthyroidism and I require some more detailed bloods. Has anyone else got this
Swan29
in
Thyroid UK
9 years ago
depression
hello, i am just recovering from an attack of interstitial
cystitis
, god knows where that came from but they say stress can cause it, i couldn,t get to see a doctor for 5 days so i went to A and E, the pain was quite bad.
hello, i am just recovering from an attack of interstitial
cystitis
, god knows where that came from but they say stress can cause it, i couldn,t get to see a doctor for 5 days so i went to A and E, the pain was quite bad.
Hidden
in
Anxiety Support
9 years ago
Ouch
I started hrt two weeks ago and have had bad
cystitis
just wondering if anyone else has had this!? It's so painful and sore :-( the endometriosis has really calmed down since my last injection but now this cystits is agony! Any advice would be welcome!
I started hrt two weeks ago and have had bad
cystitis
just wondering if anyone else has had this!? It's so painful and sore :-( the endometriosis has really calmed down since my last injection but now this cystits is agony! Any advice would be welcome!
DaisyL
in
Endometriosis UK
10 years ago
Excessive and continuous bladder trouble......
Trouble since february always had urge tried oxybutinin never worked was then treated with an antibiotic trimethoprim this in turn worked for a while then came back went through numerous test nothing showed I suspected interstial
cystitis
but that was brushed of as certainly not the case then I got
Trouble since february always had urge tried oxybutinin never worked was then treated with an antibiotic trimethoprim this in turn worked for a while then came back went through numerous test nothing showed I suspected interstial
cystitis
but that was brushed of as certainly not the case then I got
Danielle2419
in
LUPUS UK
10 years ago
Been diagnosed with Endo since I was 11. Still having problems
I also found out that I have interstitial
cystitis
and a bad prolapse womb. Thank god though I was blessed with a beautiful boy 5 years ago and carrying him was the only time I felt normal because for those 9 months I didn't have no pain.
I also found out that I have interstitial
cystitis
and a bad prolapse womb. Thank god though I was blessed with a beautiful boy 5 years ago and carrying him was the only time I felt normal because for those 9 months I didn't have no pain.
Catherine89
in
Endometriosis UK
10 years ago
Bladder pain and endo?? One thing after another!! Help!!
The consultant said he found a condition called interstitial
cystitis
. I was then refered to a urology team. The urologist carried out their own cystoscopy and told me that I did not have IC but had an inflamed bladder which they cannot treat!!
The consultant said he found a condition called interstitial
cystitis
. I was then refered to a urology team. The urologist carried out their own cystoscopy and told me that I did not have IC but had an inflamed bladder which they cannot treat!!
Natalie732
in
Endometriosis UK
10 years ago
Gastro and Bladder problems and anxiety with Endo - help please xx
I was diagnosed with Endo 5 years ago after many years of bladder problems, gastro problems (which they fobbed off as IBS) and a bout of
cystitis
that became so chronic I had to be in bed for weeks before I was operated on.
I was diagnosed with Endo 5 years ago after many years of bladder problems, gastro problems (which they fobbed off as IBS) and a bout of
cystitis
that became so chronic I had to be in bed for weeks before I was operated on.
NatalinaE
in
Endometriosis UK
10 years ago
Fed up with pains and taking meds that don't help.
I can't tell if it's Endo pain/ibs pain/
cystitis
pain
I can't tell if it's Endo pain/ibs pain/
cystitis
pain
Sweetyassi
in
Endometriosis UK
10 years ago
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