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Experiences with
Cystitis
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New- Undiagnosed
Finally which I hadn't thought could be related but may well be is the fact I have had
cystitis
or UTI's for 22 years. I often ignored them and hoped they'd pass but have had antibiotics for them too.
Finally which I hadn't thought could be related but may well be is the fact I have had
cystitis
or UTI's for 22 years. I often ignored them and hoped they'd pass but have had antibiotics for them too.
SalC
in
Endometriosis UK
9 years ago
Mirena coil hell!
Finally after finishing the course of antibiotics for the womb infection I now feel like I have the worst
cystitis
ever! Just constant nausea and searing burning pain! The coil has stopped my bleeding for the first time in years but can I really go on like this?
Finally after finishing the course of antibiotics for the womb infection I now feel like I have the worst
cystitis
ever! Just constant nausea and searing burning pain! The coil has stopped my bleeding for the first time in years but can I really go on like this?
Ollie1390
in
Endometriosis UK
9 years ago
Endo on bladder and cystoscopy hydrodistention yesterday
had bladder symptoms also, blood in urine, burning when urinating but no infection so my gynae con did a cystoscopy to see if I had endo in bladder but he said when he went in he couldn't do anything as the slightest touch to the bladder wall it started to break and bleed and said I had interstitial
cystitis
had bladder symptoms also, blood in urine, burning when urinating but no infection so my gynae con did a cystoscopy to see if I had endo in bladder but he said when he went in he couldn't do anything as the slightest touch to the bladder wall it started to break and bleed and said I had interstitial
cystitis
emmaibiza
in
Endometriosis UK
9 years ago
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Pain Fingers & Toes
Can PMR cause intermittent pain in Fingers & Toes, during the past three weeks I have developed a intense burning sensation across the top of my middle toe it last just a couple of seconds but returns quite rapidly but is never constant. More recently I have also developed a rheumy type of pain on the
Can PMR cause intermittent pain in Fingers & Toes, during the past three weeks I have developed a intense burning sensation across the top of my middle toe it last just a couple of seconds but returns quite rapidly but is never constant. More recently I have also developed a rheumy type of pain on the
JOHNONE28
in
PMRGCAuk
9 years ago
bladder problems after insertion of mirena coil - anyone else?
The only way I can describe the pain is that it feels very similar to
cystitis
. It's very difficult to pass urine I have to force it, and when I am urinating I'm having burning/stinging pain at the very bottom of my stomach, near the top of my bikini line.
The only way I can describe the pain is that it feels very similar to
cystitis
. It's very difficult to pass urine I have to force it, and when I am urinating I'm having burning/stinging pain at the very bottom of my stomach, near the top of my bikini line.
Catlover93
in
Endometriosis UK
9 years ago
Fourth lap, 25 years old, stage 4 endo, interstitial cystitis and adeno.. Mental hugs needed!
I also have interstitial
cystitis
and adeno. I don't really have a question tonight, I am just feeling really down and in pain after the op and just wanted to reach out to the only people who know what I am going through.
I also have interstitial
cystitis
and adeno. I don't really have a question tonight, I am just feeling really down and in pain after the op and just wanted to reach out to the only people who know what I am going through.
Catness
in
Endometriosis UK
9 years ago
Treatment options? GnRH Analogues?
And I've been suffering from recurring
cystitis
for the last 2 years, roughly around 1-2 times a month. After tests on my bladder came back normal they put it down to having endo on my bladder, which has since been confirmed by the lap. Does anyone use the GnRH? Is it worth the symptoms?
And I've been suffering from recurring
cystitis
for the last 2 years, roughly around 1-2 times a month. After tests on my bladder came back normal they put it down to having endo on my bladder, which has since been confirmed by the lap. Does anyone use the GnRH? Is it worth the symptoms?
ADeeL91
in
Endometriosis UK
9 years ago
Cystitis
I had antibiotics for 5 days and thought it was gone but I keep getting some soreness when I need to pass water my urine test shows nothing but it is quite uncomfortable when it keeps occurring. Anyone else had similar experience?
I had antibiotics for 5 days and thought it was gone but I keep getting some soreness when I need to pass water my urine test shows nothing but it is quite uncomfortable when it keeps occurring. Anyone else had similar experience?
Goldiwonder1
in
IBS Network
9 years ago
Naomi from US - Ldn for Hashimoto's, Chronic Lyme, Internal Cystitis & Sjogren's syndrome
https://vimeo.com/121585393
https://vimeo.com/121585393
liveurlife
Volunteer
in
LDN Research Trust
9 years ago
Endo and intitstal cystitis
Just wondering if anyone else has been diagnosed with intitstal
cystitis
? My gynae consultant found this when he removed endo from my bladder.
Just wondering if anyone else has been diagnosed with intitstal
cystitis
? My gynae consultant found this when he removed endo from my bladder.
emmaibiza
in
Endometriosis UK
9 years ago
I am going mad with my symptoms! Help
. - Also have interstital
cystitis
& urethral stricture (diagnosed 2012 by urologist) ALWAYS have inflammatory cells in my urine without infection , raynaud's (2012) and asthma (1998)!
. - Also have interstital
cystitis
& urethral stricture (diagnosed 2012 by urologist) ALWAYS have inflammatory cells in my urine without infection , raynaud's (2012) and asthma (1998)!
cocobella
in
Vasculitis UK
9 years ago
I feel like I am going mad with symptoms
. - Also have interstital
cystitis
& urethral stricture (diagnosed 2012 by urologist) ALWAYS have inflammatory cells in my urine without infection , raynaud's (2012) and asthma (1998)!
. - Also have interstital
cystitis
& urethral stricture (diagnosed 2012 by urologist) ALWAYS have inflammatory cells in my urine without infection , raynaud's (2012) and asthma (1998)!
cocobella
in
Cure Parkinson's
9 years ago
Is the twitching neurological? I need help, driven mad!
. - Also have interstital
cystitis
& urethral stricture (diagnosed 2012 by urologist) ALWAYS have inflammatory cells in my urine without infection , raynaud's (2012) and asthma (1998)!
. - Also have interstital
cystitis
& urethral stricture (diagnosed 2012 by urologist) ALWAYS have inflammatory cells in my urine without infection , raynaud's (2012) and asthma (1998)!
cocobella
in
Functional Neurological Disorder - FND Hope
9 years ago
I LIVE IN CHRONIC PAIN
There are millions of people who live with chronic illness, be it Fibromyalgia, Crohn's, Ulcerative Colitis, Trigeminal Neuralgia, Interstitial
Cystitis
, Complex Regional Pain Syndrome or any of a host of other so-called invisible illnesses.
There are millions of people who live with chronic illness, be it Fibromyalgia, Crohn's, Ulcerative Colitis, Trigeminal Neuralgia, Interstitial
Cystitis
, Complex Regional Pain Syndrome or any of a host of other so-called invisible illnesses.
Hidden
in
LUPUS UK
9 years ago
Are my symptoms endometriosis?
Hi ladies, Yesterday, after 22 years of "interstitial
cystitis
", 15 years of vaginal pain (I was told it was all in my head), and 14 years of suffering with "IBS", I was told by a consultant I have endometriosis and a polycystic ovary. I'm gobsmacked and don't know how to feel.
Hi ladies, Yesterday, after 22 years of "interstitial
cystitis
", 15 years of vaginal pain (I was told it was all in my head), and 14 years of suffering with "IBS", I was told by a consultant I have endometriosis and a polycystic ovary. I'm gobsmacked and don't know how to feel.
TenForward
in
Endometriosis UK
9 years ago
Chronic bladder & urinary pain 😭
Cystitis
like feeling when emptying my bladder and such. Can't get all of the urine out. Been waking up all hours of the night to wee despite not drinking too much because it makes me need the toilet every 10 minutes.
Cystitis
like feeling when emptying my bladder and such. Can't get all of the urine out. Been waking up all hours of the night to wee despite not drinking too much because it makes me need the toilet every 10 minutes.
avelvetcrowbar
in
Endometriosis UK
9 years ago
Endo and sacroiliitis
In July I had been off my pill for few months and the buttock/lower back/hip pain started , also have groin pain one side,
cystitis
feeling and ibs symptoms etc and all the other symptoms of when I was first diagnosed with minor endo.
In July I had been off my pill for few months and the buttock/lower back/hip pain started , also have groin pain one side,
cystitis
feeling and ibs symptoms etc and all the other symptoms of when I was first diagnosed with minor endo.
Vicky0311
in
Endometriosis UK
9 years ago
I'm worried
A GP in training turned up, made 3 mistakes just in writing a script for
cystitis
, which I only spotted because I know more than I want to from a long history of
cystitis
. Scary, I dont think he should be doing visits on his own.
A GP in training turned up, made 3 mistakes just in writing a script for
cystitis
, which I only spotted because I know more than I want to from a long history of
cystitis
. Scary, I dont think he should be doing visits on his own.
tulips123
in
Fibromyalgia Action UK
9 years ago
Neurontin advice
Hi guys and gals, this is my first post here and I do hope you don't mind me asking your advice. I have suffered with fibromyalgia for many years but only recently diagnosed 12 months ago and have been taking amitriptyline since then (with very little side effects apart from night paralysis). Today
Hi guys and gals, this is my first post here and I do hope you don't mind me asking your advice. I have suffered with fibromyalgia for many years but only recently diagnosed 12 months ago and have been taking amitriptyline since then (with very little side effects apart from night paralysis). Today
peacelily1972
in
Fibromyalgia Action UK
9 years ago
S2/S3 root nerve block
Hi everyone, I am having 2 sacral nerve blocks (S2/S3) to try and identify the source of my buttock pain. The Dr thinks I may have Posterior Femoral Cutaneous and Middle Cluneal nerve pain. Since I got home, I have been researching these nerves and see that they can come out of S1 and S4 as well. So
Hi everyone, I am having 2 sacral nerve blocks (S2/S3) to try and identify the source of my buttock pain. The Dr thinks I may have Posterior Femoral Cutaneous and Middle Cluneal nerve pain. Since I got home, I have been researching these nerves and see that they can come out of S1 and S4 as well. So
Jeremy1969
in
Pelvic Pain Support Network
9 years ago
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