I have been reading many of the posts here and feel comforted I am
not going entirely mad however as I say I have not been officially diagnosed yet and like many others I am worrying that if no endo is found when I have a laporoscopy then what next. Where do I go, am I imaging this?
Over the 4 years since coming off the pill due to my migraines my pain has become progressively worse. My periods last around 10 days which is preceded by some days spotting and often a day of black tar like substance. I have 2 or so days where I cannot get out of bed and I'm using 3 pads at a time and my pain is intense (codeine doesn't help) This week I barely left the house for a week. I sometimes think ovulation is even worse the pain during this period is intense for 5-7 days and twice I have ended up at A&E. In the last 6 months (since I had a miscarriage actually) I pretty much have pelvic and lower back pains constantly and throughout the month my left side feels like a screw driver is being twisted in my side around my left ovary and radiating down into my inner thigh and leg. I often have pain in my bottom like sharp hot poker shooting through it. Finally which I hadn't thought could be related but may well be is the fact I have had cystitis or UTI's for 22 years. I often ignored them and hoped they'd pass but have had antibiotics for them too. They are so bad I often work from the toilet i even watch films on there when sat up all night ( that's how awful they are) I often only find a crouched position on the floor the least uncomfortable position to be in.. Lately tests show no bacteria but I have constant pain/irritating/feeling like just about to finish or stop peeing in my urethra. Finally (sorry for the long list) sex can be painful (not all the time) and Apols for too much info but an orgasm can be terribly painful particularly on my left side for hours afterwards. In the last 24 hours I have had fleeting pain in my right shoulder which kind of crackles up to my neck than stops (it's not lasting 10 seconds at most)
On my last hospital admission they again tried to tell me it was just the copper coil and to remove it I told them I'd had the coil a month and the last one a week (which they removed) so how comes I had all the other problems a long time before. I even had the left stabbing pain in my side throughout my 24 years on the pill and was scanned and told I had pcos (at later scans I was told maybe I don't) finally during this admission I had an ultrasound which showed my left ovary was adhered to my uterus and this has now finally got me a referral to an endo specialist. My referal has been lost twice but I spoke to the lovely secretary on Friday and she had put all my info together for me and will show the consultant on Monday. I had to be discharged to be referred by my GP and the letter she wrote just said left sided pain nothing of my history but the secretary told me to email everything I've been going through and she would attach it.
To me my symptoms fit with endo but I often feel I'm a lunatic who may be putting them together and imagining things. I'm pretty sure I'm not. Could this all just be the cool I've had for 6 weeks causing this. The adhered ovary??
Not sure of it's related but I hadn't used contraception for 4 years and only fell pregnant after 4 years and had the miscarriage so I'm clearly not particularly fertile. Could this be endo too?
Apols for such a long post just confused and in pain and felt good to actually write it all down