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Cystectomy
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My journey started March 2016
I have been a reader and sometimes give a small answer but haven't put my "details" out there. Since all of us are different in this fight we look for similarities. I was told I can't help if I don't input mine. This is me on my journey. Found out in March 2016. I went to my primary and told her that
I have been a reader and sometimes give a small answer but haven't put my "details" out there. Since all of us are different in this fight we look for similarities. I was told I can't help if I don't input mine. This is me on my journey. Found out in March 2016. I went to my primary and told her that
MichaelDD
in
Advanced Prostate Cancer
6 years ago
Ic, bladder removal and pudendal neuralgia
Hi All, I have had severe i.c. for 3 years. My doctor wants to remove my bladder. We can not get the pain under control and i am on a high dose of pain meds. I am ready because my pain is level ten 23 hrs per day. I feel best when I wake. I had a pelvic pain specialist who thought the pudendal nerve
Hi All, I have had severe i.c. for 3 years. My doctor wants to remove my bladder. We can not get the pain under control and i am on a high dose of pain meds. I am ready because my pain is level ten 23 hrs per day. I feel best when I wake. I had a pelvic pain specialist who thought the pudendal nerve
STUBBORNGIRL7368
in
Pelvic Pain Support Network
6 years ago
Need advice please.
This is a really hard post for me to write .Because of the returned depression l have to admit l am drinking far too much wine alone. l can function, keep the house and myself clean and cook meals but the next day l feel really guilty. l do not want to go the AA route but just want advice on how to control
This is a really hard post for me to write .Because of the returned depression l have to admit l am drinking far too much wine alone. l can function, keep the house and myself clean and cook meals but the next day l feel really guilty. l do not want to go the AA route but just want advice on how to control
kefalonia1
in
British Heart Foundation
6 years ago
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Here it is. Times piece today on CLL and access to drugs. Skip dumb comments....
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
romarin
in
CLL Support
6 years ago
Feel so rubbish
Hi everyone what a week I am having, last Friday I fainted and have never fainted before in my life it has ramped up my health anxiety which wasn’t too bad the week before. This week my sister has had a double mastectomy, I spent all day Tuesday at hospital feeling very stressed and anxious. Since then
Hi everyone what a week I am having, last Friday I fainted and have never fainted before in my life it has ramped up my health anxiety which wasn’t too bad the week before. This week my sister has had a double mastectomy, I spent all day Tuesday at hospital feeling very stressed and anxious. Since then
L1974
in
Anxiety Support
6 years ago
Operation day
Hello have written a few times about my brave and strong sister who is 46 and has genetic breast Cancer. She finished her chemo fec-t regime last month and is currently in theatre having a bilateral mastectomy, it was really hard getting her to go in this morning she was so frightened. Just hope her
Hello have written a few times about my brave and strong sister who is 46 and has genetic breast Cancer. She finished her chemo fec-t regime last month and is currently in theatre having a bilateral mastectomy, it was really hard getting her to go in this morning she was so frightened. Just hope her
L1974
in
My Breast Cancer Community
6 years ago
Hi Everyone
Hello Everyone, I'm new to this forum and would like to introduce myself. I do not have breast cancer but my mother was diagnosed with it back in 2013. Thankfully, she is doing well now having a mastectomy and going through a bit of treatment. I may not know personally what you all went through but I
Hello Everyone, I'm new to this forum and would like to introduce myself. I do not have breast cancer but my mother was diagnosed with it back in 2013. Thankfully, she is doing well now having a mastectomy and going through a bit of treatment. I may not know personally what you all went through but I
t_nguyen701
in
My Breast Cancer Community
6 years ago
Terrified of prolapse...what more could go wrong post lap
I had my third lap to correct endo in my bowel and
cystectomy
9 weeks ago now. I just feel like something isn’t right.
I had my third lap to correct endo in my bowel and
cystectomy
9 weeks ago now. I just feel like something isn’t right.
MissyTx
in
Endometriosis UK
6 years ago
The Beast Within
Hello everyone, I am new to this site. I was diagnosed in 2015 with stage 3B grade 1 breast cancer and given a 6-12 death sentence since I was not on board with chemo nor radiation....I wanted to heal my body with naturals. After 18 months of not being able to shrink the tumor or better yet rid my body
Hello everyone, I am new to this site. I was diagnosed in 2015 with stage 3B grade 1 breast cancer and given a 6-12 death sentence since I was not on board with chemo nor radiation....I wanted to heal my body with naturals. After 18 months of not being able to shrink the tumor or better yet rid my body
Hidden
in
My Ovacome
6 years ago
Megastructures great cancer
Hi I am new to this post. I had breast cancer 13 years ago, had a mastectomy, lymphnodes removed and reconstruction done. After chemo, radiotherapy and tablets everything has been fine. I have just been diagnosed with two breast cancer tumours opposite one another in my stomach plus bone cancer.
Hi I am new to this post. I had breast cancer 13 years ago, had a mastectomy, lymphnodes removed and reconstruction done. After chemo, radiotherapy and tablets everything has been fine. I have just been diagnosed with two breast cancer tumours opposite one another in my stomach plus bone cancer.
LIMEHOUSE3
in
SHARE Metastatic Breast Cancer
6 years ago
Breast cancer in stomach
I have recently been diagnosed with breast cancer in the stomach and bones. I had breast cancer 13 years ago and had a mastectomy, plus lymphnodes removed and a reconstruction done. After all this time I have two breast cancer growths opposite one another in the stomach affecting my food intake. I
I have recently been diagnosed with breast cancer in the stomach and bones. I had breast cancer 13 years ago and had a mastectomy, plus lymphnodes removed and a reconstruction done. After all this time I have two breast cancer growths opposite one another in the stomach affecting my food intake. I
LIMEHOUSE3
in
SHARE Metastatic Breast Cancer
6 years ago
Post mastectomy pain 6 years on
I had left breast mastectomy and reconstruction with implant 6 years ago. Recently have been getting intermittent stabbing pain behind the implant and some tenderness on edge of implant - Gp has referred me back to see a consultant but am wondering if any one else experiences any pain / tenderness this
I had left breast mastectomy and reconstruction with implant 6 years ago. Recently have been getting intermittent stabbing pain behind the implant and some tenderness on edge of implant - Gp has referred me back to see a consultant but am wondering if any one else experiences any pain / tenderness this
ElleeB
in
My Breast Cancer Community
6 years ago
My Mother has been diagnosed with Invasive Carcinoma , HER+ , 3.4 CM Lump
Hi All, I need advise on plan of treatment for my mother, she has been diagnosed with Invasive Carcinoma with Medullary features Grade 3, with Lump size of 3.4 CM in left breast, We got mastectomy and SNLB done last month. SNLB showed all 4 nodes as negative. Her immnuohistochemist report shows ER/
Hi All, I need advise on plan of treatment for my mother, she has been diagnosed with Invasive Carcinoma with Medullary features Grade 3, with Lump size of 3.4 CM in left breast, We got mastectomy and SNLB done last month. SNLB showed all 4 nodes as negative. Her immnuohistochemist report shows ER/
Sriks
in
Breast Cancer India
6 years ago
DOUBLE MASTECTOMY
I'm a 51 year old female, diagnosed 2014 with breast cancer. First yr as a survivor. 11 surgeries later I'm on a quest to wellness. But with this monster I have new medical problems. Feel like I will never get better. Anyone feel this way? Wellness where are you?
I'm a 51 year old female, diagnosed 2014 with breast cancer. First yr as a survivor. 11 surgeries later I'm on a quest to wellness. But with this monster I have new medical problems. Feel like I will never get better. Anyone feel this way? Wellness where are you?
Sue102414
in
SHARE Breast Cancer Support
6 years ago
Triple negative mestastic please help.
Diagnosed one year ago with triple negative. After a double Mastectomy and chemo, it has now metastasized in the lungs and lymph nodes. Has anyone survived a similar situation? Outlook does not look good. Any advice would be appreciated.
Diagnosed one year ago with triple negative. After a double Mastectomy and chemo, it has now metastasized in the lungs and lymph nodes. Has anyone survived a similar situation? Outlook does not look good. Any advice would be appreciated.
jwooten
in
SHARE Metastatic Breast Cancer
6 years ago
Triple negative and BRCA1 positive
Hi, I am 42 year triple negative and BRCA1 positive. My tumor was 1.9 cm and 1 node involved. I don't have any close family members with known history of breast cancer. Genetic councelor suggested bilateral mastectomy and salpingo oophrectomy. Can anyone suggest which hospital best in India for my situation
Hi, I am 42 year triple negative and BRCA1 positive. My tumor was 1.9 cm and 1 node involved. I don't have any close family members with known history of breast cancer. Genetic councelor suggested bilateral mastectomy and salpingo oophrectomy. Can anyone suggest which hospital best in India for my situation
Arumana
in
Breast Cancer India
6 years ago
Feeling totally confused
I saw a specialist and she recommended a laparoscopy and
cystectomy
and a hysteroscopy. When I came round from the procedure it transpired it was an endometrial cyst not a simple cyst and that there was “fairly extensive” endometriosis which she had removed along with removing the cyst.
I saw a specialist and she recommended a laparoscopy and
cystectomy
and a hysteroscopy. When I came round from the procedure it transpired it was an endometrial cyst not a simple cyst and that there was “fairly extensive” endometriosis which she had removed along with removing the cyst.
Coops1109
in
Endometriosis UK
6 years ago
Painful lumps, MRI and that What if feeling
With a BRCA 1 status, and history of Stage 1, grade 3 Triple Neg. cancer, I feel a little cast to sea without clear direction as to how to best monitor my body for recurrence. I had a non-nipple sparing double mastectomy and oophorectomy, so I know I've done due diligence surgically. I know this genetic
With a BRCA 1 status, and history of Stage 1, grade 3 Triple Neg. cancer, I feel a little cast to sea without clear direction as to how to best monitor my body for recurrence. I had a non-nipple sparing double mastectomy and oophorectomy, so I know I've done due diligence surgically. I know this genetic
MelissaEppardCoach
in
SHARE Breast Cancer Support
6 years ago
Diagnosed and Lap within a week!
After my first consultation my Dr told me lapatoscopy, hysteroscopy, die test to check my tubes and
cystectomy
were my best options as Im also trying for my first child. Iv always had painful periods but just thought I was unlucky! If I didnt have an MRI for my lower back, Id be none the wiser!
After my first consultation my Dr told me lapatoscopy, hysteroscopy, die test to check my tubes and
cystectomy
were my best options as Im also trying for my first child. Iv always had painful periods but just thought I was unlucky! If I didnt have an MRI for my lower back, Id be none the wiser!
xxanisaxx
in
Endometriosis UK
6 years ago
First time posting...
The consultant listened and said we'd go straight for a laparoscopic
cystectomy
and recommended a coil as well to help manage pain/bleeding, instead of just waiting to see what happened (he could tell that I just wanted it sorted).
The consultant listened and said we'd go straight for a laparoscopic
cystectomy
and recommended a coil as well to help manage pain/bleeding, instead of just waiting to see what happened (he could tell that I just wanted it sorted).
Clairey007
in
Endometriosis UK
6 years ago
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